Hlangana noGabriel

UGabriel Cohen

Hlangana noGabriel, ingane yami yezimanga

“Ngangicabanga ukuthi kufanele ngifundise ingane yami ngomhlaba. Kuyavela ukuthi kufanele ngifundise umhlaba ngendodana yami. Babona ingane engakwazi ukukhuluma, ngibona isimangaliso esingadingi magama.”

Kunomhlaba sonke esiwaziyo nesijwayelene nawo, umhlaba wokuphelela nokujwayelekile futhi kukhona umhlaba wethu. Izwe lethu ligcwele ukungapheleli nobuhlungu benhliziyo, ligcwele izingane ezinokukhubazeka nokungajwayelekile, ligcwele odokotela, abelapha, izibhedlela nemithi, ligcwele uthando, uthando nokuqonda, nentukuthelo, umuzwa wecala nobuhlungu. Asikaze sicele ukuphonswa kulo mhlaba, kumane kwenzeka kanjalo kodwa uma sibheka emuva manje, ngeke sishintshe lutho.

Konke kwaqala ngo-2002

UGabriel wazalwa ngoFebhuwari 2002. Wazalwa ecake udebe futhi ngemva kwalokho kwatholakala ukuthi une-Lobar Holoprosencephaly, ingxenye ye-Agenesis yeCorpus Collosum, Craniostynosis, Microcephaly, Absence Seizures kanye ne-Diabetes Insipidus (isifo sikashukela samanzi hhayi ushukela). Sakhungatheka. Kwaba sengathi wonke umhlaba wethu uwile. Satshelwa ukuthi uGabriel angase angalokothi ahambe futhi angase angabi nalutho. Sanquma ngaleso sikhathi ukuthi sizolwela indodana yethu ibe sezingeni lempilo futhi siyinikeze wonke amathuba empilweni yayo ukuyisiza ifinyelele ikhono layo eliphelele. Ngakho-ke uhambo lwethu lwaqala…singazi ukuthi ikusasa lizomphathelani indodana yethu... imizwa eminingi... ukwesaba, ubuhlungu, usizi, ukudabuka, icala, ukusola, intukuthelo, inzondo, isihawu futhi ekugcineni sazithola sinecala. ukwamukelwa kanye nenjabulo.

U-Gabriel waqala ukwelapha enezinyanga ezingu-9 ubudala futhi sihlanganisa ukwelapha kwakhe ezindleleni zakhe zansuku zonke futhi sekuyingxenye yempilo yethu yemvelo. Uhambela i-occupational therapy, physiotherapy, i-speech therapy kanye nokugibela amahhashi. UGabriel wafinyelela zonke iziqophamlando zakhe ngesikhathi esifanele waze waba nezinyanga eziyisi-6 futhi ngemva kwalokho waqala ukukhombisa ukubambezeleka okukhulu kwentuthuko. Manje uGabriel uya esikoleni esimangalisayo sezidingo ezikhethekile ekuseni lapho echuma khona futhi efunda ukuzimela. Njengamanje uhlolwa cishe ezinyangeni eziyi-10-14 ngokuqonda kodwa siye safunda ukwazisa izinto angakwazi ukuzenza, futhi singabheki izinto angakwazi ukuzenza.

UGabriel wakhasa enezinyanga ezingu-12 futhi wazihambela enezinyanga ezingu-20. Uyingane ekhuthele enelukuluku lokwazi futhi unesifiso esinamandla nokuzimisela okumsiza ukuba aphumelele. Uthanda ukugxuma, ukudlala nokucula. Ukwazi ukwehla enyuka izitebhisi eyedwa, uyakwazi ukuvula nokuvala amathoyizi akhe kagesi, aphendule amakhasi ezincwadini, akhethe ukuthi yimaphi amathoyizi azodlala ngawo kanye nokunye okuningi. Akakhulumi futhi akakwazi ukusayina kodwa uyakwazi ukuxhumana nezidingo zakhe eziningi ngamehlo noma ngokunyakaza komzimba. Waqala ukudla okuqinile eneminyaka engu-3 ½ ubudala futhi manje uthanda ukudla konke ukudla. Unomqondo omncane kakhulu ngengozi futhi udinga ukunakekelwa nokubukwa ngaso sonke isikhathi. Ukulala akulona izwi ekhaya lethu kodwa ngemva kweminyaka eminingi kangaka, kubonakala sengathi sesikujwayele ukungabi nabuthongo. Silungise izimpilo zethu ngokuhambisana nezidingo zikaGabriel futhi lena impilo yethu. Ayikho enye impilo esiyaziyo futhi akukho okungcono esikwaziyo.

Ukuqonda ingane yami enezidingo ezikhethekile

Bekungeyona indlela elula futhi siyazi ukuthi ziningi izinselelo esibhekene nazo. Kodwa ingxenye yenqubo yokwelapha ukwamukelwa nokuqonda ukuthi yonke ingane ihlukile ngendlela yayo. Iqiniso lokuthi ingane yethu ayisoze yahamba ekhaya, ayisoze yaya enyuvesi, ifunde noma ibhale, noma ishade iyingxenye yokwamukela, kuyingxenye yokuthanda ingane yakho ngaphandle kwemibandela futhi iyingxenye yokuqaphela ukuthi uGabriel uphelele kithi. emehlweni nasemehlweni kaNkulunkulu. Kungukuqonda ukuthi izimangaliso ziyenzeka. Ukuthi yonke into eyenziwa umntwana iyisimangaliso, yonke iminyakazo, wonke umoya. Kuyingxenye yokwazisa ukuphila ngalokho eyikho, ngalokho ekunikeza kona futhi kuyingxenye yokuguqula izinto ezibalulekile kanye nokubona ngale kwalokho umphakathi okushoyo njengokujwayelekile. Kuvula amehlo akho ukuze ubone enye yezingelosi zikaNkulunkulu ilele ezingalweni zakho, imamatheka ibuka abazali bayo ngamehlo ayo amakhulu aluhlaza nama curls ablonde. UGabriel unguthisha OMKHULU ngaphandle kokwazi, futhi wenza abantu babone lokho abanakho ngempela futhi babonge ngalokho!

U-Gabriel une-aura emzungezile, amandla adonsela abantu kuye, amandla enza wonke umuntu amamatheke lapho ekhona, namandla enza yonke into emzungezile ikhanye ukukhanya kwelanga. U-Gabriel usilethela injabulo emangalisayo futhi okusikhuthaza kakhulu ukuqhubeka ukumamatheka nokuhleka kwakhe njalo.Ngo-2008, u-Gabriel waba umfowabo ka-Jaden omkhulu ngemva kwempi ende futhi manje usengumntwana ovamile futhi ophile kahle othanda umfowabo. Nakuba u-Jaden esedlule uGabriel ekukhuleni kwengqondo, bobabili badlala ndawonye futhi bajabulela ukuba ndawonye. Izingane zami ziye zaba ugqozi lwami, futhi phakathi nobusuku obude bokungalali nezikhathi ezicindezelayo lapho uGabriel egula, ngisabonga kakhulu ngazo zonke izinsuku esiba nazo naye.

Uhlala ne-Holoprosencephaly

Ukuhlala noGabriel sekuphenduke indlela YETHU yokuphila, azikho izincwadi, azikho iziyalezo, izincwadi zezokwelapha zonke zithi izingane ezine-HPE ngokuvamile ziyafa noma "ziyimifino", KODWA kuphela iqembu labasekela phesheya elineqembu elingakholakali lomama be-HPE okufanele baliqondise. futhi useluleke ohambweni lwethu okube umusa wethu osindisayo . Okungenani ithimba lethu lezokwelapha liyasilalela, futhi libuze i-US ukuthi senzeni kwezinye izimo ngo-Gabriel futhi lize lithathe izeluleko zeqembu labasekeli, njengoba kuyithina bomama esazi kangcono ngempilo yansuku zonke nge-HPE kunochwepheshe.Sifundile ukuthi uGabriel akayena ukuxilongwa kwakhe futhi sizama ukungagxili kukho kakhulu. UGabriel nguGabriel, futhi lolo uthando olumsulwa olumsulwa. Akunandaba ukuthi uGabriel akakwazi ukwenzani. Okubalulekile ukuthi sinikezwe le ngane ekhethekile futhi inempilo ejabulisayo nokwaneliseka. Kulula njengokuthi...

Shesha phambili ....

UGabriel uhlanganisa iminyaka engu-13 ngenyanga ezayo. Iminyaka esasingakaze sicabange ukuthi uyoyifinyelela. Ingane yami enkulu manje isingaphezu kuka-60kg futhi isiyi-1.6m ubude. Ngisesemanabukeni, usaphuza ebhodleleni lengane elinoketshezi olujiyile, usadinga ukuphakelwa ngesandla, ngokwengqondo cishe uneminyaka eyi-1 kuphela KODWA kusenguye umfana engimaziyo ojabule kunabo bonke. Naphezu kwazo zonke izinselele zansuku zonke nezinkinga zezokwelapha okuye kwadingeka sibhekane nazo noGabriel phakathi neminyaka edlule, usewukukhanya kwelanga ezimpilweni zethu futhi usilethela injabulo eyengeziwe kunalokho esingakucabanga. Lo mfana okhethekile uye wathinta ukuphila kwabaningi, ngaphandle kokwazi nangaphandle kwamazwi, uye waba uthisha omkhulu kunabo bonke kwabaningi, efundisa okubalulekile ekuphileni ngendlela elula. BUKA LESI SIKHALA ukuze uthole okwengeziwe.... Imigubho EMIKHULU ngoNhlolanja wezi-2015 yokugubha isimangaliso kanye nengqophamlando yosuku lokuzalwa luka-Gabriel iminyaka engu-13 kanye ne-Barmitzvah yokomoya ukuze amamukele ebukhulwini bakhe bezenkolo njengo-Gabriel Cohen, ingane yami eyisimangaliso!
ugabriel cohen
Februwari-March 2015:
UGabriel waba nomcimbi omuhle nongokomoya we-Barmitzvah owathinta wonke umphakathi. Sabelana ngomgubho wethu nomndeni wethu nabangane abaseduze ngokuxhasa i-Brocha (isidlo) ngeSabatha eShul (esinagogeni) yethu eyayijatshulelwa yibo bonke. Mina no-Ivor sazizwa siziqhenya kakhulu ngensizwa yethu, indlela esesihambe ngayo nendlela esesihambe ngayo, ngokomzwelo nangokomoya ohambweni lwethu noGabriel. Sibusiswe kakhulu ngokuba noGabriel ezimpilweni zethu futhi siyazazisa zonke izinsuku esinazo naye.

Ukwesaba kwethu okukhulu kwagcwaliseka

UDisemba 2018, lolo suku olusabekayo esasihlale sazi ukuthi luzofika futhi singakaze sikhulume ngalo lwafika. NgoLwesihlanu zingama-28 kuZibandlela, uGabriel waquleka futhi wayeka ukuphefumula. Awekho amagama okuveza imizwa ngalesi sikhathi. Ubaba kaGabriel u-Ivor akazange angabaze isikhashana futhi waqala ukwenza i-CPR kuye ngenkathi silinde i-ambulensi ukuthi ifike. UGabriel wafakwa umshini wokuphefumula izinsuku ezimbalwa futhi odokotela babazi ukuthi uzophumelela yini. Nakhona futhi, ingane yami, isimangaliso sami, yafakazela ukuthi odokotela banephutha futhi yaqala ukuphefumula yodwa ngemva kwezinsuku ezimbalwa. Wayese-ICU amaviki angu-2, amaviki ama-2 angokomzwelo omude kakhulu futhi akhathazayo. Kuthathe izinyanga eziyisi-7 ukuthi uGabriel abuyele esimweni sakhe sokumamatheka esijabulisayo kodwa sibonga kakhulu futhi sibonga ukuthi useluleme ngokuphelele ngaphandle kokulimala okungapheli njengoba singasho.
U-Gabriel wathatha izinyanga ezingaphezu kweziyi-12 ukuthi alulame ekuweni kwakhe ngo-2018. Sibonga kakhulu ngokuthi ululame ngokugcwele futhi usebuyele esimweni sakhe sokumamatheka esijabulisayo. NgoNovemba 2020, uGabriel wenza kahle futhi usinika injabulo enkulu. Ungu-5.9 futhi unesisindo esingu-82kg futhi usemusha ojabule. Usenezinyanga eziyi-12-18 ngokwengqondo kodwa ungumuntu ojabule kakhulu esimaziyo.
UGabriel Cohen

Kwabe sekufika uCovid..

NgoJulayi 2021, ngemuva kokuba yedwa futhi eqaphile isikhathi esingaphezu kwezinyanga eziyi-18, uCovid wangena ekhaya lethu. Ngokushesha uGabriel wagula kakhulu futhi wathola umoya-mpilo isikhathi esingaphezu kwamasonto angu-5. Sakhetha ukungalali esibhedlela ngaleso sikhathi ngenxa yezizathu eziningi. Okokuqala bekuzodingeka ahambe yedwa ngaphandle kwami ​​ngingene ewodini le-Covid futhi okwesibili sasiphakathi kwegagasi lesithathu, kanti isibhedlela sasigcwele iziguli ze-covid. Kwakuyisikhathi esesabekayo njengoba odokotela babengacabangi ukuthi uGabriel uzosinda ku-Covid futhi basitshela ukuthi sizilungiselele umphumela omubi kakhulu. Siguqule igumbi lethu lokulala elikhulu laba "igumbi lasesibhedlela" elinazo zonke izinto esizidingayo, futhi sibonga kakhulu ngohlelo lwe-Hatzolah Covid, sithumela abahlengikazi ekhaya lethu nsuku zonke amasonto ayi-7 ukuze bahlole uGabriel futhi baqinisekise ukuthi ulungile, esisiza kulesi sikhathi esinzima kakhulu. Futhi njalo, uGabriel wasibonisa ukuthi uyisilwi kanjani! Sibonga kakhulu ngokuthi uye walulama ngokugcwele futhi ubuyela esimweni sakhe esijabulisayo.
Futhi impilo iyaqhubeka .....