Ibhulogi yakamuva Izindleko zokunakekela sezilungele ukufundwa ku-inthanethi lapha https://www.fireflyfriends.com/uk/blog/the-cost-of-caring/ Kubonakala kunokungaqondi kahle phakathi komphakathi wakithi (futhi nakude ngempela.) Uyabona, muva nje ngibone isiphithiphithi ezinkundleni zokuxhumana mayelana nezindleko zakamuva zesibonelelo sikahulumeni esinikezwe amakhaya amaningi kulo lonke elase-UK. Le mali yayihloselwe ukusiza labo abanezinkinga zezimali ukuthi babhekane nokukhuphuka kwezindleko zokuphila e-UK kungazelelwe. Abezindaba abasizanga ekubhaleni kwayo izihloko zezindaba eziklanywe ngokucacile ukubangela intukuthelo nokuvusa ukusabela. Abantu bathathela kukhibhodi bebhala bonke abamukeli njengokuthi “amavila”, “izipontshi” “ama-scroungers” kanye nezinye izinto ebezingeke zibe mnandi kakhulu kimina ukuthi ngizibhale lapha. Okuningi kwakho kwakuqondiswe kubantu abasesimeni esifana nesethu. Isikhundla ebengingalindele ukuthi singazithola sikuso. Ngabuka abantu bevikela ukuthi kungani beyidinga leyo mali. Ngibuka abantu becasukile ngoba basebenza amahora amaningi nsuku zonke futhi “abatholi lutho”. Ngabona izinto ezingajabulisi ngempela ezazishiwo. Kunombono oqondile wokuthi abantu abakhubazekile banikezwa nje “imali yamahhala” noma “izindlu zamahhala” noma “izinto zamahhala”. Ngikhumbula okuthunyelwe kudala lapho othile ephakamisa ngokuqondile ukuthi abantu abane-autism banikezwe amathoyizi amahhala nakho konke abakudingayo. Ngakho-ke ngicabanga ukuthi umbuzo wami uthi - ngingabhalisela kuphi le mali yamahhala yokuphila kwakho konke ngicela? Kuzwakala kumnandi. Ngaphandle kwamahlaya, izinto ngokwezezimali ziqinile kunangaphambili kwabaningi bethu. Muva nje sibe nezinkinga zokuhambisa ukufundwa kwemitha yegesi entsha futhi imitha yethu “ehlakaniphile” iyekile ukusebenza. Sayishintsha ukuze sitshelwe ukuthi sikweleta u-£79 000! Cabanga ngokumangala kwethu! Siyabonga ngemuva kwamaviki ambalwa ama-imeyili abuya naphambili nezingcingo saziswa ukuthi empeleni sikweleta u-£797 kuphela. (Kuphela! Uthi, njengokungathi uno-£2.70 ku-akhawunti yakhe yasebhange njengamanje.) Uyabona imindeni efana neyethu inezindleko zokusebenza eziphakeme kakhulu! Umbhede wasesibhedlela olungiseka ngobude, iphampu ephakelayo, umshini wokumunca, izinto eziphakanyiswa usilingi, igedlela elingapheli elibilisa amanzi angenalutho okuphakela amashubhu, ukuwasha okwengeziwe, amashawa engeziwe, ukunakekelwa kwendawo ye-stoma nokuphatha. Ngingaqhubeka nokuqhubeka. Yonke into idinga ukushajwa, noma uhlobo oluthile lokunakekelwa okujwayelekile okudinga uhlobo oluthile lwamandla. Ukuhlala esibhedlela. Lokhu kudinga imali eningi kakhulu kunalokho obungayilindela! Izinsuku zokuphuma. Ukushisela iveni yesihlalo esinamasondo okumele ithuthe isihlalo sabakhubazekile esikhulu kanye nemishini yezokwelapha yonke indawo. Nokho, ngicabanga ukuthi, ngaphandle kokuthi uphile izimpilo zethu, awusoze waqonda isithombe engizama ukusidweba lapha. Imindeni iyesaba. Bazoyishisa kanjani indlu yabo kulobu busika? Kunabantu abakhetha phakathi kokudla nokushisisa. Kubo bonke engibaziyo abasesimweni esifanayo, ngicabanga ukuthi ngokuvamile bazokutshela into efanayo. Bangakutshela ukuthi ukusebenza isikhathi esigcwele kuyilungelo. Babezokutshela ukuthi baphuthelwa kangakanani emsebenzini. Ukukhiqiza, ukuphazamiseka, isimo senhlalo, imali, nezinye izinto eziningi. Bangakutshela ukuthi baphuthelwa ukukwazi ukuphuma endlini nesikhwama semali, ifoni nokhiye. Ukuthi baphuthelwe zonke izingcingo ezibangela lowomuzwa wokugula esiswini sabo. “Hhayi bo, akuyona enye i-ambulensi? Uyaphila?” Bayaphuthelwa ukukwazi ukubhuka isikhathi bengekho ezindaweni ngaphandle kokucwaninga izinyanga mayelana nezimo, izibonelelo, kanye nokuthi bangakwazi yini ukuzikhokhela ingasaphathwa yokuphatha ngaphandle kokunakekelwa kanye nekhefu abalifanelekelayo. Esinye sezifundo ezinkulu engizifundile kule minyaka engu-8 edlule bekuwukungahluleli. Ngikhumbula ngisebenza ngokugcwele ehhovisi. Ngiyathanda ukuxoxa le ndaba… kodwa ngikhumbula ngolunye usuku nginomsindo futhi nginomsindo mayelana nenani lokuqongelela izinhlangano ezisiza abampofu esihlala sikwenza. Kwakuhlala kuxhaswe lapha, ukudayiswa kokubhaka laphaya, usuku olungafaki umfaniswano lokhu, ukugibela intaba lokho. Ukuze ngiziphendulele, ngaleso sikhathi ngangikhulelwe futhi ngilondoloza yonke isenti ukuze ngikhokhele idiphozi yendlu yethu yokuqala. Ngangenze amasonto angama-60 amahora futhi ukukhathala kwase kuba ngcono kimi. Ngakho-ke engikushoyo ukuthi - ngiyakuthola. Ngiqonda ngokugcwele ukuthi kungani abantu bethukuthele. Manje sengiyabona ukuthi intukuthelo yabo ibekwe kabi kakhulu. Leyo £326 ayihambi ngisho nengxenye yokukhokha isikweletu samandla esisanda kudubula. Angikwazi ukuvele ngiyokwenza isikhathi esengeziwe. Ngeke ngikwazi ukuyofuna omunye umsebenzi ngendlela engingathanda ngayo. Ngazama ukusebenza amahora ambalwa ngesonto eminyakeni embalwa edlule. Kwakuyinhlekelele. Ngangifika njalo ngikhathele ngikhathele umnakekeli ngenxa yokuntula ubuthongo nokungenelela njalo kwezokwelapha njll. Noma ngangingeke ngithembeke ngenxa yezifo zesifuba zendodakazi yami kanye nokuquleka. Kwabangela ukucindezeleka okukhulu. Usuku lokukhokha lwaluzofika. Ngingajabula ukuphinde ngizitholele eyami imali ukuze ngithole ukuthi imali engiyiholayo isho ukukhokha kancane kancane kwekhredithi. Ngabona ukuthi empeleni bengisebenzela mahhala kuyilapho wonke umuntu oseduze kwami ehola… kodwa akekho noyedwa kubo owayenikeza ukunakekelwa okungu-24/7 kumuntu oncike kakhulu ngokwezokwelapha. Ngaphezu kwalokhu, selokhu kwaqubuka lolu bhubhane, izinhlangano ezisiza umphakathi ziye zaba nomthelela omkhulu kwezezimali. Ukushoda kwezimali kungasho ukuthi indlela yokufaneleka iba nzima kakhulu ukuthi abantu bahlangabezane nayo futhi ngaleyo ndlela abantu abaningi abakwazi ukuthola izibonelelo ababezifanelekele ngaphambilini. Ebusuku ngihlala ngikhathazeka. Mayelana nokwahlulela komphakathi ngathi. Mayelana nokuthi ngizohamba ngani uma ngingasekho. Mayelana nemali asisoze saba nayo. Ngiyazi enhliziyweni yami ukuthi abanakekeli banikela ngenani elikhulu emphakathini wethu. Sisindisa izigidi zikahulumeni wethu minyaka yonke. Asizitholi izinsuku zokugula, asiyitholi ikhefu lonyaka. Asikutholi ukuhlolwa futhi sivame ukuhlupheka ngokuzihlukanisa, ukungaziboni, kanye nempilo embi kakhulu. Asilutholi uhlelo oluhle lwempesheni. Senza esikwenzayo ngesidingo nangothando. Asihlali ezindlini zamahhala ezinkulu neziwubukhazikhazi. Abaningi bethu kuye kwadingeka badayise amakhaya ethu angalungiseki ebesiyisebenzele kanzima. Abaningi bethu kuye kwadingeka ukuthi bakhankase ngokungaphezi ukuze bathole ukulungiswa kwamakhaya ethu esikudingayo ukuze sinakekele izingane ngokuphephile. Akekho umuntu "onikezwa" noma yini. Abaningi bahlala ezindlini ezingafaneleki, eziminyene, abakwazi ngisho nokudonsa isihlalo sabakhubazekile emnyango. Amasevisi ahlala esengozini ngenxa yethu. Sihlala sikhathazeka mayelana noxhaso lwesikhashana, ezokuthutha nezemfundo, uxhaso lwe-NHS nokunye okuningi. Kuyakhandla ngokomqondo ukukhathazeka inani esikwenzayo. Sizizwa njalo sengathi sidinga ukuvikela noma yini esiyitholayo, kungakhathaliseki ukuthi incane kangakanani. Ngakho-ke uma ufunda lokhu kodwa ungekho esimweni sethu, ngingakunxusa ngempela ukuthi ube nokwengeziwe nobubele futhi empeleni ube umngane wethu. Asizona izitha. Ungazikholwa izihloko zezindaba uma ziphuma ukuze uthole ukuchofoza namazwana. Cabanga ngalokho esibhekana nakho usuku nosuku futhi sibungaze ukuthi impilo iyinhle futhi iyigugu kangakanani ngempela. Okuxakayo kukho konke lokhu ukuthi empeleni manje ngizoba isisebenzi esingcono kunangaphambili. Amakhono ami admin angelutho, ngibekezela kakhulu kunakuqala, ngiqondile futhi ngisebenza kahle, nginekhono ezindaweni eziningi. Ngijabule kakhulu endodakazini yami. Ngingenza izinqubo zezokwelapha kanye nokungenelela engangingazi ukuthi kukhona, futhi angikaze ngicabange ukuthi ngizokwazi. Yiba nomusa kuwe. Wenza kahle kakhulu. Lokho izwe langaphandle elikucabangayo akunamsebenzi. Uyalazi iqiniso lakho nokubaluleka kwakho. Ngiyazi ukuthi kuzoba nabantu abangavumelani ngokuphelele nakho konke engikubhale lapha. Kodwa yazi ukuthi ngibona izinhlangothi zombili. Futhi yazi ukuthi uze uhambe imayela ezicathulweni zethu ongeke ukwazi ukuqonda ngempela ukuthi izimpilo zethu zibukeka kanjani. Okuthunyelwe Izindleko zokunakekela zivele kuqala ku-Firefly Blog. ************ https://www.fireflyfriends.com/uk/blog/special-needs/,https://www.fireflyfriends.com/uk/blog/special-needs/advice -support/,https://www.fireflyfriends.com/uk/blog/special-needs/disabilities/
