Eminyakeni engu-12 edlule njengoba ngilindele ukufika kwengane yami yokuqala ngaba nombono ongacacile wokuthi umama uzobukeka kanjani. Ngangiye emakilasini abakhulelwe, ngangizilungiselele ngendlela engangingeke ngizilungiselele ngayo ukudla kwasebusuku, ukushintsha amanabukeni, ukuncelisa amazinyo njll. Ngemva kokukhulelwa kanzima ngangilangazelele kakhulu ukuhlangana nalo muntu omncane owayesecishe ukuzalwa. . Ukuba ngumama akubonanga futhi akubukeki ngendlela ebengiyilindele. Impela kukhona izingcezu ezijwayelekile, ilondolo engapheli kodwa kunezinye izingxenye ebengingazi ukuthi zizoba yingxenye yempilo yethu. Angikaze ngilindele ukuthi ngisazoshintsha amanabukeni kule minyaka, noma ukuthi ngabe ngabe ngishintshe kakhulu kule minyaka kusukela isiqhumane sami sendodana sangena emhlabeni. Abazali be-SN bathuthukisa uhlobo lwamakhono okumela okufanele amanxusa ngempela abe nomona njengoba siqinisekisa ukuthi izingane zethu zinikezwa ukwesekwa, izinsiza, izinto zokusebenza njll ezizidingayo nezizifaneleyo. Sifunda ukuzulazula kumasistimu namaphepha abonakala ekhona ukwenza kube nzima ukweseka esibathandayo kunokuba kube lula, ngaso sonke isikhathi siqinisekisa ukuthi umsebenzi wesikole uyenziwa nokuthi amakhaya ethu awahlukani ngokuphelele (yize ungabheki kakhulu eyami!). Omama nobaba bezokwelapha nokho, siwuhlobo oluhlukile ngisho naphakathi kwemindeni yama-SN. Kuyisibopho esakhelwe ekuhlangenwe nakho okwabiwe ewodini Lokuncike Kakhulu kanye Nabagula Kakhulu, kusukela ekwabelaneni ngezindaba ezinzima kakhulu ezingazizwa noma imuphi umzali, nasekubambeleleni ngawo wonke amandla ethu njengoba izingane zethu zilwela ukuphila. Sinezibazi, sikhathele yimpi, ngokungananaziyo sivame ukubukeka singcolile futhi asihlali sithola injabulo ngemva kwalokho okufanele izingane zethu ezinhle. Kodwa nokho, ngizizwa ngibonga kakhulu ngokuba yingxenye yaleli qembu elilimele nelishayiwe labazali abamangalisayo. Ukuba ngumama akuyona into engangiyilindele. Kunonya, kungcolile futhi kungaphula inhliziyo. Kodwa ukubona umfana wami ezuza izinto, ukumbuka enza izinto ngendlela yakhe nokubona lokho kumomotheka kwakhe okumangalisayo umuzwa omkhulu kunayo yonke eMhlabeni. Ngempela uyisizinda somhlaba wami futhi ukuba uMama wakhe kuyimpumelelo enkulu kunazo zonke empilweni yami. Ngiyazi kabuhlungu ukuthi akubona bonke abangani bami abasenezingane zabo lapha kubo, abanye basafisa ukuba uMama. Abanye ngomama bezingane abangazalanga; abaningi basanda kuqala uhambo olungaqinisekile nezingane zabo ngemva kokuzwa ukuxilongwa kwabo okokuqala ngqa. Abesifazane bayizidalwa ezimangalisayo – ukuthi ufika kanjani ekubeni umama akusho lutho, ukuthi wenzani ngakho okubalulekile. Okuthunyelwe Uhlobo Oluhlukile Lobumama luvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/a-different-kind-of-motherhood/

UNkulunkulu Ukhethela Umama Wengane Ekhubazekile Ibhalwe ngu-Erma Bombeck Ishicilelwe Ephephandabeni Lanamuhla Sept. 4, 1993

Ukuba umzali onezidingo ezikhethekile kuwuhambo oludinga amandla, uthando, nokuzinikela okungantengantengi.

“Izelamani zezingane ezinezidingo ezikhethekile zikhethekile. Ukwamukela ngokuphelele nothando ngokuphelele, kusukela ekuzalweni, umuntu ohlukile ngokwengqondo, futhi onendlela ehlukile yokubona umhlaba, kuyisici esimangalisayo. Kuyisici engifisa sengathi ngabe bekunenye indlela yokuyithola, kodwa ayikho.”

Izindlela ezisebenzayo ezingama-21 zokusiza izingane ezincane ukuba zikhululeke ekupheleni kosuku futhi zilawule imizwa yazo emikhulu.

Kusukela eneminyaka emi-3, umfana wami udliswa ngamashubhu. Kusukela ekuqaleni sasazi ukuthi sifuna ukumnika ukudla kwangempela okuhlanganisiwe ukuze kwehle ngepayipi lakhe - safunda ngokushesha ukuthi ukudla kwefomula kwakungamfanelanga, ukungabekezelelani okukhulu kobisi kwakusho ukuthi wayenokuphazamiseka kwesisu cishe njalo ngisho naku-hypoallergenic kakhulu. kokuphakelayo. Nakuba ithimba lakhe le-gastro/dietetics lalingaphikiswanga ngokuphelele kodwa lalingekho ngemuva kwalo ngokugcwele; kwadinga ukuncenga okukhulu, ukucwasa, ukugcwaliswa kwamafomu kanye nezivumelwano ukuthi lokhu sasikwenza ngokumelene nesikhundla sesibhedlela ngaphambi kokuba bakwamukele. Kumele ukhumbule ukuthi lokhu bekuyiminyaka engaba yishumi edlule futhi bekubukeka njengokuhlukile kwejwayelekile, ibingekho imindeni eminingi ehlanganisiwe futhi embalwa kakhulu eyakuvuma ngokukhululekile! U-Sam uyachuma ekuhlanganisweni. Akagcini nje ngokukhuluphala kahle, kodwa akanazo izinkinga eziningi zamanye amashubhu (i-reflux, izinkinga zamathumbu, izinkinga zezicubu, njll). Ngokuhamba kweminyaka, usosayensi okimi akakwazanga ukumelana nokucwaninga ngezixhumanisi phakathi kokuquleka nokudla; ubisi, isoya, i-gluten kanye nommbila kungabangela ukwanda kokuquleka kubantu abazwelayo ngakho sikususile lokhu ukuze sibone ukuthi kwenzekeni. Ukuquleka kwakhe kwaba ngcono. Ngokukhulu. Ukudla kwakhe kuyamangalisa njengoba zimbalwa kakhulu izinto esingazihlanganisi futhi sikwazile ukususa ukudla angakwazi ukukubekezelela kalula. Siyayengeza ku-multivitamin eyimpuphu, inkinga evamile ezinganeni ezisebenzisa imithi ethile ukuthi zimunca amazinga aphansi amavithamini athile ekudleni kwazo... ukuzinikeza ukusekelwa okwengeziwe lapha kugcina yonke into njengoba kufanele. Ngizoba buthuntu, ayilungele yonke ingane. Awukwazi ukunikeza ukudla okuhlanganisiwe phansi kwe-jejostomy njengesibonelo. Izinkinga zendodana yethu zazingakaze zibe mayelana nokubekezelela ukudla noma ukumuncwa. Akuyona inketho elula kodwa enzima njengokwenzela noma iyiphi ingane ukudla, futhi umthelela omuhle kubazali/banakekeli wokubabuyisela ikhono lokulungiselela ukudla nokondla ingane yabo mkhulu kakhulu. Eminyakeni engu-8+ asikaze sibe nokuvinjwa kweshubhu nokukodwa noma ukugula ngenxa yokuxubana; imithi kodwa idale izinkinga eziningi zamashubhu. Lapho kwake kwabhekwa njengesenzo sobudlova ukunikeza ingane ukudla kwangempela ngeshubhu yokondla, manje sekuyamukeleka kakhulu; uma imindeni ifuna ukuzama ukudla okuxubile futhi asikho isizathu sezokwelapha sokuthi ingakwenzi lokho, ifanelwe yinketho yokuzama? The post Lapho ukudla kuwumuthi appeared first on Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/when-food-is-medicine/

Ngokungenelela kusenesikhathi, umhlaba wokuxhumana oxube kakhulu ufinyeleleka kalula kwabangezwa kahle Okuthunyelwe Ukusiza Izingane Ezinenkinga Yokukuzwa Zikhulume Kwavela okokuqala kumagazini Wezingane. Ibhulogi yakamuva evela ku-https://www.childmag.co.za/helping-children-with-hearing-loss-communicate/?utm_source=rss&utm_medium=rss&utm_campaign=helping-children-with-hearing-loss-communicate

Ngisanda kuskrola kuFacebook ngabona umbhalo othi makuqashelwe iqiniso lokuthi kufanele sibize abantu abane-autism ngokuthi “autistic” esikhundleni sokuthi “bangabantu abane-autism”. Kuphinde kwaba nengxoxo ngegama elithi i-autism spectrum disorder (ASD) ebangela ukucasula kulabo abathintekayo. Njengomhlengikazi oqeqeshelwe ukukhubazeka ekufundeni, lokhu kwangidida. Ngafundiswa ukubeka umuntu phambili nesidingo endaweni yesibili, isibonelo ngingowesifazane one-Multiple Sclerosis (MS), hhayi umuntu we-MS. Indodana yethu futhi ingumfana one-spina bifida (ngeke ngibale okunye!), hhayi isiguli somgogodla. Angisasebenzi kodwa ngikhumbula ngibhala amanothi amaningi ngabantu “ababene-autism” esikhundleni sokuthi “umuntu one-autism”. Okuthunyelwe kwangempela kunginikeze ukudla kokucabanga. Kimina, lokhu ukubuyiselwa kolimi obekwaziwa ngaphambilini njengoluhlaselayo ukubiza umuntu nge-autistic esikhundleni sokubeka kabusha lokhu kumuntu one-autism. Umama waphawula futhi wangichazela ukuthi indodana yakhe inezinwele ezinsundu, amehlo aluhlaza kanye ne-autism. Kwakungesona isimo sokwelashwa, noma into ongaba namahloni ngayo. Ngifunde amazwana amaningi afanayo avela kubazali nakubantu ngokwabo bonke ababefisa ukubizwa ngokuthi abantu abane-autistic. Impela leli yilungelo labo eliphelele lokucela abantu ukuthi babhekise kubo ngamagama abawathola amukelekile? Kungenze ngacabanga ngazo zonke izindlela abantu abaxoxa ngazo ngendodana yami. Izingxoxo ngokuvamile ziqala ngokuthi “yini engalungile emilenzeni yakhe?” noma “kungani ehamba ngesihlalo esinamasondo?”. Okubi kakhulu kimi ukuthi "ingakwazi ukuhamba?" ngoba ngiye ngithole abantu sebebanjwe yimicabango yokuthi ukungakwazi ukuzihambela kusho ukuthi awukwazi ukujabula Lokho akulona iqiniso. Ngakho-ke abantu abaningi abakwaziyo ngokomzimba bacindezelekile kuyilapho iningi labasebenzisi bezihlalo ezinamasondo bengenakho. Lesi simo ngokusobala siyahlehla, kodwa iphuzu liwukuthi, ngiyangabaza ukuhamba kuyisici esinqumayo ngempilo enhle yengqondo. Ngokomlando abantu bebengasebenzisa ulimi oludelela ngendlela eyisimanga ukuchaza abantu abane-downs syndrome, engingeke ngisakuphinda ngoba kuyangethusa kakhulu kimina. Bekukhona namatemu okuchaza labo abanezidingo eziyinkimbinkimbi ezabenza bacishe babe ngabantu. Siyabonga ukuthi siqhubekile safunda emaphutheni adlule ukuze sakhe umphakathi obandakanya wonke umuntu. Njengoba ngizungezwe ukukhubazeka iminyaka eminingi manje, ngiyakuqaphela ngempela ukuzama ukufunda kwabanye abantu ukuthi bafunani uma kukhulunywa nabo noma mayelana. Ukuphela kwendlela esingadlulela ngayo ekuhlanganisweni kangcono njengomphakathi ukulalela abantu abaphila kuleyo mpilo nokufunda kulokho abahlangabezane nakho. Okuthunyelwe Amagama nezidingo ezikhethekile zokukhulisa izingane kuvele kuqala ku-Firefly Blog . Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/terminology-and-special-needs-parenting/

*Isexwayiso Sokuqala: Sixoxa Ngokufa* Lapho eneminyaka eyi-100 ubudala, u-Granda wami washona kabuhlungu muva nje ezungezwe izingane zakhe embhedeni wakhe ngaphandle kobuhlungu noma ukucindezeleka.

Izindaba zokuboshwa kwezandla zesokunxele ngemuva kwezingane ukuze zibaphoqe ukuthi zibhale ngezandla zabo zokudla zivamile esizukulwaneni esidala. Ngokujabulisayo, umntwana oyinxele manje ubonakala engaphansi njengophawu lokuthi kukhona okungalungile futhi njengophawu lomzimba. Umzali okhungathekile uyangitshela ngocingo: “Uthisha wengane yami […] The post Ingane Yesokunxele appeared first on Ingane Magazine. Ibhulogi yakamuva evela ku-https://www.childmag.co.za/the-left-handed-child/?utm_source=rss&utm_medium=rss&utm_campaign=the-left-handed-child

Ngisanda kweseka umngane wami wakudala ngokuhlola okukhathazayo kwengane yakhe esibhedlela. Ayefana nalawo esake sadlula kuwo endodakazini yami enesifo sokuwa esingandile futhi esinzima futhi engakwazi ukufunda. Ngazithola nginikeza isiqinisekiso; hhayi ukuthi konke kuzolunga ngezivivinyo (sasingakwazi lokho); kodwa wayezobhekana nakho, kungakhathaliseki ukuthi yini umphumela. Ezinsukwini zokuqala zokuxilongwa kwendodakazi yami, ngikhumbula ngicabanga ukuthi ngeke ngikwazi ukubhekana nokukhulisa ingane ekhubazekile. Kungaleso sikhathi lapho ngangicabanga ukuthi ukuphila kungase kunjani nokuthi kungenzeka sibhekene nani. Eqinisweni, iqiniso losuku nosuku cishe liye ladlulela kakhulu futhi linenselele kunalokho engangikucabanga. Mhlawumbe into emangalisa kakhulu, ukuthi silungile. Impilo imnandi, siyajabula. Kungaba nzima kunoma ubani ongekho emhlabeni we-SEN ukuthi acabange ukuthi impilo enokuquleka kwansuku zonke, ukuhlala esibhedlela, uhambo lwe-ambulensi yezimo eziphuthumayo, ukwehla kwengqondo, kanye nokuziphatha okuyinselele enkulu okufanele ukuphathe kungaba okujabulisayo. Kodwa ukuphila kwethu kumnandi. Kwesinye isikhathi ngiye ngizithole ngibheka eminye imindeni, imindeni engenazo ingane ekhubazekile, ethi ebusweni bayo ihlelwe 'ephelele' futhi ngizithole ngimangala ukuthi ibonakala icindezelekile kunathi, futhi akukho okujabulisayo. Ngiyazi manje ukuthi kungani; kufihlwe kokuthile labo abasemhlabeni okungewona we-SEN abangasoze bakuthole Emhlabeni wethu, sithola injabulo, injabulo, ukujabula ngisho, ezintweni abanye abebengeke baziqaphele. Ngizithola sengiya emsebenzini ngiphethe isiphethu esinyathelweni sami njengoba indodakazi yami ingazange ibanjwe isithuthwane ngalolo suku ekuseni; Ngibiza umyeni wami ngesasasa njengoba esanda kusayina 'ekhaya' okokuqala ngqa selokhu ehlulekile ukukhuluma; omunye wabanakekeli bethu abahle uyafika futhi sigigitheka ngokuthile. Izinto eziningi ebengizikhathaza ngazo azisacabangi lutho manje. Ngikhumbula ngifunda kusizindalwazi sabazali ezinsukwini zakuqala, ukuphawula kothile othi ukuba nengane ekhubazekile kwakubenza bajabule. Ngacabanga ukuthi kwakuyimbudane leyo, nakuba ngangizama ukududuza. Ngiyayithola manje. Ngizizwa nginenhlanhla yokuba sesimweni esifanayo. Nakhu lapho ngithi ngeke ngishintshe lutho. Kodwa bengingathanda. Ngangikhahlela isithuthwane ngiye onqenqemeni futhi ngiqinisekise ukuthi indodakazi yami ayiphinde ibe nokuquleka. Kodwa okunye kwakho, okunye ukuphila okuhlukile, amandla amangalisayo endodakazi yami, injabulo nomoya wokunganaki? Ukuthi ngeke ngilahle ithemba kalula nje. Noma umuntu engenze ngaba nguye. Okuthunyelwe Engizozitshela kona okwangaphambili kuvele kuqala ku-Firefly Blog . Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/what-id-tell-my-past-self/

UJenson oneminyaka eyishumi ubudala, uthanda amabhasi. Usuku alupheli ngaphandle kokuthi ibhasi lakhe lithathekile ngandlela thize. Uzobuka amabhasi ngenjabulo ku-YouTube amahora amaningi. Unamashadi okuklomelisa anezihloko zebhasi esikoleni nasekhaya. Othisha bakhe basebenzisa izinombolo zamabhasi ukumfundisa izibalo, kanye nokukhangisa kwamabhasi 'okunobuciko' ukuze bamsize ekufundeni kwakhe. Ngempelasonto, sivame ukutholakala emigwaqweni yethu yasendaweni ephakeme, ukubona amabhasi, ukugibela amabhasi, sihlezi ezitobhini futhi sikhuluma nabashayeli bamabhasi. Nakuba umfowabo omncane kanye nobaba bechitha zonke izimpela sonto bedlala ibhola likanobhutshuzwayo futhi begibele amabhayisikili, yena kanye nami sichitha izimpelasonto eziningi emabhasini, noma eduze kwawo. Ngempelasonto edlule ayizange ihluke. Mina noJenson sasilenga endaweni ayeyithanda kakhulu emgwaqweni omkhulu, sinquma ukuthi siqhubeke sibukele noma sithathe uhambo. Intandokazi entsha kaJenson, inombolo engu-23, yasukuma, futhi umshayeli webhasi wehla ebhasini ukuze athathe ikhefu elincane. Wayengomunye walabo bantu okuthi njengomzali, uzizwe ukhululekile ngaso leso sikhathi, wahlanganyela noJenson futhi waxoxa ngamabhasi. Wabe esememela uJenson ebhasini lakhe elingenalutho ukuze 'ahlole izinsimbi' uJenson azibophezele kuzo ngenjabulo, kulandele ukuhlala ekhumbini yomshayeli. UJenson wayejabule, njengami. Usuku kwakungeSonto mhla ziyi-13 kuLwezi, futhi ngalolo suku ekuseni, umphakathi wendawo wawuhlele umbukiso weSonto Lokukhunjulwa emgwaqeni omkhulu, owawuhlanganisa nokuthula kwemizuzu emibili. Umshayeli wangibuza ukuthi sasisanda kuhlanganyela, ngaphendula ngokuthi cha. Ngachaza ukuthi uJenson ukuthola kunzima ukuthula; akakwazi ukucubungula umyalelo, futhi akaqondi ubunzima besenzakalo. Ngakho-ke ngivame ukugwema izikhathi ezinjalo, ngenxa yokwesaba ukudonsa ukunaka okungalungile ngenxa yokuziphatha kwakhe okungafanele. Umshayeli webhasi wabe esengimangaza ngempela, ngokubukeka kwakhe okungaqondakali okwavela ebusweni bakhe, namazwi akhe alandela. Ebabaza “Ini!! Kungani kungenjalo?!". Ngamangala, futhi ngazama ukuphinda lokho engangikushilo ngaphambili ukuze ngithethelele izizathu zami. Waphikelela: “Lokhu kuyahlanya!”. Kumelwe ngichaze kuleli phuzu, ukuthi naphezu kwamazwi akhe ahlabayo naqondile, umngane wethu omusha ngokusobala wayeyindoda emnene, ekhathalelayo. Nakuba ayengibekela inselele, izinhloso zakhe zafakazelwa ngokusobala inkolelo yokulingana nokungakhethi, njengoba kwaboniswa yilokho okwaphuma emlonyeni wakhe kamuva. “Ubani onendaba nokuthi umhlaba ucabangani? Umhlaba udinga ukufunda kabanzi mayelana nokwehluka. Ubani onendaba uma engathuli nje ngoba bekutshela ukuthi thula? Umhlaba udinga ukuqonda futhi wamukele umehluko. Umhlaba udinga ukuqonda okwengeziwe, futhi badinga abantu abafana nawe noJenson ukuze bababonise”. Ngizwe sengathi ngitshelwa uthisha omkhulu, ngavele ngaxakwa ukuthi ngizothini. Ngavuma ngobuqotho ukuthi ngavumelana naye, kodwa ngisenenkinga yokuba nesibindi sokusebenzisa lokhu, ngenxa yezibonelo eziningi zokunaka okungekuhle esiye sakudonsa ezikhathini ezidlule ezimweni ezifanayo. Kuleli qophelo, bekuyoba lula ukukhombisa futhi siphethe ngokuthi akekho oqonda usuku empilweni yomzali onjengami, ngaphandle uma uhamba kulezo zicathulo. Nokho, bekunokuthile mayelana nebhasi lami elisha engihamba nalo namuhla, okungenze ngama futhi ngacabanga. Enganelisekile ngezimpendulo zami, umshayeli webhasi waqhubeka nokunginikeza inkulumo eqinile; ukungikhuthaza ukuthi ngingabi nandaba ngabanye abantu. Iphimbo lakhe lalinomusa, kodwa liqinile, linomuzwa nozwelo. Ngemva kwemizuzu engaba mihlanu, ikhefu lakhe lase liphelile, futhi into elandelayo engazi ukuthi wayesingenisa ebhasini ukuze sihlale ezihlalweni eziseduze nendawo engaphambili. Waqhumisa injini, wamemeza wathi “Asihambe siyogibela”, sabe sesihamba! Ngaphambi kokuthi ngithole ithuba lokuphikisa, besithatha uhambo lwemizuzu engama-20 ukuya nokubuya ukuya e-terminus nokubuya. Njengoba ngangingazazi izenzo ezinjalo zomusa ezingahleliwe, ngamangala kodwa ngasheshe ngakhululeka ohambweni lwethu lwesikhashana, nomshayeli exoxa enganakile, noJenson exoxa ephendula, okwajabulisa kakhulu abanye abagibeli. Ngathatha isikhashana ukuze ngijabulele injabulo kanye nesasasa uJenson ayenalo, futhi ngazithola sengikhulumela phezulu nangenjabulo noJenson, njengoba sasixoxa ngezimpawu zomhlaba esasidlula kuzo. Bengilalela ngamabomu iseluleko somshayeli webhasi mayelana nokulahla ukulahlwa emibonweni yabanye abantu. Kunokuba ngimthulise, futhi nezwi lami liphansi, ngenza okuphambene, futhi kwaba kuhle! Ngaqaphela ukuthi uJenson wayesabela ekuziphatheni kwami ​​okukhululekile, futhi ukukhululeka kwami ​​kwakunomthelela omuhle kakhulu ekuziphatheni kwakhe. Lapho sibuyela emgwaqweni omkhulu, saba nenye ingxoxo emnandi futhi ngafunda igama lomngane wethu omusha, futhi wangitshela kancane ngomndeni wakhe. Selokhu sahlangana izikhathi ezimbalwa no-Laslo, futhi sathatha uhambo ngenombolo 23. U-Jenson uyajabula ngokuthi unomngane omusha futhi ngiyajabula ukuthi ngiye ngathola isenzo esingahleliwe somusa esiye saholela nakanjani ekushintsheni okuhle ukuziphatha kwami ​​kanye nombono wami. Emazwini kaLaslo, “Umhlaba udinga ukuqonda okwengeziwe” kanye nokuthi “Ubani onendaba nokuthi umhlaba ucabangani?” Manje ngizama ukusebenzisa le mantra nsuku zonke, ngiyabonga Laslo! Okuthunyelwe Umshayeli webhasi, isifundo sempilo kanye nesenzo somusa esingahleliwe sivele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/a-bus-driver-a-life-lesson-and-a-random-act-of-kindness/

Iningi lamabhulogi ami liqondiswe kulabo kini abasanda kuqala uhambo lwakho nengane/izingane zakho ezinezidingo ezikhethekile. Lena ayihlukile futhi ingase ibe enye ebaluleke kakhulu, ngizizwa, kuze kube manje. Lapho ngisemncane futhi ngithola ukuthi ingane yami yayinezinkinga ezithile, ngaphatheka kabi. Akekho owayazi ukuthi izinto zizomhambela kanjani. Ngangizama ukuphila futhi ngijabulele ingane yami, kodwa zaziningi izinto okwakumelwe ngizicabangele ngempilo yayo nekusasa layo. Enye yalezo zinto, okungenye yezibaluleke kakhulu, ayizange ifike kimi….indlu yakhe. Mina nendodakazi yami besiyozuza kakhulu ukube othile ubezoba khona ekuphileni kwethu bese engitshela ukuthi yiziphi izinyathelo okufanele ngizithathele izindlu zesikhathi esizayo. Uyabona, eminyakeni engama-23 iningi lethu alicabangi ngeminyaka engama-20-30 esikhathini esizayo. Ikakhulukazi lapho sesaba futhi singazi ukuthi siphila kanjani esikhathini samanje. Ngitshele indodakazi yami ukuthi nginobunzima bokuqhamuka nebhulogi yale nyanga, yathi angibhale “ngomuzi wethu”. Ukhuluma ngekhaya lethu lesikhathi esizayo elingokoqobo kuye njengoba likhona manje. Yena kanye nami sobabili sikholelwa ekhaya lethu lesikhathi esizayo; kufanele nje silinde. Njengoba u-Emma ekhula, ngaqala ukuya emihlanganweni eminingi yokufundisa ukuze angisize ngizizwe ngiqiniseka ngokwengeziwe ekumenzeleni izinqumo ezinhle. Ngingumama ongayedwana futhi anginaye umuntu ongangikhipha. Ngikholwa ukuthi lezi zinto zinzima ngisho kwabashadile abaxoxayo. Lezi zingqungquthela yizona ezinginikeze lokho enginomuzwa wokuthi kuwuhlelo olungcono kakhulu lwekusasa lendodakazi yami. Lezi izindaba eziyiqiniso zabanye abazali abangisize kakhulu. Abazali bokuqala engazwa ngabo banquma ukuphuma ekhaya indodana yabo eyayihlale ihlala kuyo, futhi bathuthela ohlala nayo bayohlala nayo. Bese kuba neminye imindeni eyathenga amakhaya ukuze inikeze izingane zayo ezikhubazekile izindlu eziphephile. Baphinde bafake abahlala nabo ekhaya. Ngiyazi enye intokazi engashadile eyaqala umuzi wamadoda ayisithupha, eyodwa ingumfowabo. Imibono eminingi yayitholakala kithi ngaphandle kweqembu lasekhaya! Iqembu lasekhaya lapho ngingeke ngibe nezwi noma ngilawule ukuthi ubani ongena noma ophumayo, ohlala noma osebenza khona. Lokho akuzwakali kuphephile kimi. Ngaphambi nje kwe-COVID, ngathola imvume yokubolekwa kwempahla ehloniphekile ebingasinikeza ikhaya elihle. Wanele ukumnika indawo yakhe okungenani nabantu ahlala nabo abangu-1 -2. U-Emma uyawuthanda lo mbono. Lokhu kuyiphupho lakhe kanye nelami. Ngeshwa, njengoba sonke sazi, imakethe yezindlu ibingenzi kahle kule minyaka embalwa edlule, okumise ukuthenga kwethu ikhaya. Nginokholo, futhi angifuni lutho uNkulunkulu angafuni kithi, kodwa ngizwa lokhu kuwubizo enhliziyweni yami. Ngikholwa ukuthi lokhu kuseza. Ngifuna ukwenza isiqiniseko sokuthi u-Emma usekhaya elihle, elihlala nabantu abahle, futhi ngokunakekela okufanele lapho ngisemusha ngokwanele ukuze ngiqiniseke ngakho konke lokhu. Ngingathanda ukumkhipha futhi ngimnike impilo yakhe. Ngokusobala kuningi okwengeziwe ngale nqubo kanye nezinto eziningi okufanele uzihlelele futhi uzicabangele . Le bhulogi ngeyokusiza nonke ukuthi niphaphame ukuze nibone ukuthi yiziphi izinhlelo okufanele nizenzele ingane yenu. Ikakhulukazi ukonga imali ukuze wazi ukuthi ingane/izingane zakho zinakekelwa kahle. Ukuqala lezi zinto ngenkathi ingane/izingane zakho zisencane kungenza umehluko omkhulu phakathi neminyaka. Uma ulandela uhlelo oluqinile lokonga lwalezi zidingo ezithile, ngingathembisa ukuthi imali izokwengeza ngokushesha okukhulu. Ukuqala ingane yakho isencane kuzokwenza umehluko omkhulu empilweni yayo, futhi kukwehlisele isisindo. Leso sisindo singaba nzima kakhulu ngezinye izikhathi. Kungumsebenzi wethu njengabazali nabanakekeli babanye abantu abangakwazi ukuzinakekela ukuze baqinisekise ukuthi bayanakekelwa. Kimi nendodakazi yami, ngibeka uNkulunkulu kuqala ngoba ngiyazi ukuthi uzosibhekelela yonke into. Unakho njalo futhi Uzokwenza njalo. Ngithembela esikhathini sikaNkulunkulu futhi ngijabule kakhulu ukubona ukuthi ikusasa lisiphatheleni. Ngethemba ukuthi lokhu kuyanisiza ukuze nikwazi ukuhlela ikusasa elinikeza ukuthula ezinhliziyweni zenu. Okuthunyelwe Kuyo Yonke Iminyaka: Indawo Yengane Yakho Enezidingo Ezikhethekile kuvele kuqala ku-Firefly Blog . Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/across-the-years-housing-for-your-child-with-special-needs/

Eminyakeni yokuqala yohambo lwami lokukhulisa izidingo ezikhethekile ngezwa sengathi izwi lami lithulisiwe nokuthi ukwazi ingane yami kangcono kwathatha isihlalo esingemuva kochwepheshe abamemezela ukuthi bazi ngaphezu kwami. Kwangithatha iminyaka eminingi ukubona ukuthi izwi lami lengane yami lalinamandla kakhulu, lizwakala kakhulu futhi lowo owayenguchwepheshe empilweni yakhe kanye nezidingo zakhe. Kwadingeka abelaphi bangitshele ukuthi kwakudingeka ngivumele indodana yami ukuthi ikhale ngokwelashwa ngisho noma ibhikisha ngenxa yobuhlungu noma ukungakhululeki; odokotela bebhala ukwehluleka ukuchuma nakuba edle ukudla okungaguquguquki okunama-kilojoule amaningi kunomuntu omdala ngosuku olulodwa futhi wamane waba nomonakalo omkhulu wezinzwa kangangokuthi ugawula umzimba ngendlela ehlukile; udokotela wamathambo engiyala ukuba ngenze indodana yami “iqine” uma ingasafuni ukuba sesudi yezokwelashwa eqinile eyayiyimpintsha kakhulu; futhi ngisho nochwepheshe ozibiza ngesihlalo semoto engitshela ukuthi angikwazanga ukuyisa ingane yami ibheke phambili esihlalweni semoto enezinyanga eziyi-11 ubudala ukuze ngiyivimbele ukuthi ingajikijeli futhi ilangazelele ngenxa yokuphazamiseka okukhulu kwezinzwa ngokubheka emuva. Futhi-ke ngabona ukuthi lapho ekugcineni ngithola umgogodla wami wabazali (okwenzeka nakanjani kubo bonke abazali abanezidingo ezikhethekile ngesikhathi esithile), wenza "ochwepheshe" bathukuthele. Yileyo ncazelo yomzali enezidingo ezikhethekile engikwaziyo ukuvikela ingane yami enezidingo ezikhethekile futhi ngiyinakekele kangcono kunanoma iyiphi incwadi noma umhlinzeki owake wayifunda esikoleni. Ungalokotha kanjani uphikisana nezeluleko zochwepheshe futhi ungalandeli “isayensi”. Abuye akhonkothe. Ngacelwa ukuba ngibe yisikhulumi sezivakashi ngomzuzu wokugcina woHlelo Lokuphepha Kwezimoto olwenziwa i-Riley Hospital for Children, Indiana University School of Medicine. Indima yami bekuwukuxoxa ngamamodeli ezihlalo zemoto, izici zazo zokuphepha, nokuhambisana kwezingane ezinezidingo ezikhethekile ngolwazi lwami nolwazi lwami njengelungu lemishini yezokwelapha ehlala isikhathi eside kanye nomgqugquzeli womkhiqizo. Izilaleli kwakungodokotela, abahlengikazi kanye nezakhamuzi zezokwelapha kuphela. Nemihlathi ivele yashaya phansi uma ngiphambana nemithetho yezihlalo zemoto. Kulandelwa ukugqolozela kohlanya. Bekulindeleke kakhulu uma wethula okuqukethwe okungajwayelekile futhi uphonsela inselelo umkhakha wezokwelapha. Kodwa, ngazibamba. Ukubanikeza izibonelo zangempela zomhlaba zokuthi umhlaba wethu kufanele uguqulwe kanjani ngengane enezidingo ezikhethekile. Nokuthi akusoze kwaba usayizi owodwa olingana konke, noma ukuthi sonke singalandela imihlahlandlela yezempilo efanayo. Lezi yizingxoxo ezibalulekile okufanele zibe nazo ngoba akuzona zonke izidingo ezikhethekile izingane ezingezona izimo zokusikisela -- ngisho nezidingo zemishini eguquguqukayo. Okuphephile kwengane eyodwa, kungase kube imbangela yokulimala noma ukufa kwenye. Isihloko sokwazi kangcono ingane yakho akuxoxwa ngaso kakhulu, ikakhulukazi uma lokho kusho ukuphambana nochwepheshe, izeluleko kanye nezindinganiso. Izingane ezinezidingo ezikhethekile azilingani zonke. Ngayinye engibusiswe ukuyazi ihlukile ngayinye noma ngabe inesifo esifanayo noma ukukhubazeka. Umuntu angase adinge ukuhlala emotweni ukuze agcine ukugcwala kwawo komoyampilo kungaphezu kuka-90. Umuntu angase adinge ukuhlala aqonde ukuze angaminyanisi uketshezi, kungase kudingeke ukuthi alale phansi ngokuphelele ngemva kokuhlinzwa inqulu kabili nomgogodla. Umuntu angase adinge ukuthi abheke phambili ngaphambi kweminyaka enconywayo ukuze akwazi ukubhekana nokuphazamiseka kwezinzwa okumbangela ukuba ahlanze futhi alangazelele ngaphansi kokucindezelwa. Umjaho wasekhaya omkhulu engawushaya ngalolo suku wawukwenza ukuthi lezo zilaleli zicabange nje engikushoyo. Kwakungadingeki ukuba bavumelane, kodwa ngethemba ukuthi ngatshala imbewu abazali ekugcineni abayazi kangcono ingane yabo futhi ngezinye izikhathi lokho kuyosho ukuphambana nezindinganiso noma iseluleko esingokwesiko. Ithemba lami lihamba nesikhathi njengoba abaningi bethu bezwa amazwi ethu ohambweni kuzoncipha ubuso obuthukuthele kanye nokumamatheka okuziqhenyayo okusisekela ngomsebenzi owenziwe kahle. Okuthunyelwe I-Fuming Mad: Ngoba Izidingo Zakho Ezikhethekile Ingane Iza Kuqala ivele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/fuming-mad-because-your-special-needs-child-comes-first/

Hhawu. Bekungenzeki kaningi eminyakeni yamuva (isihlalo esinamasondo/isilinda sikaoksijini/umshini wokumunca uhlobo lokuwunikeza) nokho bekuyinkulumo esayizwa kakhulu esemncane. Kufanele ubukeke kanjani ngempela nesifo sokuwa esisongela ukuphila engingase ngikubuze? Ngisho namanje izithombe zingakhohlisa ngempela. Isithombe esikule posi ngesidala, kodwa siyintandokazi - wayenjalo, eziqhenya ngokukwazi ukuhlala engasekelwa eduze kukaBaba wakhe. Ukumbheka lapha, ufana nanoma iyiphi enye ingane ephile kahle ejabule. Eqinisweni, lokhu, njengazo zonke izithombe, isifinyezo sesikhathi - isikhashana lapho ethole khona ibhalansi yakhe kahle. Kwathatha imizuzwana nje, awusiboni isandla sikaBaba wakhe sibekwe ngokucophelela ngemuva kwakhe silungele ukumbamba njengoba elahlekelwa yileyo bhalansi, ukuquleka kwathatha ngokushesha futhi walala kakhulu ntambama engekho, evikelwe inja yomngane wethu emangalisayo (eyayibamba. kanye nathi akazange ashiye ohlangothini lwakhe). Bese kuba nokunye okweqisayo . Ababonayo mfana wami bahluleke ukubona umfana ohlakaniphile, onezihlathi abakwazi ukuxhumana, uyidimoni kuma-boardgames, uthanda ukubhukuda kanye ne-LEGO ... esikhundleni sokugxila ezindabeni. Babona ingane ekhubazekile, futhi ikhumbula konke enakho nakwaziyo ukukwenza. Kuwukulahlekelwa kwabo ngokuphelele njengoba engeke abanikeze isikhathi sosuku... unomkhuba omubi kancane wokukhahlela abantu abakhuluma phezu kwakhe ezinsimini bese bebukeka bemsulwa ngangokunokwenzeka. Ngeke ngithi ngiyamsola. Imicabango mayelana namakhono ayo iyinhlupho indodana yami ebhekana nayo cishe nsuku zonke kodwa ayisoze yabhekana nayo kulabo abayithandayo. Into nje ezomkhawulela wumcabango wakhe. U-Anti wakhe amthanda kakhulu wayemteketisa ngokuthi u-Spaceman (uthanda izindaba zesikhala, amarokhethi nokundiza phakathi kwezinkanyezi), othisha bakhe bayaqhubeka nokumcindezela ukuba afeze izinto azithola zinzima njengamanje futhi sizoqhubeka nokumjabulisa. Enye yezinto ezimbi kakhulu umuntu angayenza komunye umuntu ukuyisula ngaphambi kokuba athole nethuba lokuzama, eqinile noma ngenye indlela. Izingane ezikhubazekile zinamandla amakhulu njengabo bonke abanye, zidinga nje umuntu okholelwa kuzo futhi ozozinika ukuzethemba zokwelula amaphiko azo futhi zifunde ukundiza. Okuthunyelwe okuthi 'Kodwa ubukeka...ejwayelekile...' namanye amazwana angasizi avele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/but-he-looks-so-normal-and-other-unhelpful-comments/

Selaliswe kaningi ezibhedlela nendodakazi yethu eneminyaka eyisishiyagalombili, kwatholakala ukuthi inesifo sokuwa inezinyanga eziyi-18. Unesifo sokuwa esiyinkimbinkimbi okunzima kakhulu ukuselapha. Ukuhlala okunye bekusabisa, okunye kuyahlekisa (ngizochaza) kanti okunye sekucishe kushayeke emshinini. Ukuhlala kwethu okokuqala kwaba phakathi nokuxilongwa kwakhe. Njengoba ikamelo lethu elincane laligcwele abantu, sashaywa uvalo. Kuqinisekiswe ukuthi uyaquleka. Kwayalelwa izivivinyo zemibandela eyahlukene (namanje angazi ukuthi zaziyini zonke) kodwa ngokushesha sase sibhekana neqiniso lokuthi mancane amathuba okuba impilo ilandele indlela esasiyicabanga. Lezo zindawo zokuhlala bekungaba ezokuqala kweziningi kithi Safika nge-ambulensi kwabanye abalandelayo, nokuquleka isikhathi eside. Okunye ukuhlala kwakungezophenyo ukuze kubonakale ukuthi wayezohlinzwa yini, okunye kwakungowokuhlinzwa uqobo (uneVagus Nerve Stimulator). Ezinye zamuva nje kube ezesithuthwane esingaxhunywanga. Muva nje siphuthunyiswe esibhedlela ngenxa yokuquleka isikhathi eside. Ngesikhathi sifika egunjini labathembele kakhulu, wayesevele walala ngokushesha, wagxuma waphuma embhedeni futhi esayina 'ekhaya'. Umhlengikazi wangitshela ukuthi uyaqala ngqa ukungenisa umuntu ewodini wabe esebakhulula, ngesikhathi evala ikhefu lomunye umuntu (kwabe kuyindida leyo). Ngakho, amanye amathiphu ngokuhlala esibhedlela. Yilokhu okungisebenzelayo: Ithi ngiyabonga futhi ube muhle kubantu (kulungile ukucasulwa ochwepheshe ngaphakathi, bangabantu, futhi ngenze ingxenye yami efanele yokukhipha amehlo lapho izinto zishiwo kancane kunokuzwela). Thola inethiwekhi yakho yokwesekwa, uma unenhlanhla yokuba nabangane kanye / noma umndeni okunikeza usizo, yisho yebo. Batshele ukuthi yini oyidingayo (ngivame ukuyofuna ukudla). Ungesabi ukubuza abahlengikazi imibuzo; likhona igumbi lokudlala? kukhona lapho engingenza khona itiye? Isikhathi esiningi abahlengikazi basuke bematasa kakhulu ukuthi bangakwazi ukukuchazela uma ufika. Thola ukunethezeka kwasekhaya - itiye lakho olithandayo, ushokoledi, ingubo yokulala, noma yini ekwenza uzizwe ungcono. Ama-headphone alungele ama-podcast uma ingane yakho ilele kakhulu. Thatha izingubo ezithokomele - ngiyofuna ama-leggings noma ama-joggers futhi ngivame ukuletha ama-slippers ukuze ngigxumeke phakathi. Nakuba ukuhlala kwethu kuye kwasabisa ngezinye izikhathi, abaningi babo ngiye ngazizwa ngiduduzekile. Ngizophetha ngokwabelana ngesenzo esisodwa somusa esiyingqayizivele engasithola ngenkathi sisevikini eledlule ubusuku obune. Umhlengikazi wangizwa ocingweni kumyeni wami ngimcela ukuba athumele ushokoledi ongu-85%. Ngemva nje kocingo wavela nama-mini bar amabili, u-75% no-85% ethi “Angikwazanga ukubamba uma ubufuna u-75% noma u-85%”, wanginikeza wona womabili. Ngangingase ngikhale. Lowo shokoledi wawunambitheka kamnandi. Okuthunyelwe Ukulaliswa esibhedlela kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/hospital-stays/

Ngithole itimu eyodwa evamile ohambweni oluhle lweminyaka engama-30 engibe nalo kuze kube manje nendodakazi yami, nokuthi zonke izeluleko ezinhle kakhulu engake ngazithola, zazivela kwabanye abazali abanezingane ezinezidingo ezikhethekile. Baningi kakhulu abanye abangase bazame ukusiza, futhi ngikholwa ukuthi inhloso yabo inenhloso enhle; nokho, ngaphandle kokuhamba le ndlela akunakwenzeka ukuthi abanye bazi ngokweqiniso ububanzi balokho esikuphilayo. Hhayi nje izilingo, izimpi, namanxeba, kodwa okubaluleke kakhulu ukunqoba, injabulo, ubudlelwano obumangalisayo, nothando olungenamibandela. Ngiyethemba ukuthi le bhulogi izosiza abanye benu bazali abasha nabanakekeli abasanda kuqala kulolu hambo. Ekuqaleni kohambo lwami, ngangivame ukuncika futhi ngiphile ngokweseluleko sodokotela, othisha, abangane nezihlobo. Nakuba iseluleko sabo ngezinye izikhathi sasisihle, futhi siwusizo, ngangihlale nginomuzwa wokuthi okuthile ngakho kwakungaphelele. Lapho indodakazi yami iqala isikole, ikilasi lomdanso, nama-Special Olympics, ngahlangana nabazali abaningi! Sasiba-5 esasihlangana masonto onke ukuze siphuze ikhofi ngesikhathi izingane zethu zisekilasini lokudansa. Kuma-Olympics Akhethekile, bekunesikhathi esiningi sengxoxo ngenkathi silindile futhi sibuka imidlalo. Kunohlobo oluhlukile lokuxhumana esinalo. Kuwukuqonda okungokwemvelo kanye nozwelo. Ziningi izindawo zokuthola izeluleko, futhi ngiphakamisa ukuthi ngizisebenzise zonke, ngiyazi ukuthi ngizenzile. Ngesikhathi esifanayo, ngangifuna labo abazi ngempela ukuthi kunjani ukuba sezicathulweni zami. Othisha besikole abangcono kakhulu indodakazi yami eyayinabo kwakuyilabo ababenezingane zabo ezinezidingo ezikhethekile. Bonke othisha bakhe babebahle, ngibabonga bonke; nokho, kwakukhona nje okuhlukile, nokukhululeka, kothisha ababesohambweni olufanayo. Ziningi izeluleko engazithola kwabanye abazali ebengingeke ngizazi ukube bebengekho. Le bhulogi akufanele ikhulume ngezeluleko ezithile, ngoba kunolwazi oluningi nosizo sonke esiludingayo, kodwa ukwazisa abanye ukuthi abanye abazali bangaba, futhi ngokuvamile, bangabaqondisi bethu abangcono kakhulu. Sonke singasebenzisa usizo ukuze sinakekele izingane zethu ezinezidingo ezikhethekile. Abanye bethu abazali abashadile, kanti abanye banezinselele ezidinga usizo. Ngiphakamisa ngokuqinile ukuthi ujwayelane nabanye abazali kulolu hambo. Ezinye zazo zizosala futhi ezinye zizohamba, kodwa zonke zingathinta inhliziyo yakho futhi zisuse isisindo emahlombe akho. Abanye babanye abazali bangase babe abangane bakho abakhulu kanye nesifuba sakho. Ngiyaqonda ukuthi “Kuthatha isizwe” kusho ukuthini. Impilo enezidingo zethu ezikhethekile izingane ithatha isizwe. UNkulunkulu anibusise nonke bazali abahle nabanakekeli. Ngiyazi ukuthi lolu hambo lungakhandla, kodwa futhi lungaba luhle futhi lujabulise. Lapho uba nosizo olwengeziwe nesiqondiso ungajabulela kakhulu izehlakalo ezithinta inhliziyo. Ezinye zezeluleko ezilula zingenza umehluko omkhulu ekuphileni kwezingane zethu. Lesi sithombe ngesendodakazi yami nengubo yayo enesisindo. Omunye umzali wancoma futhi wenza le ngubo. Kwenza umehluko omkhulu ekuphileni kwakhe lapho imizwa yakhe iphakama, noma ezizwa ekhathazekile. Okuthunyelwe Iseluleko Esingcono Kakhulu Ngenkathi Ukhulisa Ingane Ngezidingo Ezikhethekile ivele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/the-best-advice-while-raising-a-child-with-special-needs/

Umusho abazali bezingane ezikhubazekile abawuzwa njalo, kanye nokuthi “Ngicabanga ukuthi uyamangalisa”, “Yeka ukuthi uwumndeni omuhle kangakanani”, namagama asho lokho. Naphezu kokuba njalo umamukeli wezincomo ezinjalo, ngisazithola ngiswele ukwazi ukuthi ngenzenjani noma ngizophendula ngithini. Ngiphendula ngesizotha, “Ngiyabonga, kodwa cha, akunjalo!”, kuyilapho ngifuna ukusho ukuthi “Ubungenza okufanayo ukube ubuyimi”. Ngizithola sengifuna ukubajabulisa ngalokho abacabanga ukuthi ngiyakwenza okugunyaza ukuhlonishwa okunjalo. Ngokuyisisekelo, yini engiyenzayo emangalisa kangaka, ngaphandle kokukhulisa ingane engiyithandayo? Ngenza konke okusemandleni ami ukuqinisekisa ukuthi uphephile, uphilile, futhi unakekelwe, okufana nalokho wonke umzali engibaziyo abakwenzayo, akunjalo? Ngicabanga ukuthi umehluko ukuthi kufanele ngenze inqwaba yomsebenzi owengeziwe kulolu hambo, futhi indlela igcwele izithiyo Mhlawumbe babona ukukhathala ebusweni bami, noma bangibone nginqaba ngokuphindaphindiwe izimemo zokuzijabulisa. Kumnandi ukuzwa izincomo kubantu ababonayo nababuka ubunzima engibhekene nabo, kodwa kuyangicika futhi kungiphathe kabi ukuthi mhlawumbe badonswa yizingqinamba engibhekana nazo hhayi injabulo yohambo. Ngakho-ke lapha ngiyazibuza ukuthi kungani ngikuthola kunzima futhi kunzima ukunconywa ngokukhulisa kwami ​​​​umzali. Ngicabanga ukuthi lokhu ngokwengxenye kuncike ekubeni necala elingapheli, elingapheli engiba nalo, elingenza ngizizwe ngingakufanelekeli ukutuswa njengomzali. Kimina, ukugxila kusala kuzo zonke izinto engingazenzanga njengomnakekeli oyinhloko; zonke izinto okufanele ngabe ngizenza kakhulu; zonke izinto engizizwa ngihlulekile kuzo. Yisona sikhathi engisichitha ngedwa nenye ingane yami ngoba idinga ngimbonise ukuthi nginothando olulinganayo nayo. Yizindlela zokwelapha noma ukunakekelwa okwengeziwe aphuthelwa kukho ngoba ngiphelelwe yisikhathi noma amandla. Imshiya ku-iPad yakhe isikhathi eside kunaleso ebengifanele ukuze ngikwazi ukuthola imisebenzi nemisebenzi yasekhaya. Kuyimpi yansuku zonke nemizwa yokuthi 'ngingamenzela-ngcono', nokuthi 'ngabe-ngabe-ngangenze-lokhu-ngokuhlukile'. Uma umuntu engincoma ngendlela engiyinhle ngayo ngento engiyenzela indodana yami, lokhu kubuye kubonakale kugxilisa ingqondo yami ngokungenasizo ekwehlukeni enakho kanye nokuba ngokoqobo kwesimo. Kuyisikhumbuzo sokuthi ngiphila impilo ehluke kakhulu kwabanye abantu, futhi kungikhumbuza ubunzima besimo sami kanye nobubi besimo somntanami. Ngaphambili ngangizizwa nginenjongo ekuphileni kwami ​​emsebenzini, kodwa ngawuyeka umsebenzi wami ngemva nje kokuzalwa kwendodana yami. Manje ngidinga ukuzwa ngenza umehluko futhi ngenza inhloso kwenye indawo, ngakho-ke ngokugxila ekwenzeni ushintsho nokuba nomthelela omuhle kunginika lokhu kulandisa kwempilo. Kimina, ngigcine ngigqamile, ngimela imindeni efana neyami, ngimele abazali abangakwazi ukuzimela, futhi ngenza izinsiza ezintsha zokulwa nokuhlinzekwa okuncane okukhona. Lokhu akuwona wonke umuntu, futhi angifuni ukudunyiswa ngalokhu; kuyisenzo somuntu siqu nesobugovu ngandlela thize esingisiza ngembule amadimoni ami. Ngibonga kakhulu ngokutuswa enginikezwe kona, kodwa ngicela wazi, ngingomunye umzali owenza omunye umsebenzi onzima, futhi yebo, nawe ungenza okufanayo, futhi njengami, ubuzokwenza ngokuzinikela nothando olungenamibandela. . Okuthunyelwe Lapho abantu bethi “Angazi ukuthi ukwenza kanjani” kuvele kuqala ku-Firefly Blog . Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/when-people-say-i-dont-know-how-you-do-it/

Awufisi yini ngezinye izikhathi kube khona Umtapo Wezidingo Ezikhethekile? Futhi angikhulumi ngeyodwa nje egcwele izincwadi, kodwa umtapo wolwazi walabo abadlula kulokho oyikho esikhathini esithile. Kokubili isigaba sensiza nesesekelo salokho obukudinga ngaleso sikhathi. Kukhona ompompi abaningi abanezidingo ezikhethekile zokukhulisa izingane. Kunesigaba sosizi; besaphila nalapho ingane isidlulile. Kunenjabulo “yama-inchstones” kanye nempumelelo encane engaba yinto encane ezweni langaphandle. Kunesigaba esithi 'Ngididekile ngemishini yezokwelapha ehlala isikhathi eside'. Isigaba sezomthetho sokuthi kufanele ngilwe nenqwaba yokuphika. Isigaba sokufunda ukuthi ungaba kanjani wedwa futhi ungenaye umngane ngo-4am ongamshayela lapho ingane yakho isanda kuba nokuquleka kwesihlanu ebusuku futhi uyesaba. Indawo engaphakathi kwelabhulali enamatafula ayindilinga, nezihlalo ezemukelekayo neziduduzayo kangangoba bekuzwakala njengokugonana ngaleso sikhathi. . Indawo lapho ungakhiphi nje izincwadi eshalofini kodwa nihlezi ndawonye ngokweseka kwangempela kanye nobudlelwane. Mhlawumbe nokuhlala nje uthule ngoba amagama anzima kakhulu ukuwasho, kodwa ngokuqondana okungakhulumeki. Lapho ngesikhathi esifanayo kungadingeki uthule futhi uhlebe futhi uvunyelwe ukuvumela umphefumulo wakho unanele ukukhala kwempi okukhulu kakhulu nobuhlungu benhliziyo. Lapho ukuthuka nokuklabalasa kwakungeyona into engafanele futhi ukuveza ubuhlungu bakho kwakungadingeki ukuba kucindezelwe. Lapho kungazange kukhishwe isahlulelo nganoma yisiphi imizwa oyibonisile. Umtapo wolwazi onikeze ikhofi elingapheli lamahhala ngenxa yokuthi ukhathele kangangokuthi wonke amagama akunoma iyiphi incwadi afiphalisiwe ngenxa yokuntuleka kokulala. Mhlawumbe ngisho nokudla okuncane egameni lalowo owake washunyayelwa kodwa “ukuzinakekela” okunzima. Umtapo wolwazi othi leso yisigaba sami futhi labo ngabantu bami abagxile kule ngxenye yezidingo ezikhethekile zokukhulisa izingane kanye nami. Lapho ungasusa khona imibono komunye nomunye ngaphandle kokugodla ukuhlaselwa noma ukulinyazwa ngemicabango nemizwa yakho. Lapho zingekho khona izimali ezikhokhwayo zebhuku ezidlulelwe yisikhathi noma izinhlawulo zokudinga ukunamathela esisetshenziswa isikhathi eside njengoba ubusidinga. Bheka amakhadi into yesikhathi esedlule lapho sonke sasisebenza khona lapho ngifika ohlelweni lokuhlonipha. Lapho kungekho muntu ongakusola khona uma wephuzile, noma ube nokuzibophezela kwangaphambili obekuphoqa kakhulu. Osolwazi bazoba abazali abanezidingo ezikhethekile manje eminyakeni yabo emihle egcwele ukuqonda, ububele, umusa nozwelo olungapheli kubazali abasebasha abasanda kungena ohambweni. Singageza ngolwazi lwabo, sibabuze ukuthi iyiphi indlela okufanele bahambe ngayo, nokuthi yini okufanele siyigweme. Indawo yethu ephephile yokucwaninga nokubuzana imibuzo kude kude namehlo enqubekelaphambili nabahlinzeki. Ukwazi ukuthi sizohlanganisa amakhanda ethu ngisho noma kuthatha amahora ukuthola isisombululo. Indawo lapho kwavele kwaqondwa ukuthi umama nobaba bazazi kangcono izingane zabo. Umtapo wolwazi ubuzovulwa amahora angu-24 ngosuku, ngakho uma unenkinga yaphakathi kwamabili ungase uthole ingxenye oyidingayo. Umsebenzi womtapo wolwazi uzohlangana nawe emnyango ukuze akuqinisekise ukuthi ungathola indlela yakho kalula. Uyobingelelwa ngobubele futhi umsebenzi wasemtapweni wolwazi uzocela ukukuthathela noma yini oyidingayo. Iyiphi ingxenye yelabhulali ongaya kuyo kuqala? Ukuphi ohambweni? Iyiphi incwadi odinga kakhulu ukuyithola? The post Ukuphupha Ngomtapo Wezincwadi Wezidingo Ezikhethekile appeared first on Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/dreaming-of-a-special-needs-library/

Ngizothembeka kakhulu kulokhu okuthunyelwe, ngomusa thatha lokhu njengesixwayiso kanye nesitatimende sokuzihlangula. Ngihlose ukuvuma ukungazinaki izinto eziningi iziqondiso zabazali ezisitshela ukuthi kufanele sizenze, cha. Futhi ngaleyo ndaba, ukwenza okuningi kwalokho okunqatshelwe. Njengomama omusha onomntwana oyinkimbinkimbi ngokwezokwelapha nganginovalo lokuthi ngangingakwazi ukwenza umsebenzi engangizowenza. Khumbula Incwadi Ebomvu enikezwe abazali abasha? Leyo ekhombisa ukuthi izingane zakho zithuthuka ngezigaba ezibalulekile zokukhula? Yebo. Safaka elethu eshalofini futhi sakuziba (iseluleko esihle kakhulu sesivakashi sezempilo esake sanikezwa ukuthi - ngokushesha nje lapho ukuxilongwa kwe-Dude kungena, wathi angikubeke lapho ngingakuboni khona). Besivele sazi ukuthi ulwela impilo yakhe, izigaba zokuthuthuka bekungezona ezihamba phambili. Ngiphinde ngayithola phakathi nesonto elingaphambi kukaKhisimusi...iminyaka eyishumi ngemva kokuba iqale ukuthunyelwa kulelo khalori isenamandla okulimaza, ngakho yabuyela kuyo (ngaphansi kwenqwaba yezinto ezingeke zidingeke IMINYAKA) . Isikhathi sokulala singesinye salezo zihloko okuvunyelwana ngazo ochwepheshe bokukhulisa izingane - isikhathi sokulala ngaphambi kwesikhathi, isimiso sibalulekile. Erm, hhayi kulo muzi abekho. Ukuquleka, imithi eminingi, izinguquko ezivamile zokulala/izingubo (ikakhulukazi eminyakeni yokuqala ngaphambi kokuba izinkinga ze-gastro/reflux zilawulwe kangcono) kwakusho ukuthi isikhathi sokulala sasiphazanyiswa/siphazamisekile. Ukuyibeka ngesizotha. Manje, sihamba nalokho umfana wethu akudingayo - unendlela yakhe yokulala, kungase kusho ukuthi ngezinye izikhathi ebusuku akalali kuze kube ihora leshumi ebusuku kodwa abanye usuke elele ubuthongo ngo-7pm. Safunda kudala ukuthi angajuluki, uma umsebenzi wakhe wokudlikiza uphezulu udinga ukulala. Kwezinye izinsuku, akakwenzi. Kanti ngendaba yokulala...silale ngokuhlanganyela, singalali ebusuku elele phezu kwesikhwama sikabhontshisi, elala ngamashifu ama-3hr omunye ebuka i-seizure-watch, elala kosofa imibhede, ezihlalweni zasesibhedlela.. 3hrs silale sonke edining room njengoba bekuphephile kunathi siphezulu nomfana wethu ephansi. Ngenze into ebingacabangeki futhi (ziqiniseni) ngibambe ingane yami ilele igone ezingalweni zami, isencane ngamncelisa ukuthi ilale lapho iqhanyelwe, lapho ukuquleka sekumcindezele waze wangathi akaduduzeki. ngigeze ngamanzi afudumele phakathi nobusuku nje amdedele akhululeke njengoba amanzi afudumele esebenza umlingo wawo. Ngifisa sengathi ngesikhathi umfana wami exilongwa okokuqala ngazi engikwaziyo manje. Ukuthi KULUNGILE ukwenza izinto ngendlela yakho. Ukuthi izingane zezokwelapha zinokwanele ukuqhubeka nokukhathalela ukulandela okushiwo 'ochwepheshe'. Abazali babo nabo benza kanjalo. Futhi kuhle. Ngo-11, i-Dude iyi-epic ngokuphelele. Futhi ngemva kweminyaka eyishumi kanye nalokhu, ngicabanga ukuthi ngingasho ngokuphepha ukuthi sikutholile lokhu. Okuthunyelwe Ukuvuma Komama wezokwelapha kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/confessions-of-a-medical-mom/

Kusukela ngelanga aqala ngalo wathi uyalizonda. Ngacabanga ukuthi usuku lokuqala lwemizwa. Kwakuwushintsho olukhulu. Wayezosheshe ajwayele futhi azinze. Kwadlula izinyanga ezimbalwa waqala ukushintsha. Ukushintsha kwemizwa, ukushintsha kokuziphatha, izinyembezi. Ngibeke phansi ukukhathala, ama-hormone, ukukhumbula abangane bakhe bakudala. Kwabe sekuqala: Ukukhononda ngesisu esibuhlungu, ikhanda elibuhlungu, ukunqaba ukugqoka, ukugula. Ngamkhuthaza ukuba acabange ukuthi ngenza into efanele. Wayefika ekhaya engitshela izinto ezibonakala zingalungile. Ngithumele i-imeyili futhi bangathembisa ukuyilungisa. Bese kuzokwenzeka okunye futhi ngizothumela i-imeyili futhi. Futhi futhi. Futhi futhi. Ama-imeyili aba imihlangano. Noma kunjalo wayengajabule. Ngaleso sikhathi wayenqaba ngisho nokuya, ezigulisa, ekhala impelasonto yonke. Mhlawumbe bekungesona isikole esimfanele? Inkinga ngokuba nengane enezidingo ezengeziwe nokho ukuthi akulula njengokukhetha esinye isikole. Ngangingakasikhethi ngisho nesikole sakhe ukuqala! Kuningi kakhulu ebekungaphezu kwamandla ami futhi konke okunye ukubekwa kwalabo abanezidingo ezengeziwe bese kuthathwe nohlu olude lokulinda futhi. Sazama ukukwenza kusebenze, mhlawumbe isikhathi eside kakhulu kunalokho ebengifanele ngibe nakho, kodwa ekugcineni kwaba sobala ukuthi isikole kwakungeyona indawo efanelekile yengane yami ene-autism. Kwathatha nje indaba yamasonto ukuthola imvume esemthethweni yokumkhipha. Ukubekwa kwakhe bekufunwa futhi kwenye ingane kungase kube indawo ebafanele ncamashi. Enganeni yami nakuba impilo yakhe yengqondo bekumele ize kuqala. Ukuhlukumezeka esikoleni kungokoqobo kakhulu futhi kuvame kakhulu kunalokho abaningi abakucabangayo, ikakhulukazi kubantu abasha abane-autistic njengendodakazi yami. Indaba yakhe ayihlukile neze ngoba uhlelo lwesikole luvame ukuguquguquka futhi lulinganiselwe. Izingane zihlanganiswa ndawonye ngokuvamile ngokusekelwe kuphela ekuxilongweni noma endaweni kanye nezindawo ezivame ukunqunywa abantu abangakaze bahlangane nengane. Kwezinye izingane lokhu kusebenza kahle kodwa kwabanye abaningi kusaqhubeka kuwumshikashika futhi ngenxa yalokho impilo yabo yengqondo iyagula. Isikole akusona sonke isikhathi esiyisilungiselelo esifanele ingane ukuze sifunde. Sidinga izinketho ezingcono zokwamukela izidingo ezibanzi futhi zifanele ingane ngayinye. Akukhona mayelana 'nokuhlanganyela enganeni eyonakele' njengoba abanye bebonakala becabanga, kodwa ukuphendula ekukhulumisaneni kwengane yakho nokulalela ngokweqiniso izidingo zayo. Kunesikhathi lapho isikole sasiyilungiselelo elifanele ingane yami kodwa izinto zashintsha futhi ukushintshela esikoleni esiphakeme kwakungaphezu kwalokho ayekwazi ukubhekana nakho. Bekungelula ukuphambana namabele futhi ngibone ukuthi isikole akuyona indawo elungele ingane yami kodwa kube yisinqumo esingcono kakhulu engasithatha. Ingane yami isafunda kakhulu…kuvele kwenzeke endaweni ehlukile manje ngoba yilokho ekudingayo. Isithombe esisodwa nesisodwa sesikole ayenaso ngesikhathi sakhe kwakufanele angitshele ukuthi ezinyangeni ezedlule. Ukube ngalalela ngaphambili. Okuthunyelwe Uma isikole singayilungele ingane yakho appeared first on Firefly Blog . Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/when-school-isnt-right-for-your-child/

Abantu abaningi bangitshele ukuthi kuzoba lula njengoba izingane zami zikhula. Babengeke baswele kangako noma bafune ngenkani futhi babeyoba ngokuzimela. Anginaso isiqiniseko sokuthi ngabe bayitholile yini ingxenye 'yokukhubazeka impilo yonke' ye-autism kodwa ukuba nentsha emibili ye-autistic nakanjani akubanga lula. Eqinisweni, cishe ngibanakekela kakhulu manje kunangesikhathi besebancane! Ukukhulisa intsha ye-autistic kuhluke ngokuphelele ekukhuliseni abane-neurotypical. Ukuzimela akuqinisekisiwe nganoma iyiphi indlela futhi amahomoni okuzulazula abangawaqondi kanye nobunzima bokuxhumana nontanga nochwepheshe abaningi abahilelekile kwengeza ingcindezi ehluke ngokuphelele kulokho yokukhulisa izingane ezincane. Isikole samabanga aphezulu siyinto ehluke kakhulu lapho izingane zami ziyingxenye yamakhulu abonwa uthisha ngamunye nsuku zonke. Usuku nosuku izingane zami kufanele zibhekane nezinguquko eziningi, izimfuno, izinto ezilindelwe, ingcindezi yomphakathi kanye nezingcindezi zesikhathi ngokusekelwa okuncane kakhulu ukuzisiza ukuthi zidlule. Bese kuba nengcindezi yokuthi uvumelane, uvumelane nabanye, ukhule. Bangase, njengendodakazi yami, bazifihle usuku lonke bese bephuka noma bancibilike ekhaya njengoba ingcindezi idedelwa. Bangase babe nomuzwa wokuthi kufanele bafihle lokho abakujabulela ngempela ngoba besaba ukugconwa abanye. Amakhono okuxhumana nabanye abantu abawathatha kalula angase adide kakhulu futhi adukise enze izinto zibe nzima noma zicasule nsuku zonke. Ukuqaphela ukuthi bahlukile kanye nomzabalazo wokwamukela ukuthi kunzima kakhulu ukuphatha ikakhulukazi phakathi neminyaka yokuthomba kanye nama-hormone aphezulu. Bese kuba khona imizimba yabo eshintshayo, ukukhula kanye nakho konke okuza nokuthomba: izinwele, amabele, amadevu nezinkathi. Ukuchazela izingane ezizonda uguquko ngakho konke lokhu kuyinselelo enkulu hhayi kwabanhliziyo zibuthakathaka! Ukuzilungiselela lapho ungakwazi ukusho ngokuqondile ukuthi okuthile kuzokwenzeka nini kuthumela ukukhathazeka esibhakabhakeni futhi kubangela ukukhungatheka okukhulu. Yiminyaka lapho ukuxhumana komphakathi kuba yinkimbinkimbi kakhulu futhi kuyinkimbinkimbi futhi kubangela ukukhathazeka okukhulu entsheni yami ye-autistic esacabanga okumnyama nokumhlophe futhi ethatha yonke into ngokoqobo. 'Bahleka nami noma bahleka mina?' iba ukukhathazeka kwansuku zonke. 'Ngabe bangumngane wami ngempela noma bayangisebenzisa nje?' kuba umbuzo wasebusuku engilwela ukubasiza bawuphendule. Njengoba izingane zami sezikhulile, umehluko phakathi kwazo nontanga yazo uye wanda kakhulu. I-autism isobala kakhulu, ivulekile, futhi ibonakala futhi isengozini kakhulu kunangaphambili. Ibhalansi phakathi kokuzama ukubavikela ngenkathi ubavumela ukuthi bahlangabezane nomhlaba ukuze bafunde futhi bakhule iba nzima nakakhulu usuku nosuku. Ngifuna baziqhenye ngokuba yi-autistic, bamukele kahle ukuthi bangobani ngaphandle kokwesaba kodwa ngabe ngibabekela ukuthi bahlukunyezwe futhi bakhishwe umphakathi noma kufanele ngibabuke bezabalaza ukuze bahlanganise imaski ukuze baphumelele esikoleni esiphakeme ngaphandle kokuba target? Lokho kwaba wumshikashika wami kwaze kwaba yilapho indodakazi yami ihlukumezeka ngokuphelele futhi manje ifunda ekhaya futhi indodana yami engakhulumi yafakwa ekilasini eliyinkimbinkimbi kakhulu esikoleni sayo esikhethekile. Manje sebekhululekile ukuba yikho kanye abayikho kodwa bobabili basangidinga kakhulu kunakuqala. Kubo bonke labo bazali abakhulisa intsha ye-autistic: Ngiyayithola. Awuwedwa. Thatha usuku ngalunye ngesikhathi futhi khumbula lokhu nakho kuzodlula! Okuthunyelwe I-Autism eminyakeni yobusha ivele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/autism-in-the-teenage-years/

Nsuku zonke lapho nje itekisi imehlisa ekhaya, ngimagange ngiqaqa isikhwama sakhe ukuze ngifunde idayari yakhe. Ngiyafisa ukumbuza ngosuku lwakhe kodwa akwenzeki lokho. Nokho, kungenzeka, kodwa akakwazi ukuphendula. Ngeminyaka engu-14 akakwazi ukukhuluma futhi leyodayari yesikole sasekhaya iwukuphela kwempilo yami yolwazi lokuthi usuku lwakhe belunjani. Leyodayari iyikho konke. Kuyangazisa ukuthi kukhona yini akuphuzile usuku lonke nokuthi udleni. Ingazisa nganoma yiziphi izidingo zokunakekelwa ayenazo nokuthi zahlangatshezwana kanjani nazo. Kuyangisiza ukwazi ukuthi uke waquleka futhi uma kunjalo nini futhi isikhathi esingakanani. Iyangazisa ukuthi yiziphi izehlakalo ezenzekayo njengoba engakwazi ukungitshela. Igcwalisa izingcezu zosuku lwakhe futhi inginika ukuxhumana nabasebenzi abasebenza naye. Kunginika ulwazi lokuthi uthuthuka kanjani nokuthi isimo sakhe sengqondo besinjani. Wonke amagama akuleyo dayari abalulekile kodwa kukhona okubaluleke nakakhulu: Izithombe ezivela esikoleni. Ukuchofoza ku-iPad noma inkinobho ecindezelwe kukhamera kanye nephepha elincane eliphrintiwe elithunyelwe ekhaya lisho umhlaba kimi. Kunginikeza ukuqonda okwengeziwe ngezwe lendodana yami kunanoma yini izisebenzi ezingabhala. Kungenza ngibone ukuthi indodana yami ijabule ngempela futhi ikhululekile. Kunginika okuthile engingakubonisa indodana yami ukuze ngikhulume nayo ngosuku lwayo. Igqamisa izimpumelelo zendodana yami futhi ingenza ngizizwe inakekelwe. Ngaphezu kwakho konke lokho nakuba lezo zithombe ezincane zinginika ukuthula kwengqondo kangangokuthi indodana yami esengozini ilungile uma ingekho kimi usuku lonke esikoleni. Kunzima ukuthemba abantu uma unengane engakwazi ukuxhumana nezidingo eziphakeme kakhulu. Manje usesikoleni esiphakeme, ukwazi zonke izisebenzi ezihlukene kunzima kakhulu futhi kuyinkimbinkimbi kakhulu. Akakwazi nokungitshela ukuthi unabangane noma axoxele izingane afunda nazo. Kube nezikhathi ngesikhathi sika-Covid lapho ngangingazi nokuthi bangaki ekilasini lakhe noma amanye amagama abo. Manje ngizazisa kakhulu zonke izithombe ezivela esikoleni. Ngibheka i-akhawunti ye-Twitter yezikole ukuze ngibone ukuthi kukhona yini okusha kwengane yami okungenani kabili ngosuku futhi ngiphathe leyo dayari yesikole sasekhaya njengoba impilo yami incike kuyo. Kungase kuthathe umzuzu owodwa wesikhathi somuntu omdala ukuthatha isithombe esisheshayo kodwa kimi leso sithombe sisho yonke into. Angeke angitshele lutho ngosuku lwakhe ngaphandle kwesithombe. Iphepha elincane kodwa eliyigugu kubazali abafana nami. Okuthunyelwe Izithombe ezivela esikoleni. ivele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/photos-from-school/

Lapho ngibona lesi sihlahla, angikwazanga ukuzibamba ngakhumbula iZwi likaNkulunkulu. “Uyoba njengesihlahla esitshalwe ngasemanzini, esinabisa izimpande zaso ngasemfuleni. Alwesabi lapho kufika ukushisa; amaqabunga awo ahlala eluhlaza. Alinakukhathazeka ngonyaka wesomiso futhi alilokothi lithele izithelo.” Jeremiya 17:8 Ukuba umzali kungaba nezinselele zakho nakanjani. Nokho, ukuba umzali noma umnakekeli wengane ekhubazekile kuthatha izinselele kwelinye izinga. Unikezwe le ngane noma izingane…wena, hhayi omunye. Ungulowo abamdingayo futhi abathembele kuye. Awugcini nje ngokuba nesibindi, kodwa futhi unomphefumulo wokubathanda ngokweqiniso ngisho nangezinsuku zabo ezinzima. Uyakhuthazeka ukuthi unike ingane yakho konke ekudingayo. Kudinga inhliziyo yesibindi ukuvuka njalo ekuseni futhi ukwenze ngokuphindaphindiwe, kodwa uyakwenza, nsuku zonke! Ngiyazi ukuthi ukhathele izinsuku eziningi, kodwa ngandlela-thile uyadonsa futhi unakekele izidingo zomunye umuntu, nangaphambi kwezidingo zakho. Ingxenye engcono kakhulu ukuthi uthola injabulo ejulile kule ngane uNkulunkulu ayibeke esandleni sakho. UNkulunkulu ukuthembe ngokwanele ngengane yakhe eyodwa, noma ngaphezulu, futhi ngiyazi nimenza aziqhenye. Ngiyazi futhi, ngezinye izinsuku akuzwakali sengathi kukhona ongaziqhenya ngathi. Sinezinsuku ezimbi kakhulu esizizwa njengesehluleki esinjalo. UNkulunkulu akasiboni ngaleyo ndlela. Khumbula ukudedela lokho okubizwa ngamaphutha. Angikholwa ukuthi akhona amaphutha eqiniso uma sifunda kuwo. Uma sizizwa sidangele lokho kusho ukuthi cishe siphila esikhathini esidlule. Uma sizizwa sicindezelekile futhi sikhathazekile lokho kusho ukuthi cishe siphila esikhathini esizayo. Phila ngokuthula manje futhi ujabulele izinsuku zakho nalezi zingane ezikhethekile. Impilo iyadlula, idlula kakhulu ukuthi ungaphila nanoma yikuphi ukuzisola. Lezi zingane ezinezidingo ezikhethekile zibheka kuwe, ekumoyizeleni kwakho, ekuthinteni kwakho okumnene, nekhono lakho lokulondoloza ukubekezela kwakho, ngisho naphakathi nezinsuku ezinzima kakhulu. Wenza impilo yabo ilunge. Uyindawo ekhanyayo osukwini lwabo, induduzo yabo, namandla abo. Ungowabo futhi bangabakho. Ngibhala le bhulogi ngoba ngazi kahle ukuthi impilo iyinselele kangakanani kuwe. Nami nginengane enezidingo ezikhethekile. Ngiyazi iningi lenu elibhekana nakho, njengoba zonke izingane zethu zinamazinga ahlukene okukhubazeka. Ekupheleni kosuku, sonke sinokufana kulolu hambo. Ngiyazi ukuthi indodakazi yami iyajabula uma ngiyimomotheka, lapho ngiyibamba ngesandla, futhi ngiyitshela ukuthi iyamangalisa. Injabulo angilethe empilweni yami ayisoze yashintshwa. Uma ngikhuluma iqiniso, kufanele ngivume ukuthi sekunezinsuku eziningi engangifuna ukuyeka, kodwa lokhu akuyona into esingavele siyilahle. Ngiyazi ukuthi lokho kuwumqondo wami okhathele wokucabanga futhi hhayi lapho inhliziyo yami ikhona. Inhliziyo yami ithanda lomntwana ngomphefumulo wami wonke. Ungaziqinise kakhulu uma kunezinsuku ofuna ukuziyeka, noma unomuzwa wokuthi awusakwazi “ukwenza lokhu”. Yisho amazwi anomusa nakhuthazayo kuphela kuwe. Inhloso yami lapha ukunikhuthaza nonke. . Ikakhulukazi ngalesi sikhathi sonyaka. Ngiyazi ukuthi kunengcindezi enkulu ekhaya ngesikhathi samaholidi. Indodakazi yami yaqala ukujabula ngoKhisimusi ngesikhathi izitolo ziqala ukubeka izinto zikaKhisimusi, njengoba sonke sazi ukuthi ngaphambi kwe-Thanksgiving, futhi ezinye ziqala nge-Halloween. Ukujabula kwendodakazi yami kuphenduka isimo esinzima sokucindezeleka nokukhathazeka. Umuntu angacabanga ukuthi ukujabula akuyona into enkulu. Ubheke ngabomvu usuku olujabulisayo; nokho-ke, injabulo yakhe ingashintsha ibe ukuncibilika noma nini. Ngiyazi baningi benu abangakuhlanganisa nalokhu engikushoyo. Sonke sinezindlela zethu zokusiza izingane zethu kulokhu kucindezeleka okujabulisayo. Kimina, ngithola ukuqondisa kabusha ngokushesha nje lapho ngibona noma yikuphi ukusikisela kwesimo senhliziyo. Sibeka yonke imicimbi yethu ejabulisayo ekhalendeni. Lapho ejabule kakhulu, ukubheka ikhalenda kuyamsiza ukuba abhekane nesimo. Ungakhohlwa ukuzitholela isikhathi sakho ngesikhathi samaholidi. . Ngiyazi ukuthi lokhu kungaba yinselele, ikakhulukazi kwabanye benu abangenaye umuntu ozokusiza. Kulabo abangenalo usizo lwanoma yiluphi uhlobo, ngithandazela ukuthi abanye beze endleleni yenu. Ngikholwa ukuthi uNkulunkulu angasinika noma yini esiyidingayo. Ngithanda ukubonga uNkulunkulu kusenesikhathi ngokunginikeza noma yisiphi isidingo engikucela kuye. Zama lokho ngokwakho. Bonga uNkulunkulu ngokunikeza abantu abalungile, abantu abathembekile abazothanda ingane yakho futhi babeke ukunakekelwa nezidingo zabo ngaphezu kwakho konke okunye. Kholwa kuwena, futhi ngalezi zinsuku uzibuza ngazo, khumbula ukuthi USENZA LOKHU MNGANI WAMI!!! Qina njengesihlahla esitshalwe ngasemanzini. UKhisimusi Ojabulisayo Nonyaka Omusha Ojabulisayo ovela kimi no-Emma! Okuthunyelwe Sanikezwa Lezi zingane: Incwadi Yesikhuthazo appeared first on Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/we-were-given-these-children-a-letter-of-encouragement/

Unjani uKhisimusi ususeduze? Ngiyaqiniseka ukuthi bekungamaviki ambalwa edlule lapho besilwela khona ukugcina i-Dude ipholile ngokwanele ngezinga lokushisa elikhuphukayo, nokho kungazelelwe kunezincwadi ezifika ekhaya mayelana nohambo lwesikole, ama-raffle / ama-fairs kaKhisimusi, uSanta… futhi manje sinodaba oluphambene. . Ukumgcina EFUDUMELE! Samelana nokufaka izinto zokushisisa kwaze kwaba isonto lokugcina likaNovemba, isimo sezulu esipholile sasiza, kanjalo nezingubo ezifudumele. Kwabe sekuqhamuka isifo sesifuba sokuqala saseNkwindla/Ebusika futhi kwacaca ukuthi ngeke sisakwazi ukuzifaka engozini yokushiya ukushisisa kuvaliwe... akuwona amakhaza anjalo inkinga kodwa ukuswakama emoyeni okumnika yena (nami) izindaba. Ngizokhuluma iqiniso, wasisabisa kancane ngejubane ehle ngalo kodwa ama-antibiotic aqalwa ngokushesha ukuze agweme okubi kakhulu futhi sakwazi ukumgcina ekhaya, nakuba 'nge-HDU yasekhaya' esebenza. Bonke abazali bezokwelapha bazokwazi ukusethwa; Ukuqapha kwama-SAT, umshini wokumunca nesilinda komoyampilo usethiwe, ithreyi lamasirinji anemithi ehlukahlukene, i-paracetamol ne-thermometer sekulungile. Umsebenzi wayo onzima, okhathazayo nokhathazayo nokuba nengane kabi . Ngeza ukungenelela okuvamile okungokomzimba okufana nokwelashwa kwe-chest physiotherapy, ukumunca ukuze kugcinwe umoya ohlanzekile, ukuqapha/ukuphatha ukushaqeka kanye nokukhathazeka okuqhubekayo kokuthi ingabe sebefinyelela ezingeni lapho sidinga ukubayisa esibhedlela futhi unokuxutshwa okunamandla kokukhathazeka, ukuqwasha nokukhathala. Njengoba ijwayele ukwenza, inkawu encane yahlehla cishe ngokushesha njengoba yayigibele futhi ngemva kwezinsuku ezimbalwa yabe isibuyela esimweni sayo esivamile. Ngaphansi kwamasonto amabili kamuva, futhi usekhaya evela esikoleni - izinga lokushisa, ukukhwehlela, isifuba esinamagundane. Inkulumo ethi 'nakhu sibuya futhi' ifika engqondweni, njengoba umfanyana wami ompofu edlula kusofa, uMerlin wakhe othandekayo nothembekile njalo akakude kude naye. Uxolo ngenkathi ngizingela i-Groundhog okumele ngabe ihlezi emzini wami ndawana thize (ngoba uMerlin akayifuni ngempela). Okuthunyelwe Iziphazamisi nokwehla kwezinga lokushisa kuvele kuqala ku-Firefly Blog . Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/bugs-and-dropping-temperatures/

Enye yezinto ezinonya kakhulu ngesifo sokuwa sikaDude yindlela esimlimaze ngayo ukubona. Njengomntwana onesifo sokuwa esingalawuleki esiqhubeka njalo ebuchosheni bakhe, wayeyimpumputhe. Inhlansi yokuqala yethemba yavela kumuntu omangalisayo owamhlolela ukwelashwa kokuthuthuka. Ube ngowokuqala ukusichazela ukuthi kwenzekani ngempela ebuchosheni bendodana yethu mayelana ne-development v's seizure activity, waba ngowokuqala ukusitshela ukuthi singalilahli ithemba futhi waba ngowokuqala ukusho igama elithi 'cortical visual impairment' . I-CVI (i-cerebral visual impairment yigama elinembe kakhudlwana) yilokho okwenzekayo lapho umsebenzi wokudlikiza uvimbela ubuchopho ekuthuthukiseni izindlela ezidingekayo ukuze umbono uthuthuke kahle naphezu kokuba i-optic nerve namehlo ngokwawo akheke kahle. Endabeni yomfana wethu, ukuquleka kwakudlulele kangangokuthi ingqondo yakhe yayingakwazi ukuqonda ukuthi amehlo akhe ayethini. Ngokokuqala ngqa selokhu umfana wethu axilongwa satshelwa ukuthi SINGAvele 'sibuke futhi silinde' kodwa siqale ukusebenza naye ngokushesha ukuze sithuthukise lezo zindlela futhi sisize ubuchopho bakhe bunqobe umthelela omubi wawo wonke lowo msebenzi kagesi we-pathological pathological. Iminyaka eyishumi kulowo mhlangano wokuqala, umzamo omkhulu nokusebenza kanzima kamuva, futhi umfana wethu unombono osebenzayo. Usenokukhubazeka okukhulu kokubona kodwa UNAWO ukubona okuwusizo. Ukusebenza nothisha wakhe kwabangaboni kahle sifunde inani elikhulu mayelana nendlela yokusiza ukuqondisa ukukhula kwakhe kokubona; sifunde ukuthi umbono wakhe oseceleni ungcono kakhulu kunokubona kwakhe okumaphakathi, kodwa manje sinamathuluzi okumsiza ukuthi aqhubeke nokuthuthukisa amakhono akhe okubuka. Futhi asikho isikhathi esingcono sonyaka sokuba abukise ngempela ukuthi usekude kangakanani, kunangoKhisimusi. Angisoze, ngikhathele ukubona indlela abafana bami ababhekana ngayo nenjabulo (ngiyaxolisa) ngenjabulo lapho ebona izindlu ziqala ukukhazimula ngemihlobiso noma ukuthi ingakanani injabulo ayithola ngokuhambela imicimbi efana neLights at Trentham Gardens - umndeni oyintandokazi. siyasihlupha noma iluphi usuku, kodwa ukukubona kukhanyisiwe sekuhwalele nomculo wefestive odlalwa ngezinga elifanele lokungabi nenkani kumbeka kwelinye izinga. Ukuba khona kwalawo mathoyizi anemibala ehlukahlukene akhanyisa amathoyizi kulesi sikhathi sonyaka kwenza izindlela zokwelapha ezibukwayo zibe mnandi kakhulu futhi.Kusasa sizobe silungisa imihlobiso yethu, ngandlela thize ngiyasola ukuthi isihlabani sethu esincane sizobe sisiyala ukuthi izinto kufanele ziye kuphi. ! Ukhisimusi omuhle nonke, nangu unyaka ka-2023 onokuthula, ophephile. Okuthunyelwe I-CVI, Ithemba, kanye noKhisimusi kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/cvi-hope-and-christmas/

“Izwi lakho liyisibani ezinyaweni zami nokukhanya endleleni yami.”— IHubo 119:105 Ingabe ukhona umuntu othembele kuwe kuzo zonke izidingo zakhe, iningi lazo, noma ezinye zazo? Noma ngabe yikuphi, uma ungumnakekeli, uzobe uphendule ngoyebo kulokhu. Amaholide amatasa ngokwanele, kodwa lapho othile engumnakekeli, ukuphila kubonakala kungaphezu kwamandla. Umuntu angase akhathale ekuqaleni kukaDisemba futhi ikakhulukazi ngaphambi kukaKhisimusi. Singawajabulela kanjani amaholide futhi sibe umnakekeli umuntu wethu okudingeka sibe yikho? Ngiyazi ukuthi lokhu kulula ukukusho kunokukwenza kwabaningi bethu, kodwa kufanele uzinike isikhathi. Uma ungakwenzi lokho kuzoholela ekutubekeni nasekuphelelweni amandla. Lokhu kungaholela ekuguleni. Singabantu sidinga ukuphumula futhi silulame. Gcina ikhalenda elihlelekile ukuze ukwazi ukuhlela ngendlela efanele futhi ubheke phambili kulokho okudingayo ukuze ufeze lolo suku. Okubaluleke kakhulu, zama ukungacabangi kakhulu ngezinsuku ezizayo. Usuku olulodwa ngesikhathi kanye nesinyathelo esisodwa ngesikhathi. Sebenzisa isikhathi sakho ngokuhlakanipha futhi ulalele lokho amathumbu akho nomzimba wakho okutshela kona. Uma wazi ukuthi udinga ukulala kancane, futhi unethuba lokwenza kanjalo, thatha okukodwa. Khuluma nabanye, futhi utshele abantu osondelene nabo ukuthi uludinga ngempela usizo. Mhlawumbe unikeze abantu abambalwa izinto ongasebenzisa usizo kuzo. Ngale ndlela awubeki kakhulu umuntu oyedwa. Uma ungatsheli muntu ukuthi udinga usizo, ayikho indlela yokuthi bazi. Ngiyazi bekungaba kuhle ukuba abanye bavele bazi izidingo zethu bese besiza. Angithandi ukucela usizo, kodwa ngenzela ukuthi ikhanda lami libe ngaphezu kokhula. Kuthatha isizwe. Ngiyayithanda indlela amaNdiya ezizwe ayephila ngayo. Ingane ayikhuliswa abazali bayo kuphela. Ngokwesibonelo: Esihlokweni esithi “Ukuphila Komkhaya Esikweni LamaNdiya Asemathafeni” kaSally Painter “Abadala bomkhaya bafeza indima ebalulekile. Abesifazane babesiza ekukhuliseni izingane nasemisebenzini yasekhaya. Kungenzeka ukuthi amakhehla asebenza esigungwini samakhosi. Basebenzela umndeni wabo omkhulu njengothisha, abeluleki, abeluleki bezomoya, kanye nabaphathi besifuba. Abadala basePlains Indian babehlonishwa kakhulu umkhaya wabo. Umkhaya wawanakekela ngothando amalungu awo amadala, futhi wahlonipha ababuthaka ukuze baqinisekise ukufa okuhloniphekile, okunesithunzi.” ( Ukuphila Komndeni Esikweni Lamathafeni AmaNdiya | LoveToKnow ) Ngokubona kwami, yilokhu okushiwo umndeni. Ngikuthola kudabukisa kakhulu ukuthi ukunakekelwa komkhaya, kwabanye, akukho. Ngiye ngizibuze ukuthi kungani silapha uma singanakekelani futhi sinomusa komunye nomunye ngothando nangozwelo? Ngikholwa ukuthi lesi ngesinye sezizathu ezibalulekile ukuthi sisemhlabeni. Ziningi ezinye izindlela zokuthatha kancane futhi sizinakekele ngesikhathi samaholide, futhi lokho kufanele kuqhubeke unyaka. Sonke siyazazi lezi zinto, kodwa ngeke kubuhlungu ukuzisho noma kunjalo. Sonke singasebenzisa isikhumbuzo salokho okudingwa imizimba yethu, kuhlanganise nami: ukuzivocavoca (okungenani thatha uhambo), ukunethezeka esilwaneni esifuywayo, ukulala ngokwanele, ukudla ngendlela ongakwazi ngayo. Ngiyazi, cishe akunakwenzeka ngamaholide. Kungaba nzima ngempela ukungabi nama-dessert kuyo yonke imibuthano. Ngisho ukuthi, kufanele sizame ama-dessert abangani bethu! Thatha izingxenye ezincane ukuze ujabulele ngaphandle kokweqisa. Yizo zonke lezi zinto esizaziyo. Ngiyethemba ukuthi le bhulogi izokunikeza isikhuthazo esincane namandla. Khumbula ukuzijabulisa futhi uzinike isikhathi sokungenzi lutho. Ukunakekela kuningi kumuntu oyedwa, futhi akekho ongazi ukuthi kunjani aze ahambe endleleni yomnakekeli. Okuthunyelwe Indlela Yomnakekeli: Ukusinda Ngamaholide kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/the-path-of-a-caregiver-surviving-the-holidays/

Njengemikhaya eminingi yezingane ezikhubazekile, sibheka amaholide asondelayo ngokwesaba. Lokho kungase kuzwakale kumangalisa, kodwa kuyiqiniso emindenini lapho isikole singesona nje esimayelana nemfundo, kodwa esiphathelene nokuphumula okubalulekile. Izidingo zengane yami zinkulu kangangokuthi idinga ukunakekelwa okukodwa kuya koyedwa ngaso sonke isikhathi, isikhathi esiningi asikwazi ukuba ngaphezu kwemitha ukusuka kuyo. Kwezinye izikhathi, lapho ukuquleka kwakhe kukubi kakhulu, kufanele simbambe ngokoqobo ngamahhanisi njengoba ehamba ukuze avikele ukulimala. Ukuboshelwa enganeni yakho ngale ndlela kunikeza incazelo entsha ngokuphelele ekunamathiseleni umzali. UKhisimusi kithi uvusa zonke izinhlobo zemizwa, yebo kukhona injabulo ethile, kodwa iza nomuzwa wokukhathazeka okunzima. Ingabe sizoluthola usuku lwamahhala lokudlikiza? Sizobe sisesibhedlela? Lokho kungasho ukuthini kwenye ingane yethu? Isisindo sawo siyakhathaza. Njengezinsuku zokuzalwa, uKhisimusi ungabuye ugcwale ukudabuka, ungaba isikhumbuzo sezinto intombazanyana yethu engakwazi ukuzenza noma ukuziqonda, isibonelo uFather Christmas, noma ukulindela izipho. Kungaba nzima ukuzama ukuqhamuka nemibono ekhona lapho ukukhula kwakhe kungaqondile, maningi kuphela amathoyizi ezinzwa indlu eyodwa engawamukela... Kubalulekile ukuthi imindeni efana neyethu yazi ukuthi ayiyedwa futhi kunamaqembu ahlakaniphile ku-Facebook axhumanisa imindeni futhi anikeze indawo yokusekela yezingxoxo. Oxhumana naye wenhlangano esiza umphakathi wenza okunye kwalokhu. Eminyakeni edlule ngiye ngafunda ukuzama ukuyeka ukulindela noma ingcindezi uma kuziwa emicimbini emikhulu. Kuwumugqa omncane, kepha kuwusuku olulodwa nje. Ekuhlangenwe nakho kwami ​​kokuba umnakekeli wabazali kunenjabulo enkulu etholakala unyaka wonke ngezikhathi ezimnandi. Ngithola lezo zikhathi ezinhle, amahora, izinsuku zigcwele injabulo, mhlawumbe yokuqina imindeni evamile engase ingakutholi. Ngakho-ke, nakuba kuyohlale kuwumcimbi okhethekile, uKhisimusi kithina awusoze wathwala kanzima silindele ukuthi uzoba yingqophamlando yonyaka, okungenzeka ukuthi kwenzeke ngolunye usuku, lapho intombazanyana yami isho igama elisha noma unosuku olujabulisayo ngempela. Kulezi zikhathi lapho injabulo yangempela kanye nomgubho ilele kithi. Okuthunyelwe UKhisimusi Uyeza... kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/christmas-is-coming/

Ukuba umzali kunzima. Impela kunzima. Kuyilungelo eliphelele kodwa masikhulume iqiniso lapha; kunzima. Anginaso isipiliyoni sokukhulisa ingane ene-neurotypical noma eqinile. Okuhlangenwe nakho kwami ​​kokuba umzali kufana nokufana, kodwa futhi kuhluke kakhulu. Izinselelo eziningi abazali bezingane eziphathelene nemizwa ababhekana nazo zizogcina sezikhulile (ngethemba). Kithina akukhona nje “ababili ababi” noma “ukusungula isimiso esihle sokulala”. Akukho ukubiza umzanyana lapho sidinga ikhefu, akulula kanjalo. Manje angizibukeli phansi nakancane izinselelo bonke abazali ababhekana nazo; Iphuzu lami lapha ukugqamisa ukuthi izinto eziningi odonsa kanzima ngazo mayelana nezingane noma ezisacathula, zizoqhubeka nasebuntwaneni, ubusha (uma kuyizwi lelo), futhi ngempela, abantu abadala. Njengoba ingane ikhula ingaba namandla, izwakale kakhulu, ibe yingozi kakhulu kuyona nakulabo abaseduze kwayo. Ngokujabulisayo ngathi, ukukhungatheka kuka-Amy / ukukhala kwakhe kungcono kakhulu kunaseminyakeni embalwa edlule, nokho namuhla ngisathuthumela ngokomzwelo nangokomzimba ngesikhathi sokulala izolo ebusuku. U-Amy uneminyaka engu-8 manje. Une-quadriplegic cerebral palsy enzima kakhulu. Nsuku zonke ulwa nemiphumela emibi esabekayo yemithi embalwa, ulawula ubuhlungu obengeziwe kulabo abaseduze kwakhe, futhi kufanele azenze azwakale futhi aqondwe ngaphandle kokuhamba noma ukukhuluma. Ngiye ngizibuze izinga lokuzihlukanisa nokukhungatheka angase abe nakho. Ngisho namagqubu. Ngiwumphefumulo ozwela kakhulu futhi ngivikela ngokujulile u-Amy. Ngiyazi ukuthi akulona iqiniso, kodwa ngifuna ukuthi sonke isikhathi sempilo yakhe sibe esimangalisayo, sijabule futhi sigcwale uthando. Ngiye ngahlakulela uzwela olukhulu, uzwelo futhi okubaluleke kakhulu ukubekezela, ngenxa “yezinkinga” zakhe. (Anginaso isiqiniseko sokuthi ukuwohloka kuyigama manje. Ingabe inkinga? Kunoma ikuphi, inkathi yokucindezeleka okukhulu.) Izolo ebusuku konke lokho kuphume ngefasitela. Njengezingane eziningi, ziyakwazi ukucisha izinkinobho zabazali bazo. Ngiyazi ukuthi ngingaba novalo oluncane ngiseyingane futhi ngibheke emuva ezenzweni zami (ikakhulukazi lapho ngisemusha) nginamahloni futhi ngizisola. Nokho uma u-Amy enesinye salezi ziqephu, akazi ukuthi ucindezela izinkinobho. Ngaleso sikhathi usuke esesemseni wanoma yini ubuchopho obumfaka kuyo. Ngathi ngisathi ngiyalala ngabona ulaka lugcwala phezu kwakhe. Wadliwa yikho. Wayeshaya, ekhahlela, edazuluka, ezama ukuklebhula izinwele zakhe. Ongakwenza ngaleso sikhathi ukuzama ukugcina wonke umuntu ephephile futhi uqhubeke nokuphefumula. Zikhumbuze ukuthi lokhu kuzodlula. Zikhumbuze ukuthi lokhu akumayelana nawe, kumayelana naye. Uyazabalaza njengamanje futhi udinga ukwesekwa nguwe. Ekugcineni waphelelwa umoya, ephefumula ngokushesha, ehlehla, futhi waba nenhliziyo eshaya ngamandla. Imizwa yami engokwemvelo yangitshela ukuthi ngihlole ama-ketones egazi lakhe kanye ne-glucose njengoba ngaphambili eke wasabela ku-ketoacidosis ngendlela efanayo, futhi uma bekunjalo --ke kuyisimo esiphuthumayo sezokwelapha. Ngathi ngizama ukumthulisa ngibheka igazi lakhe waswayipha iphinifa lomunwe esandleni sami inaliti yasigqekeza isandla sami. Igazi lalihamba yonke indawo. Ngatatazela ngifuna ithishu kodwa ngingafuni ukuzifaka engozini yokuwa embhedeni wakhe. Umzamo wami wesibili - wakhahlela i-lancet esandleni sami okusho ukuthi kwakukhona inaliti exegayo embhedeni wakhe. Ngesikhathi ngizama ukuthola inaliti elahlekile wangikhahlela ebusweni kwabangela udebe olukhuluphele. Lapho imizwa ka-Amy inamandla ukuphazamiseka kwakhe kokunyakaza kushintsha igiya futhi umzuzu owodwa ongagxilile uzosho ukopha ekhaleni. Ngalesi sikhathi ngangizizwa nginokwesaba, ngicasukile, futhi ngicasukile ngokungananazi. Ngimmemeze alale. Ulaka lwakhula. Ngacindezela izinyembezi ngazitshela ukuthi ngehlise umoya. Ekugcineni ngangidinga ukumnika i-chloral hydrate ukuze ngimthulise. Kuyisinqumo engingasithathi kalula futhi ngisisebenzisa ezimweni ezibucayi kuphela. Kwaphela izinsuku ngizizwa ngicasukile futhi nginecala ngakho futhi ngidinga ukuqinisekiswa njalo ukuthi ngangingenakho ukukhetha nokuthi ukumshiya ecindezelekile akulungile. Ekuseni nje uvuke ejabule engathi akukaze kwenzeke lutho. Ukukhululeka kuyabonakala. Ibuyile intombi yami enhle ejabule. Imithi yasekuseni iyakhahlela futhi uyozela. Ngithemba ukuthi ukumamatheka kuzobuya kamuva. Ngisathwele istress nanamuhla. Ngiwuzwa umzimba wonke. Ngifisa sengathi ngabe ngehlise umoya. Angikaze ngimthethise. Akusizi isimo esicindezelayo. Kodwa ngiyazi ukuthi ngokuvamile lokhu kwenzeka kumzali lapho edudulwa. Ngizizwa kabi manje. Icala elifanele likaMama. Ngikhathazekile uma lokhu kuzokwenzeka unomphela ngokungahleliwe. Kwenzeka njalo nje kodwa uma ingishaya izikhathi eziyisithupha. Nganginesikhathi esithile sokuphumula ngakho ngakwazi ukugxusha endaweni yokuhamba ngezinja kanye neseshini yokuzivocavoca. Nami ngangingafuni kodwa ngangidinga lawo mahomoni okucindezeleka ukuthi ehle. Ngizizwa ngingcono manje kunangaphambili. Manje ngigxile ekuhlaleni ngiphazamisekile, ngihlale nginethemba, futhi ngisebenzela ukuba umzali ongcono kulobubusuku. Ngamtshela ukuthi ngiyaxolisa futhi ngamtshela ukuthi ngimthanda kangakanani. Wavele wamamatheka wahleka wangithinta ehlombe. Ngicabanga ukuthi inhloso yale bhulogi ukusho ukuthi - kulungile ukunyakazisa. Kulungile ukuzabalaza. Wenza konke okusemandleni akho futhi awukwazi ukuphelela 100% wesikhathi. Namuhla usuku olusha kakhulu futhi kungakhathaliseki ukuthi u-Amy ubuya esikoleni namuhla ngizojabula kakhulu ukumbona. Uma unenkinga efanayo - sicela ungahlupheki wedwa. Uma impilo yakho yengqondo ithikamezeka qiniseka ukuthi ufika kudokotela futhi ubone ukuthi yiluphi usizo olutholakalayo. Ungaba umhlabeleli wakho kuphela uma uzibheka wena. Ngiyazi ukuthi kulula ukukusho kunokukwenza, kodwa kubaluleke kakhulu. Okuthunyelwe Ukuba Umzali Kunzima kwavela kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/being-a-parent-is-hard/

Sekuphele iminyaka eyishumi sihlala nesela phakathi kwethu. Iza nganoma yisiphi isikhathi sosuku noma ebusuku, ithatha izinkumbulo eziyigugu namakhono ngokuthanda kwakhe. Ibhekene neqhawe elilwa nayo imini nobusuku, ngesibindi esikhulu kakhulu kunanoma ubani weminyaka yalo okufanele asibonise. Isikhathi esifushane ngo-2011, sasiwumndeni 'ojwayelekile'; isithunzi esiyisithuthwane sasisazongena ezimpilweni zethu ngaleso sikhathi. Ngisho nalapho lokho kuquleka kwenzeka ngolunye usuku ekuseni kushisa ngo-August esikhungweni sezingane, futhi emasontweni alandelayo, sasisenethemba lokuthi isithuthwane somfana wethu sasingeke sibe nomthelela ojulile empilweni yakhe. Nokho, ngo-December kwacaca ukuthi isela elase lintshontshe amakhono omntwana wethu omuhle kangaka lalisekhona. Yilokho ngempela isifo sokuwa, isela elingenandaba nokuthi ungubani noma wenzani. Izofika lapho ungalindele futhi izokukhipha ezinyaweni zakho. Iminyaka eyishumi edlule ibe umqansa wokufunda. Ubuwazi ukuthi akubona bonke abantu abalahlekelwa ukwazi ngesikhathi sokuquleka? Noma lokho kuquleka okugxilwe kukho kuthinta kuphela ingxenye yobuchopho, kuyilapho okujwayelekile kuthinta yonke? Nginelungelo elijulile lokuba nomntwana onguthisha wami omkhulu futhi ongifundise ukuthi kuyini ukuvuka futhi ulwe namademoni afanayo akushiya ukhathele ngayizolo (futhi endabeni yakhe, lokho akuzange kuyeke ukuhlasela nakuba kwakusebusuku). Unohlobo lwesithuthwane oluhambisana nezinzipho namazinyo – umphumela omubi njengokungathi ubuchopho obungamile kahle njengoba bebuhlosiwe. Njengomama wakhe nginecala elikhubazekile ngalokho iminyaka eminingi. Phela umfana wami uyaquleka...zimntshontshele ikhono lakhe lokukhuluma, lokuhamba, nokuhlala engenzi lutho. Akakwazi ukugwinya ngokuphepha, futhi naphezu kwemithi eminingi kanye nezimangaliso zezokwelapha okuyi-VNS usenokuquleka okuningi nsuku zonke. Izingane zethu zingamaqhawe angempela. Umfana wami unothando lokuphila olwenza ubumnyama buhlehle, ukumamatheka kwakhe kukhanyisa izinsuku ezinzima kakhulu futhi injabulo yakhe kanye nesasasa lapho enza into ayijabulelayo iyathelelana. Ngoba ikhono ngalinye elifundiwe liwukunqoba; impumelelo ngayinye, kungakhathaliseki ukuthi incane kangakanani, iwukunqoba okufanele ukubungazwa ophahleni lwezindlu! Sengike ngakusho futhi ngizophinda futhi; indodana yami ingase ibe nesifo sokuwa. Kodwa isifo sokuwa asisoze saba nendodana yami. Okuthunyelwe Isela neQhawe kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/the-thief-and-the-warrior/

Njengoba ungumzali noma umnakekeli wengane ekhubazekile, uzohlangabezana nezimo ezivivinyayo ezizokuphushela umkhawulo wakho. Akunakugwemeka nje. Kuzovela izikhathi lapho uzozwa khona ukuthi igazi emithanjeni yakho lishisa kuyilapho ukucindezeleka okukhulu kukudla. Kuzoba nezikhathi lapho ufuna nje ukumemeza kakhulu. Uma sizithola silapha, kumele siphakame sizikhumbuze UKUZE SIPHEFUMELE NJE. Uma othile ekhuluma “iZwi eli-R” elinganaki, elingacabangi, nelinonya phambi kwakho... Lapho othile egqolozela ngokudelela noma egcona ingane yakho ngokuthi ihlukile... Lapho inkampani yomshwalense ikuthatha ikuzungeza futhi ikuzungeza ngeqoqo lezicelo zokugunyazwa ezingapheli kanye nokwenqatshwa, esikhundleni sokukusiza ukuthi uthole okokusebenza kwezokwelapha ingane yakho eyidinga kakhulu... Uma uzungeza indawo yokupaka imizuzu engu-20, ufuna indawo yokupaka okufinyelelekayo, uthole kuphela umuntu egxumagxuma ebuyela emotweni yakhe, kungenazimpawu zethegi efinyelelekayo noma uqwembe olubonakalayo... Njengoba kunzima, nangaphambi kokuthi uqhume, PHUMELELA NJE. Kuyoba nezikhathi lapho inhliziyo yakho ibuhlungu futhi ungakwazi ukubamba isikhukhula esivuthayo sezinyembezi. Uma uhleli emhlanganweni we-IEP esikoleni sengane yakho, uphoqeleka ukuthi ulalele “ubuthakathaka” nazo zonke izindlela ehluleka ngazo kontanga yakhe asebekhulile… Lapho engakwazi ukukhuluma ukuthi uyagula noma ulimele… Lapho ukukhathazeka kwakhe kuthatha futhi ufuna "ukukulungisa" futhi wenze impilo yakhe ibe lula ... Ngaphambi kokuthi ulale futhi uzinikele, PHUMELELA NJE. Kuzoba nezikhathi eziningi zenjabulo emsulwa nothando oluphelele kunalokho ozokwazi ukuzibala, futhi. Uzothola umlingo nobuhle empilweni yakho abantu abaningi abangakwazi ukukucabanga. Izikhathi ezizoqeda konke ukukhathazeka futhi zisuse umoya wakho ngokuphelele. Lapho ingane yakho ikumoyizela ngothando futhi amehlo ayo agcwala ukumangala... Uma uzwa ukugigitheka kwakhe okuyigugu kakhulu... Uma ekusonga ngokugona okuqinile, lapho nje ukudinga kakhulu... Uma umbona efinyelela ingqopha-mlando elingana nokuqwala intaba... Khumbula ukuma kancane, UPHEFUMLE NJE, futhi ukungenise konke. Okuthunyelwe Ukuphefumula kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/breathe/

Ukukhulisa ingane ekhubazekile kuyinselele enkulu, kodwa kunezinyathelo ezingakusiza ukuba ubhekane nazo Okuthunyelwe Lapho Ingane Yakho Ihlukile kwavela kuqala kumagazini Ingane . Ibhulogi yakamuva evela ku-https://www.childmag.co.za/when-your-child-is-different/?utm_source=rss&utm_medium=rss&utm_campaign=when-your-child-is-different

Lapho ngiqala ukuzwa ukuthi ingane yami enezinyanga ezingu-18 'ivele' inesithuthwane futhi ukuhlolwa kwase kuqinisekisile ukuthi wayengenazo ezinye izimo ezingase zesabe kakhulu, ngazama ukucabanga kahle. Bengicabanga ukuquleka okumbalwa lapha noma laphaya, kodwa empeleni kuyisimo esivamile, esilawulekayo abantu abaningi abaphila naso. Ayikasithatheli leyo ndlela, ngeshwa. Intombazanyana yami (uTaz, igama-mbumbulu) manje eneminyaka engu-8, inesifo sokuwa esiyinkimbinkimbi esilawula ukuphila komkhaya wakithi. Unesimo esibizwa nge-Lennox Gastuat Syndrome. Intombazane yethu enhle inezinhlobo eziningi zokuwa, i-tonic clonics, i-atonic (i-drop seizures), i-focal seizures, ukungabikho, ukubanjwa kwe-tonic, i-myoclonic sezures kanye nokubanjwa kokungabikho okungavamile. Kunalokho kuwuhlu olude. Ukubuka ingane yakho idlula kulokhu kubuhlungu ngendlela emangalisayo. Manje sengiyiqonda ngempela incazelo yegama elithi ubuhlungu benhliziyo, nokuthi lokho kungaba ngokomzimba kangakanani. Sibe nohambo oluningi, oluningi lwama-ambulensi kanye nokulaliswa esibhedlela. Ukushayela ku-999 manje sekuwumkhuba kithi, akusabalulekile izindaba. Uma i-ambulensi isesitaladini sethu, iningi lomakhelwane bethu lizocabanga ukuthi ngeye-Taz. Isifo sokuwa esiyinkimbinkimbi njengalesi yisimo esesabekayo ukuphila naso. Yisilwane esikwazi ukugxuma siphume emthunzini noma nini. Njengomuntu onenkinga yokukhathazeka ekhona futhi ogxuma ku-toaster ephumayo, kuyindlela enzima ukuyinyathela. Sesikushilo lokho, sinezikhathi eziningi ezijabulisayo futhi ngesikhathi siphila nalesi sifo esishintshashintshayo sihlangabezane nomusa omkhulu nokusekelwa. Uma u-Taz engadli ngokuquleka uthanda ukudlala, ukugibela i-unicorn, ukugxuma, ukugijima futhi ayobhukuda. U-Taz usedlule ezidakamizweni ezingaba yi-10 futhi njengamanje uthatha ezi-4, une-vagus nerve stimulator futhi udla ukudla kwe-ketogenic yezokwelapha (iba ne-google yalezo ezimbili zokugcina uma ufuna ukwazi okwengeziwe). Akukho okusebenzayo ukuvimba ukuquleka kwakhe. Enye inhlansi yethemba insangu yezokwelapha. Izingane ezintathu e-UK zinencwadi kadokotela yalokhu ngemuva kokuthi iphinde yasemthethweni ngo-2018 kodwa okwamanje kunezinkinga ezinkulu ngodokotela abayichazayo. Sicela uchithe isikhashana ubheke ku-https://endourpain.org ukuze uthole okwengeziwe. Kufanele ngibe ngummeli oqinile wendodakazi yami; esibhedlela uma kuziwa ezidakamizweni ezinikezwayo, esikoleni mayelana nokunakekelwa kwakhe kanye nokunakekelwa kwezenhlalakahle ukuqinisekisa ukuthi sinokwesekwa akudingayo. Kuyakhathaza kodwa ngiyalibona ilungelo lami lokukwazi ukwenza lokhu. Ukuqina kuka-Taz kuyamangalisa futhi ukumbona egxumagxuma ngemva kweziqephu futhi ebuyela ku-unicorn yakhe kuyangimangaza ngaso sonke isikhathi - uwumlingo nje. Ukuze uthole ulwazi olwengeziwe mayelana nesifo sokuwa vakashela: Ikhaya - Isenzo Sesifo sokuwa Okuthunyelwe Isifo sokuwa esiyinkimbinkimbi nomndeni wethu sivele kuqala Ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/complex-epilepsy-and-our-family/

Kuningi okwenzeka ekhanda lami kwesinye isikhathi, izinsuku eziningi kakhulu ukuthi ngingacabangi kahle. Ukushintsha impilo yomndeni, ama-aphoyintimenti, umsebenzi nakho konke okunye ukuphila okuphonswa kule ngxube kuwumsebenzi onzima ngisho nangaphandle kokwengeza ezinkingeni zengane ethokozisayo ngokwezokwelapha! Uma kungekho okunye, ubhadane lwakamuva lungenze ngahlola kabusha izinto ezimbalwa futhi ngaqala kabusha… ibhalansi yami yomsebenzi/impilo idinga kakhulu ukunakwa entweni eyodwa, futhi njengoba iningi lempilo yami yengqondo iphazamisekile. Ngakho-ke, kwaba ngokujabula okukhulu lapho mina noMnu V sazibhukha izinsuku ezimbalwa phakathi nesigamu sesikhathi no-Dude ukuze asinikeze ithuba lokuchitha isikhathi esisidinga kakhulu ndawonye njengomndeni, kanye nokuthola abangane angikaze ngibone isikhathi eside kakhulu. Kuhlala phakathi nalesi sikhathi esiyigugu sokungabi khona kwezinxushunxushu zokuphila kwethu kwansuku zonke lapho ngikwazi khona ukukhipha isikhathi esithile ukuze ngivele ngicindezeleke futhi ngiphumuze - ngandlela thize akwenzeki neze uma sisekhaya. Kuhlale kunokuthile okudingeka kwenziwe, kungakhathaliseki ukuthi umsebenzi wasendlini noma elinye ifomu okufanele uligcwalise, kanye nokuqokwa ukuxosha noma i-imeyili ukuze uphendule... akusona isikhathi esifanele sokwehlisa amathuluzi nokuma. Ngakho, ngenkathi ngingekho, ngavumela ingqondo yami ukuba yenze lokho kanye. Ukuzungezwa yimvelo bekulokhu kuyinyanga yami enkulu Ubuchwepheshe businikeze izinto eziningi ezinhle, ngaphandle kwabo indodana yami ibingeke ibe nekhwalithi yempilo enhle, nokho kimina izizwa inobuthi futhi icindezela ngezikhathi ezithile. Ukuthintwa noma nini nanoma iyiphi indawo akusona isimo semvelo, futhi akusivumeli ukuthi sibe yilokho esiyikho. Ukuba sehlathini, noma ezintabeni kwenza ingqondo yami ikhululeke futhi ngiphinde ngibe nombono othile. Sinenhlanhla yokuhlala emaphandleni, ezungezwe ihlathi, amasimu kanye nesiqiwi esicishe sibuyele ngqo engadini yethu - akuyona into wonke umuntu angakusho! Kodwa ngisho nangaphakathi kwedolobha, kukhona njalo uhlobo oluthile lwesikhala esiluhlaza lapho ungaya khona futhi uphumule. Njengabazali abanezidingo ezikhethekile, kubaluleke kakhulu ukuthi sinakekele impilo yethu, ngokomzimba KANYE nengqondo, ukusivumela ukuba sinakekele izingane zethu ngempumelelo. Kunjalo nakakhulu lapho sinomuzwa wokuthi asinaso isikhathi sokwenza kanjalo, njengoba kuyiphuzu lapho sifinyelela imingcele yethu. Zenzele umusa futhi uzinike isikhathi sokuma futhi uphefumule. Ingqondo yakho izokubonga ngakho. Okuthunyelwe okuthi Just Breath kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/19675-2/

Kukhona inunu ecashe ethunzini, njalo nje igxathu elilodwa ngemuva. Iyaqoshama futhi iyashosholoza, ilungiselela buthule ukugadla ngesikhathi ungalindele. Uhlale wazi ukuthi ikhona, futhi wenza konke okusemandleni akho ukuze uhlale izinyathelo ezimbili ngaphambi kwayo. Isifo sokuwa yisilwane esizophendula yonke into ibheke phansi ngokuphazima kweso. Iyisela lokuthula, futhi ishiya ukwesaba, usizi, kanye nesiphithiphithi esiphelele ngemva kwayo. UNovemba yinyanga yokuqwashisa ngesifo sokuwa; imindeni efana neyami ikubona kabuhlungu ukuthi ikhona NSUKU ZONKE. Kumelwe sihlale siqaphile, singalokothi siyekele ukuqapha kwethu. Uma ingane yakho inenkululeko yokuquleka, kuyinto ejabulisayo ngempela ukubungazwa. Ngomkhosi njalo kuza ithemba eliqaphile. “Kuyoze kube nini le nkathi yokuthula?” Sihlale sazi ukuthi lesi silo singase sisondele, futhi asikwazi ukudebesela emizamweni yethu yokusivimba. Inqubo yendodakazi yami inemithetho eqinile eyakhelwe kuyo esiyilandela ngokuqinile. Siyazazi izinto eziningi ezimbangelayo, futhi sihlala silwela ukuzigcina zilawulwa. Imithi kufanele inikezwe ngesikhathi. Njalo. Udinga isikhathi esiningi sokulala nokuphuza amanzi. Siyaziqhelelanisa nezixuku futhi sizame ukugwema ukugula ngokusemandleni ethu. Akakhulumi futhi akakwazi ukuxhumana nathi uma okuthile “kuvaliwe” noma kungalungile, ngakho sithatha izinga lokushisa lakhe njalo. Kwesinye isikhathi, akukho mvumelwano noma isizathu lapho u-stalker ebonakala. Ngokudabukisayo, siyazi ukuthi lokho kuyingxenye yemvelo yayo. Njalo nje lapho isifo sokuwa sivusa ikhanda elibi, wonke umkhaya wethu usala uthuthumela ngemva kwaso. Singanikeza noma yini ukumvikela ekudluleni kukho; ukuze alivikele olakeni lwayo. Inendlela yokusihlukumeza sonke, isikhathi ngasinye, futhi akukaze kube lula. Sizama ngamandla ukuhlala sizolile njengoba sithandazela ukuba agqashule ekubanjweni kwayo. Wonke amalungu omndeni wethu ayazi ingxenye yawo ethimbeni uma kwenzeka, futhi sisebenza ndawonye njengeyunithi ehlangene ukuze sisize iqhawe lethu lentombazane lilwe. Siyamsekela kule mpi, futhi siyohlala njalo Sizokwabelana ngolwazi nabanye futhi simmelele ngoNovemba, nakuzo zonke ezinye izinyanga zonyaka, futhi. Siyazi kabuhlungu ngeSithuthwane nakho konke okufika nakho. Uyazi nge-toll edingekayo. Ngolunye usuku, sithemba ukuthi ikhambi liyoba khona futhi lesi silo singanqotshwa. Okwamanje, siyanyakaza futhi sibheke emahlombe ethu ngokuqhubekayo. Okuthunyelwe Ukuqaphela Kabuhlungu kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/painfully-aware/

Kamuva nje sihambele umbukiso wemishini/izinkonzo zabakhubazekile eManchester obizwa nge-Kidz to Adultz. Sesiyihambele minyaka yonke manje kusukela u-Amy azalwa. Enye yezinto ezingalindelekile nezingcono kakhulu ngayo isici senhlalo. Unyaka ngamunye odlulayo, inethiwekhi yethu nomphakathi kuyakhula futhi kuxhumeke kakhulu. Ngahlangana ne-blogger ye-Firefly, umnikazi wenhlangano esiza abantulayo (PEEPS - HIE), kanye nomngane, umama ka-Heidi, kanye nomama… Sarah Land. Besikhuluma ngohambo lwezempilo oluyinkimbinkimbi lokukhulisa izingane (noma ngabe yini othanda ukulebula ngalo) futhi besikhuluma ngokuvakasha kwethu kokuqala kule mibukiso. Sacabanga ngezinsuku zethu zakuqala njengabazali kuleli zwe elinokukhubazeka. Sasisezigabeni “zokulinda futhi sibone”, singenalwazi lokuthi ikusasa lethu lizohlanganisani. Ngikhumbula ngihamba embukisweni futhi ngizizwa ngikhungathekile ngokuphelele. Impela ngeke siyidinge iveni yesihlalo esinamasondo? Kungani kunemibhede yasesibhedlela enama-padding kuyo? Kungani yonke into ibukeka njengezokwelapha kanye nemishini? Angiqondi noma yikuphi kwalokhu… mhlawumbe lokhu akukona okwethu. Ngakho-ke ngaphandle kokubheka indawo yokudayisa iFirefly (okwakuthi ngalesi sikhathi besesivele siphethe ZONKE izinto zabo njengoba isenze sakwazi ukusebenzisa izinqola zokuthenga, ama-park swing njll) yasenza sazizwa sihlukanisiwe nakakhulu, sesaba futhi sididekile. Ngokushesha phambili kuze kube namuhla, u-Amy cishe uneminyaka engu-8 ubudala. Okuhlangenwe nakho kwethu lapha manje kuhluke ngokuphelele. Sibona "umbhede obheke esibhedlela" bese sithi WOW buka imibala engena ngayo!! Siyawabona amaveni ezihlalo zabakhubazekile futhi sihlabeke umxhwele ngazo zonke izindlela ezihlukene zerempu kanye nokuhlelwa kwezihlalo. Cishe yonke indawo yokudayisa lapha ibalulekile kithi manje… futhi uyazi ukuthi yini? Asizizwa sihlukanisiwe, sisaba futhi sididekile. Sizizwa sijabule - yiziphi izingcezu ezinhle zobuchwepheshe ezize lapha namuhla ezingenza izimpilo zethu zibe lula, zibe mnandi kakhulu, ziphephe njll. Wathi kimi uSara. "Yini eshintshile kithi sonke?" futhi lona kwakungumbuzo omkhulu. Ngicabanga ukuthi impendulo yisikhathi. Isikhathi singumlaphi. Ngikhumbula ngitshelwa izikhathi eziningi ukuthi izinto zizoba lula. Ukuthi sizozivumelanisa nezimo. Ukuthi usizi luzophela. Ngikhumbula ngivutha intukuthelo futhi ngizama ukucindezela izinyembezi lapho ngizwa lokhu. Ubani wayengakwazi kanjani lokho? Bengingalindele ukuthi yithina esidinga YONKE imishini yezokwelapha ebizayo. Angikaze ngicabange ukuthi ngingajabula lapho ngigeza i-hi-lo, noma i-easel efinyeleleka ngesihlalo sabakhubazekile. Kodwa sesikhona. Sesifikile kude. Ngokuhamba kwesikhathi kufike ukwamukelwa, ukuqonda, ukuqaphela, nezinye izinto eziningi. Kusenezinsuku lapho kuba khona izigameko ezibuhlungu. Kunezinsuku engifuna ukukhala ngazo nje ngingaqondi ukuthi “kungani sisi?”. Kunezinsuku engifisa sengathi izinto zingaba lula kithina sonke. Kodwa sisendaweni ehlukile manje. Siyazi ukuthi ikusasa aliqinisekile, futhi u-Amy usedlule eminyakeni engaphezu kwengu-8 kunalokho abaningi abangakwenza empilweni yakhe yonke. Asithathi neze usuku olulodwa nje, ngisho nezinsuku ezinzima ngempela. Anginaso isiqiniseko sokuthi impilo yaba lula, ngicabanga ukuthi sesijwayelane futhi saqina. Impilo yethu isagcwele ama-aphoyintimenti, abaphathi, imithi, uhambo lwe-ambulensi, ukulaliswa esibhedlela, ukulwela izinsizakalo nemishini, ukwesaba ukuhoxiswa kwezinsizakalo ezibalulekile njll. U-Amy usesinda kakhulu manje, imishini yakhe inkulu futhi izidingo zakhe zempilo zikhule kakhulu. phakathi neminyaka; futhi nokho engingacabanga ngakho manje yilapho umsebenzi wethu wokunweba/wokuzivumelanisa nezimo wenziwa endlini yethu futhi ekwazi ukuphumuza imilenze yakhe ebuhlungu kubhavu wakhe we-hi-lo. Impilo ayibukeki ukuthi besiyihlele kanjani, futhi sengifundile - ungalokothi uhlele!! Okuzokwenzeka kuzokwenzeka. Ongakwenza nje ukuba nethemba lokuthi obathandayo eduze kwakho bazokweseka endleleni, ubonge ngayo yonke into encane, nokwazisa izinkumbulo ezijabulisayo ozenzayo phakathi kwezinxushunxushu. Okuthunyelwe okuthi Kidz kuya ku-Adultz kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/kidz-to-adultz/

Isigamu sesikhathi sesifikile - asinaso isiqiniseko sokuthi lokho kwenzeke kanjani ngokushesha okungaka kodwa sesikhona. Njengoba kuhlale kwenzeka kuDude, usethathe zonke izinguquko ezilethwe ezinyangeni ezimbalwa ezedlule. Ngifuna ukwazi nokho ukuthi ubani inunu ecabanga ukuthi kuyamukeleka ukuhlela izikhathi eziningi ezibhedlela/emtholampilo kanye/noma ukubuyekezwa esikhathini esingamasonto amabili njengoba nje isiqala ukwenza isimiso esisha sesikole?! Abantu, ihlobo lonke ladlula ngaphandle kokuhleba okuvela ehhovisi le-aphoyintimenti futhi ngokushesha nje lapho kuqala ... Enye yezikhathi zokuqokwa engizesaba kakhulu ukwedlula zonke ezinye izibuyekezo zakhe zomgogodla. I-Dude yaba ne-scoliosis, ineminyaka engu-4 ubudala. Njengezingane eziningi ezinezinkinga ze-neuromuscular, isisindo sekhanda sikhulu kakhulu ukuthi imisipha yomgogodla isekele ngakho umgogodla ugobela ohlangothini. Siyazi ukuthi ukuhlinzwa kuwukuphela kwendlela yokuqinisekisa ukuthi umgogodla uzinzile futhi uvinjwe ukuba ungagobi kuze kube yilapho uchoboza inhliziyo namaphaphu akhe, kodwa lokho akuyona into noma ubani ayifunela ingane yakhe. Kulokhu, sibona udokotela wakhe ohlinzayo. Sibonga i-covid-19 selokhu sambona, futhi ukhathazekile ngokuthi umgogodla we-chaps ungase ufinyelele ezingeni lokugoba lapho izinqumo ezinzima mayelana nokuhlinzwa zingeke zihlehliswe. Isikhathi sokuqokwa ebengiyesaba cishe iminyaka engu-7. Ngachitha isikhathi esiningi santambama ngihleli egunjini lokulinda ngenkathi uDude noBaba wakhe behla bethwebula i-x-ray, bezama ukuyibamba ndawonye. Angazi ukuthi kungani i-scoliosis ingethusa kangaka - phela, sesiphila nesifo sokuwa esingalawuleki, esisongela ukuphila kusukela esenamaviki ambalwa ubudala, kodwa kukhona into ecashile ngendlela umgogodla ogobile ozoqhubeka ngayo kancane kancane. ziba zimbi kakhulu, kancane kancane zibangele ingane yami ubuhlungu nokukhubazeka okwandayo, okungidlayo. Futhi kuvame ukuba njalo ngalaba bantu abancane abamangalisayo, i-aphoyintimenti ihambe kangcono kunalokho ebesikucabanga - inhlanganisela yokusekelwa okuhle kakhulu kwe-postural esuka esihlalweni sakhe esinamasondo, isistimu yokulala esezingeni eliphezulu kunalokho ATHANDAYO (Angikuthandi), kanye isudi ye-orthotic eguquguqukayo esekela umgogodla wakhe isho ukuthi i-scoliosis yakhe izinzile… ukuhlinzwa kungalinda isikhathi eside. Iminwe idluliselwe singamgcina ephilile ngokwanele ukuthi ukuhlinzwa kungalinda kuze kube yilapho izinduku zokukhula zingasadingeki futhi angakwazi ukuhlinzwa okukodwa ukuze ahlanganise umgogodla wakhe futhi ahlele lesi scoliosis kanye futhi f Okuthunyelwe Ukukhathazeka nge-aphoyintimenti kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/appointment-anxiety/

Ngezinye izikhathi awukwazi ukuphila okwamanje. Kuthiwani uma kuyisikhathi esibuhlungu kakhulu nesiyinselele? Ululama kanjani ezenzakalweni ezicindezelayo? Uzizulazula kanjani ngenkathi zenzeka? Izolo u-Amy ubesezinhlungwini ngenxa yezinkinga zesikhumba ezibukhali. Umphumela walokhu waba ukuthi wayecindezelekile ngokomzwelo nangokomzimba. Lapho ecindezelekile uklebhula izinwele zakhe, uyabacindezela futhi akhahlele abaseduze kwakhe. Akakwazi ukududuza ngalezo zikhathi. Ongakwenza ukuhlala uzolile, nesineke, futhi uzame konke okusemandleni akho ukugwema ukulimala. Ngokujabulisayo lezi zikhathi zenzeka kancane kunalokho ezazivame ukwenzeka, kodwa ngaleso sikhathi ngiyakwazi ukuzwa amazinga ami okucindezeleka enyuka futhi ekhuphuka. Umhlathi wami uyaqina futhi ugoqe, imisipha yami iyaqina, futhi inhliziyo yami ishaya ngamandla. Ngaleso sikhathi ongakwenza ukuqhubeka uphefumula, futhi uzikhumbuze - ngale ndlela akhuluma ngayo ngobuhlungu, lesi sikhathi sizodlula. Muva nje, u-Amy ube nama-ambulensi ambalwa ngenxa yezinkinga zokuphefumula. Ngalezo zikhathi uba luhlaza okwesibhakabhaka, edonsa kanzima ukuphefumula, ehlehla, futhi ebukeka engaphili. I-Adrenaline iyakhahlela futhi ngimmise kabusha, ngimhlole ukuthi amathambo akhe, ngimunce, ngimqinisekise, futhi ngichaze engikwenzayo. Ngibize i-ambulensi. Isifuba sami siqinile, imilenze yami ibuthakathaka. Ngaphandle nginokuthula. Ngaphakathi ngiyisiphithiphithi. Vele udlule kulesi sikhathi. Abezimo eziphuthumayo bazobe belapha maduze, uzophila, futhi sizophila sonke. Ku-ambulensi iqolo lami liyanyakaza njengoba ngizabalaza ukubeka ingane yami ethukile. Usenomoya-mpilo futhi uphapheme manje, kodwa ucindezeleke kakhulu. Abasebenzi balokhu bengitshela ukuthi ngimgcine eqondile, futhi ngiyachaza futhi ukuthi lokhu akunakwenzeka ngo-Amy. Amalambu aluhlaza manje avuliwe ukuze asifikise lapho ngokushesha. Sizoba lapho maduze, lokhu kumayelana naye, hhayi mina. Aqhubeke nokuzama ukumduduza nokumvimba ukuthi angazilimazi. Esibhedlela ngiyathula njengoba ngichaza ukuthi kwenzekeni okwesithathu, mhlawumbe okwesine. Ngiphinde ngilahle uhlu lwakhe lwemithi, okwesithathu, mhlawumbe okwesine. Lena inqubo - ungalwi nayo. Vele ubekezele futhi uchaze. Uzoba sekhaya ngaphambi kokuthi wazi, ngethemba. Phambili Phambili ngesonto. Manje izinto sezingcono kakhulu ngokwezempilo. Izinkinga ezisongela ukuphila manje sezithathelwa indawo yizinkinga ezivamile zansuku zonke ezifana nokushintsha imishini yezokwelapha enephutha, ukuxosha imishanguzo esibhedlela, nokuthola indawo yokugcina izinto zokuphakela amashubhu. Sisosukwini oluhle lomndeni sizikhiphe. Umoya waseNkwindla uhlanzekile, ilanga liyakhanya, u-Amy usesimweni esihle. Ngokushesha sibhekene nokuthi “yini inkinga yakhe? Kungani ekulesosihlalo?”. Ngiyabonga ukuthi abantu bayabuza - kungcono kunokugqolozela, noma ukuziba. Kodwa inhliziyo yami ishona phansi. Kungani kudingeka sigqame? Kungani singeke sibe nokusebenzelana okunobungane okungagxilile ekukhubazekeni kuka-Amy? Ngaphakathi ngifisa ukumane ngibe normal, ngibe yisicefe ngisho. Yeka into entsha eyisicefe noma evamile. Ngiphefumula ngawo futhi ngifake izwi lami elijabulisayo elijabulisayo futhi ngichaze futhi ukuthi ukukhubazeka kobuchopho yindlela ubuchopho obulawula ngayo imisipha nokunye. Ngishaya ucingo ukuze ngijahe imishanguzo. Ngithandazela ngaphakathi ukuthi umamukeli akhulume nami ngomusa. Ngizwa ukukhungatheka kwezwi lakhe njengoba sekungokwesithathu ngifika phakathi nesonto. Ngizikhumbuza ukuthi ngiphefumule futhi ngihlale ngizolile. Ungalahli ukwethembeka futhi ukhale. “Kungani ungakwazi ukuya kudokotela ukuze uthole le mithi?” Ngiphendula okwesithathu ngesonto. Ngilwa nesifiso sokubhuqa noma imizwa futhi ngichaze ukuthi le mithi isibhedlela kuphela. Ngizama ukwenza inkulumo encane enesizotha. Ihamba indiva. Ngiyazitshela - mhlawumbe unosuku olubi kakhulu noma umatasatasa kakhulu - ungazithatheli ngokwakho, ungakuvumeli kuthinte usuku lwakho. Ngibhala lokhu nje ngizizwa ngiqina ngizizwa ngithukuthele. Ngezinye izikhathi akuzwakali ukuthi kufanele ukufake ngaphakathi ukudabuka nokukhungatheka okungaka. Okwamanje, kulesi sikhathi esithulile, ngingakucubungula konke. Ngingathatha isikhathi ukujabulela ikhofi elishisayo, ngazi ukuthi sisekhaya nokuthi konke kuhamba kahle. Ngiyakwazi ukujabulela ukuthi ifoni yami ayikhali, bonke abantu engibathandayo baphephile futhi baphile saka, futhi ngingaziqhenya ngokuthi sonke siphumelele. Ngezinye izikhathi awukwazi ukuphila okwamanje. Ngezinye izikhathi kufanele ubekezelele umzuzu wazi ukuthi izikhathi ezingcono zizolandela. Kwesinye isikhathi lezo zikhathi ozibekezelele zizokufica futhi zikudle. Wenzani ukubhekana nalokhu? Ngokwami, nginemithi yokukhathazeka, nokwelulekwa, futhi ngizama ngesikhathi sami sokuphumula ukuze ngihambe futhi ngiye ejimini. Ukuzivocavoca kuyithinta ngempela impilo yakho yengqondo. Kunganciphisa ama-hormone akho okucindezeleka futhi kukusize ukhulule amakhemikhali amnandi. Ngezinye izinsuku ngikhathele kakhulu futhi ngikhathele ngenxa yalokho - futhi lokho kulungile futhi. Kufanele ulalele umzimba wakho, futhi uma isikhathi sivuma - zinike ithuba lokuphulukisa. Kuzwakala kuwushizi kodwa ukuzinakekela kubaluleke kakhulu. Kunzima ukungena ezimpilweni zethu njengoba kungase kube okungalindelekile. Kodwa noma isiphi isikhathi ongakwazi ngaso, zama futhi uzenzele okuthile futhi ujabulele futhi ujabulele leso sikhathi. Uma udonsa kanzima - ngicela uhambe uyobona udokotela wakho. Khuluma nothile. Ungamane ugingqike uhlupheke. Ukuphila kuyinselele kuwo wonke umuntu, kodwa uma unengane enempilo eyinkimbinkimbi kuwukukhathazeka njalo ngempilo yakhe, kanye nokuzulazula ohlelweni oluvame ukuba nzima oluyizungezile. Okuthunyelwe Isikhathi sokucubungula - Abazali Bezempilo Eyinkimbinkimbi nokucindezeleka kuvele kuqala I-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/time-to-process-complex-health-parents-stress/

Ubudlelwano bezelamani bubalulekile. Ngiyingane yesihlanu ezinganeni eziyisithupha. Bengilokhu ngimkhulu kakhulu ezinganeni zakithi. Futhi ngisekhona kuze kube yilolu suku. Ngaba nomntwana omuhle kakhulu ngiseduze nabo. Shesha phambili kuze kube namuhla. Ngiye ngibone izingane zami zihlanganyela isibopho njengezingane zakwethu. Kuyinto engiyithanda kakhulu ukuyibona. Ngingumama wezingane ezintathu enye yazo inezidingo ezikhethekile. Futhi nguye yedwa umfana wami. Yena nodadewabo banesibopho esikhethekile. Bayazi ukuthi ufunani ngaphandle kokuthi athi vu. Bahlezi bechitha naye isikhathi bembheka uma esethule kakhulu. Benza isiqiniseko sokuthi banezingxoxo naye nokuthi ubukhona bakhe abushayi mkhuba. Ngisho abangani babo bayamazi futhi bayamazisa uma beseduze. Ngicabanga ukuthi ingxenye engiyithanda kakhulu ngobudlelwano babo yindlela abajabula ngayo lapho enza okuthile. Izinto ezibonakala zincane kwabanye zinkulu kakhulu kubo ikakhulukazi uma ezenza. Muva nje bebenosuku lwe-eLearning, futhi indodakazi yami endala ibimsiza ngesabelo. Phakathi naso sonke isabelo, wayenezikhathi ezithile, kodwa wayelokhu emsiza. Lapho befika engxenyeni yokugcina yesabelo, wayefuna ukusenza. Udadewabo wayejabule kakhulu, futhi konke ngikubambe ngevidiyo. Ngiyathanda ukurekhoda izikhathi ezingahleliwe nabo. Ukubabona bethandana kwenza inhliziyo yami imamatheke. Okunye engikuthandayo ngabo ukuthi bahlale becabanga ngaye. Ngisho nangezinsuku zabo zokuzalwa bazokhetha akuthandayo ukuze nje bambone ejabule. Uma bephuma ezitolo uma bebona into ayithandayo benza isiqiniseko sokuthi bayayithola. Ngiyabuthakasela ubudlelwano babo ngoba ngike ngezwa imindeni eminingi ikhuluma ngokuthi ezinye izingane zabo azizazisi izingane zazo ezinezidingo ezikhethekile. Ngizibona ngingomunye wababe nenhlanhla ngoba indodana yami inodadewabo abamkhathalela ngempela. Odade abafuna ukumfaka ekuphileni kwabo kwansuku zonke. Osisi abaqondayo ukuthi sibathanda njengoba simthanda nje ukuthi udinga ukunakekelwa okwengeziwe. Okuthunyelwe Ubudlelwano Bezelamani buvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/sibling-relationships/

I-Halloween ngokwezwi nezwi isho ubusuku bangaphambi kwe-All Hallows Day noma i-All Saint's Day, umkhosi wosuku ogujwa ngo-1st November unyaka ngamunye. Igama elithi Halloween liwuhlobo olufushanisiwe lwe-All Hallows' Evening olugujwa ngo-31st October. Umsuka nencazelo yomkhosi we-Halloween kuthathwe emikhubeni yokuvuna yamaCeltic yasendulo, kodwa namuhla i-Halloween iyisikhathi sonyaka izingane eziningi ezisibheke ngabomvu; isikhathi sokucabanga nokuzijabulisa, isikhathi sokugqoka kanye nezindaba ezithusayo, isikhathi 'sokukhohlisa noma ukuphatha' izigigaba namaswidi amaningi! Ukukhangisa nokumaketha okuzungeze i-Halloween kubonakala kukhuphukela phezulu kakhulu njalo ngonyaka, nezitolo ezinkulu ezinikezela iziqhingi eziphelele, ngezinye izikhathi ezimbalwa zazo, ekuthengiseni kwazo kwe-Halloween. Ukukhangisa kusekela lokhu ngenqwaba yezikhangiso ze-TV ezibonisa izithombe zezipoki, izipoki, amathanga, nezicabucabu. Bese kuba ne-BBC Strictly Come Dancing 'Halloween Special'! Nakuba i-Halloween ingaba isikhathi esijabulisayo sonyaka ezinganeni eziningi, kungaba isikhathi esinzima ngempela kwabanye, kuhlanganise nezingane eziningi ezinezidingo ezengeziwe. Kubo kungase kube isikhathi esididayo, esibangela ukukhathazeka, noma ngisho nesikhathi esesabekayo kakhulu. Kodwa akudingekile ukuba kube njalo; uma sima isikhashana ukuze sicabange ngezinto abangase bazithole zinzima nokuthi singabeka kanjani ezinye izinto ukuze zibasize, bangahlanganyela ngokuphephile nokuzijabulisa okuthile kodwa ngenye indlela. Ngakho-ke, yiziphi ezinye zezinto ezimayelana ne-Halloween izingane ezinezidingo ezengeziwe ezingazithola zinzima kakhulu, futhi yini esingazinikeza yona 'Kwenye I-Halloween' yethu esikhundleni salokho: 1. Ingozi Engaziwa? Sitshela izingane unyaka wonke ukuthi zingakhulumi nabantu ezingabazi, bese kuthi ngobunye ubusuku kuvele kulunge ukuthi zihambe zingqongqoza eminyango yabantu abangabazi. Lokhu kungaba nzima kakhulu kwezinye izingane ezihlukene ngemizwa, ngokwesibonelo, ezingaba ngokoqobo kakhulu ekuqondeni kwazo futhi ezingadideka kakhulu ngalokhu. Kungani kulungile ukukhuluma nabantu ongabazi namuhla kodwa bekungenjalo izolo? Yini eshintshile? Izoba yini imithetho kusasa? Kungani? 2. Inkohliso noma Yangempela? Ukugqoka okugqamile kungase kwesabise ngempela ingane edonsa kanzima ukuhlukanisa phakathi komgunyathi nongokoqobo. Ngokwandayo, sibona izingubo zokugqoka ziba ngokoqobo ngokwengeziwe ngegazi elingamanga kanye nezimonyo zekhwalithi yama-movie okwenza abantu babukeke besabeka ngempela. Lapho lowo mugqa weqiwa enganeni ekholelwa ukuthi umuntu ngempela unokulimala okubi kakhulu noma uphendulwe into embi ngempela, ukwesaba kwabo okungokoqobo. Lawula ukuncibilika okukhulu, ukungalali ebusuku, nokukhathazeka okuphindelelayo. 3. Ngiyesaba Kwanele Kakade! Ukukhuluma ngokukhathazeka, ezinye izingane ezinezinkinga eziqhubekayo zokukhathazeka zingathola lonke ibhizinisi lokuphuma 'iqhinga noma ukwelapha' licasula kakhulu ngokwalo. Izimanga, ukwesaba, abantu abagxumela ngaphandle, konke kungasabisa. Uma kunzima ukubhekana nokukhathazeka kwansuku zonke ababhekana nakho mayelana nokuphuma ngosuku oluvamile, khulisa lokhu izikhathi eziningi lapho kuhileleke i-Halloween! 4. Kuthiwani Ngami? Bese kuba khona izingane ezinezidingo ezengeziwe noma ukukhubazeka ezingamenywa emicimbini noma ukuyophuma 'ngokukhohlisa noma zokuphatha' ngoba zibhekwa 'njengezihlukile' (imvamisa abanye abazali, hhayi ezinye izingane). Nali elinye ithuba lokuthi bazizwe beshiywe dengwane, benqatshiwe, futhi bengamenywanga ngoba abakafakwa... futhi. 5. Izinkinga Zabazali! Akuzona izingane kuphela. Abazali bezingane ezine-ADHD bangase bangabongi ngokuthi izingane zabo zinikezwe inqwaba yamaswidi anoshukela anemibala lapho zilele ubusuku bonke nengane efuthelwa ushukela ngokweqile! Kunenqwaba yezinye izizathu ngaphandle kwalezi ukugwema i-Halloween, kodwa kunezindlela eziningi zokunikeza enye indlela ye-Halloween yazo zonke izingane, kodwa ikakhulukazi izingane ezinezidingo ezengeziwe kanye nemindeni yazo ukuze nazo zihlanganyele; nansi imibono eyi-10: 10 Imibono Ewusizo 'Ehlukile Ye-Halloween' Zilungiselele kusenesikhathi, uzinikeze uhlelo lwesikhathi olubonakalayo lokuthi kuzokwenzekani, kanjani futhi nini. Lokhu kuzobasiza ukuba bangakhathazeki kakhulu ngalokho okungenzeka. 'Prime' abanye omakhelwane abanobungane abaziwa yizingane futhi ongabavakashela ngokuphepha wazi ukuthi ngeke benze lutho oluthusayo noma olumangazayo. Ngokwesibonelo, bangakhanyisa izibani zabo zangaphandle kanye nebhakede lamaphakethe amaswidi noma ukudla okulula ukuze izingane zizijabulele ngokuphepha. Mhlawumbe izingane zingacula ingoma eziyithandayo njengethi 'ngiyabonga'. Uma useduze nasemaphandleni, noma ipaki, hamba uhambo lwasekwindla (noma ugoqe, qiniseka ukuthi umzila wakho uyafinyeleleka), uqoqa ama-conker nama-fir cones, ukukha amajikijolo amnyama, ukukhahlela noma ukulahla amaqabunga awile, ubheke phezulu ezinkanyezini. . Khumbuza izingane ukuthi ziphathe amathoshi futhi zibe noshokoledi oshisayo namabhisikidi alungele uma ubuyela ekhaya. 4. Nikeza izivikeli ezindlebeni zezingane ezizwelayo emsindweni omkhulu ukuze noma yimiphi imisindo engalindelekile, iziqhumane njll. kungabi yinkinga. Khetha ezinye izingubo, 'ezikhanyayo nezikhanyayo'. Kuningi mayelana nokugqoka kunokuba ubani ongabukeka esabisa kakhulu futhi kunezinketho eziningi ezingashaqisayo, ezinhle, ongakhetha kuzo. Unalokhu engqondweni, mhlawumbe isingathe enye 'iphathi ekhanyayo', umgubho ophikisana nesiko lezinto ezikhanyayo, ezikhanyayo, ezimibalabala nezinhle. Ilayisha ukuhlukahluka okwengeziwe ngokugqoka, ubumnandi obufanayo, futhi akukho okwesabisayo! Ubani ongagqoka imvunulo egqamile?! Khetha amaswidi angenashukela, noma okungcono kodwa zama ukudla okulula okunempilo okunetimu ezungeze i-Halloween (ama-satsumas 'njengamathanga amancane' anobuso obumomothekayo njengesibonelo). Mhlawumbe uze ube 'nepikiniki yasendlini yasekwindla' lapho nendlala khona izingubo zokulala futhi nijabulele idili ndawonye, ​​noma uma isimo sezulu sisihle i-barbeque yasekwindla enokukhanya okuningi ukuyigcina ikhanya. 9. Uma uphethe iphathi elula noma ipikiniki yasekwindla/i-barbeque, cabanga ngokuthi ubani ongase asale ngaphandle futhi uqiniseke ukuthi uyakhumbula ukubamema. Zithokozise kodwa qhubeka ubheka ukuthi ingane ngayinye izizwa kanjani. Uma bedonsa kanzima, yiba nento abayithandayo belungile ukuze bakuzame kalula lokho futhi bajabule ngendlela ehlukile (ukubaza amathanga - akudingekile ukuthi besabe, ukwenza ama-mini-pie amathanga, ukuhlobisa imbiza ukubeka. ukukhanya kwebhethri ebusuku, umshini webhamuza, ukubhoboza ama-apula, ama-marshmallows athosiwe…)Futhi babe 'nendawo ephephile' abangafinyelela kuyo uma nje bedinga ukuphumula kuyo yonke imisebenzi, bagcwalise ngezingubo zokulala ezithokomele, amakhushini, futhi banikeze ukukhanya okuthambile. Ngethemba ukuthi i-'Alternative Halloween' iyimpumelelo enkulu kini nonke kulo nyaka, ikakhulukazi kulabo kini abanakekela izingane ezinezidingo ezengeziwe! Okuthunyelwe Kuthiwani 'Ngenye I-Halloween' Kulo nyaka? ivele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/how-about-an-alternative-halloween-this-year/

Le ndatshana ibhalwe yindodakazi kaMark Arnold, uPhoebe, owabelana ngolwazi lwayo lokukhula njengengane yakubo enezidingo ezengeziwe kumfowabo, uJames, kanye nokusinikeza isifundo sonke… Ekukhuleni kwami ​​angivamile ukubona umndeni ofana nowami; kusukela ngisemncane ngangingumnakekeli womfowethu omncane, uJames, owatholakala ene-Autistic kanye Nezinkinga Zokufunda lapho eneminyaka engu-2 ½ mina ngineminyaka emihlanu. Ngesikhathi ngisemusha, uJames wayengasakhulumi futhi edinga ukunakekelwa ubusuku nemini. Njengomuntu osemusha lokhu 'kwakuyinto evamile' kimi, nokho, kwafika nezinselele zako njengoba ngihamba iminyaka yami yobusha nomfowethu okhubazekile. Lesi sihloko sabelana ngezindlela ezinhlanu abantu abangabazali, abanakekela, noma abasebenza nabo, izingane kanye nentsha abangasiza ngazo ekusekeleni izingane zakubo nentsha enezidingo ezengeziwe. 1. Qaphela Ukukhulisa ubuhlobo obuhle nomuntu osemusha kusiza ekugcineni ukukhulumisana okuwusizo kuvulekile. Ukukhuthaza lokhu kuvumela izingane zakini nabazali ukuba baxoxisane uma kukhona okwenzekile phakathi nesonto, noma ngobusuku bangaphambi kwalokho, futhi abazali bangase babheke noma yiziphi izinguquko ezingase zibe khona zokuziphatha noma uma osemusha 'engekho nhlobo'. Abantu abasha abasemkhayeni onezingane zakini ezinezidingo ezengeziwe banethuba elikhulayo lokuba nobunzima ngempilo yabo yengqondo ngenxa yempilo yabo yasekhaya eqinile. Abazali kanye nentsha bangasebenzisana ekuqondeni ukuthi yini engasebenza kangcono ukubasekela kahle (bheka: 4. 'Nikeza Ukusekela' kamuva, isibonelo). 2. Khuthaza Kubalulekile ukukhuthaza izingane zakini kanye nabantu abasha abanezidingo ezengeziwe ukuthi bacabange ngendlela abasabela ngayo ezimweni. Ngokwesibonelo, ukuvuma ukuthi bangase bakhungatheke ngengane yakubo, kodwa bese bebakhuthaza ukuba babonise ukubekezela nomusa. Ngezinye izikhathi umkhaya ubeka ingane yawo kuqala izidingo ezengeziwe ngenxa yezidingo zayo ezibalulekile, okungase kuholele ekutheni izingane zakubo zinganakwa abazali. Imiphumela yalokhu ingavela ngezindlela ezahlukene, njengokubheka ukunakwa okwengeziwe futhi mhlawumbe okungafanelekile kwenye indawo noma ukuba nezinkinga zokulawula. Indlela yokuphatha lokhu ukunikeza isikhuthazo nokunaka okufanele kanye nokuqonda ukuthi uma kunokuqubuka kokuziphatha kusho ukuthi ngokuvamile kunembangela efana nokuthile okwenzekayo mayelana nezingane zakubo, noma ukuthi zizizwa zinganakiwe. 3. Lalela Uma utshela othile ingane yakubo enezidingo ezengeziwe, abantu abasha bangaphatheka kabi, futhi abazali nabanakekeli bangase bangazi ukuthi bangasiza kanjani. Kubalulekile ukuzama ukufunda ukuthi umuntu omusha ukhululekile yini ukukhuluma ngengane yakubo nabanye abantu noma cha. Ngokuvamile, ngomuntu osemusha onengane yakini enezidingo ezengeziwe, kungase kube yinto evamile ukukhuluma ngomfowabo noma udadewabo ekhaya, ngakho ukumsiza ukuba aqale le ngxoxo ekhaya nakwezinye izimo kungase kumkhuthaze kakhulu osemusha. Lena ingxoxo ebalulekile okufanele ibe nayo njalo, njengoba inikeza intsha ithuba lokuxoxa ngokuphepha ngendlela ezizwa ngayo. Izelamani zivame ukuba nomuzwa wokuthi azikwazi ukukhuluma nabazali bazo ngezinkinga ezimpilweni zabo ngoba azifuni ukubeka okunye epuletini labazali bazo eligcwele kakade. Ukusiza izingane zakini zazi ukuthi KULUNGILE ukukhuluma, ikakhulukazi ezikhathini ezicindezelayo kubo bobabili nemindeni yabo, kubalulekile. 4. Ukusekela okungokoqobo Enye indlela abazali nabanakekeli abangakwazi ngayo ukusekela izingane zakubo zezingane kanye nabantu abasha abanezidingo ezengeziwe iwukuhlonza indawo ephephile lapho bengeza futhi bayisebenzise njengendawo ethule yokwenza isibonelo, ukuqedela umsebenzi wesikole. Lokhu kungaba sendlini yomngane noma yamalungu omndeni, umtapo wolwazi, noma ezinye izikole ezihlinzeka ngamakilabhu omsebenzi wesikole wasekhaya. Kulezi zindawo eziphephile, ukuqonda nokuhlangabezana nezidingo eziyisisekelo zezelamani kubalulekile, njengokweseka umuntu osemusha ngokumnika ukudla okulula uma ephuthelwe ukudla, noma indawo ethule yokuphumula noma yokuphumula. Futhi, kuyasiza ukuqaphela izinsiza ongaqondisa abantu abasha kuzo, njengokwelulekwa, amaqembu ezingane zakini, noma ukunakekelwa kwesikhashana. Lokhu kungenziwa ngokuphumelelayo, ngaphandle kokunyathela ezinzwaneni zabazali, ngokusebenzisana ukuze kuhlangatshezwane nezidingo zomuntu omusha. Kuhle ukuxhuma imindeni nezingane kanye nabantu abasha abanezidingo ezengeziwe ndawonye, ​​ngakho-ke ukudala amathuba emindeni ukuthola lawo manethiwekhi, ukwabelana ngamatiye namakhofi, noma ukudala eminye imisebenzi njengendlela enhle yokondla yonke imindeni yabo, kuhlanganise nezingane zakubo. Inethiwekhi enkulu yokwesekwa yezelamani 'SIBS': www.sibs.org.uk Inhlangano esiza ukusetha amanethiwekhi omndeni ezidingo ezengeziwe ithi 'Thatha 5 bese Uxoxa' www.take5andchat.org.uk 5. Ukuqeqeshwa Ekukhuleni kwami ​​ngathola iqembu lentsha yesonto lapho engangingathola khona isikhathi ngingekho ekhaya 'endaweni ephephile', okwasebenza njengekhefu kimi. Phakathi neminyaka yami yobusha, ngathola ithuba lokusebenzela nokuthola ikhefu emisebenzini yami yokunakekela ekhaya lapho ngihambela amaqembu entsha. Amaqembu entsha ayenikeza ukuphumula kumfowethu, kodwa kwakunezikhathi lapho ontanga yami ababenezidingo ezengeziwe behlangabezana nokukhuthazwa kanye nokugcwala kwezinzwa okwakuphumela ekubeni bakhungatheke futhi bacindezeleke. Ulwazi lwami nolwazi lwezidingo ezengeziwe kwasho ukuthi ngigcine nginikeza usekelo kuntanga ngenxa yabaholi bethu bentsha bentula ukuqeqeshwa okwengeziwe ngezidingo. Lokhu kwasusa isici sokuphumula sesonto futhi kwaholela ekubeni ngisuke ekubeni umnakekeli osemusha ekhaya ngibe namathemba afanayo kontanga yami esontweni. Abaholi bentsha abanezinga eliyisisekelo lokuqeqeshwa kwezidingo ezengeziwe benza isiqiniseko sokuthi amaqembu entsha angabandakanya izingane zazo zonke izidingo namakhono. Uma izingane zakini ziseqenjini elilodwa lentsha nomfowabo noma udadewabo onezidingo ezengeziwe, khona-ke ingane yakini ingase ijabule ukusiza ngokusekela nokunakekela kwayo, kodwa ngezinye izikhathi iyofuna ukugxila ekwenzeni izinto zayo siqu. Ukuqinisekisa ukuthi umuntu osemusha akayena yedwa onesibopho ngengane yakubo enezidingo ezengeziwe ngenkathi eseqenjini lentsha kuyasiza njengoba kubavumela ukuba bazenzele izinqumo mayelana nemithwalo yabo yemfanelo yokunakekela. Thola ngokuqeqeshwa kwezidingo ezengeziwe lapha: www.urbansaints.org/additionalneedstraining Ngethemba ukuthi le mibono emihlanu ingasiza ekusekeleni izingane zakini ezinezidingo ezengeziwe, nokho, zingase zibe nemibono namasu ngokwazo asebenza kangcono kuzo. Qala ukuvula lezo zingxoxo, izingane zakini zingazuza ngempela ekusekelweni okwengeziwe kodwa zizizwe sengathi azinalungelo ngakho ngoba akuzona izingane zakini ezinezidingo ezengeziwe. Isikhuthazo sihamba ibanga elide ngakho ungesabi ukuqala leyo ngxoxo! Phoebe Arnold Okuthunyelwe Izindlela ezinhlanu zokusekela Izidingo Ezengeziwe izelamani, iqembu elinganakwa livele kuqala Ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/five-ways-to-support-additional-needs-siblings-an-overlooked-group/

Umbala engiwuthandayo ubulokhu ubunsomi ngaze ngaba nendodana yami. Futhi kuyahlekisa ukuthi okunsomi kusenenjongo nasempilweni yami. Lapho ineminyaka eyodwa indodana yami kwatholakala ukuthi ine-cerebral palsy. Kunezinhlobo eziningana ezahlukene ze-cerebral palsy. Indodana yami ine-hemiplegia ethinta kuphela uhlangothi olulodwa lomzimba wayo futhi esimweni sayo, uhlangothi olungakwesokudla. Usekwazi ukwenza izinto eziningi kodwa kukhona okulinganiselwe. Uhlale engimangaza uma enza izinto abathi ngeke azenze. Ngonyaka wakhe wokuqala wokuphila, ikakhulukazi walala. Kwathi lapho nginendodakazi yami futhi yaqala ukufeza izilinganiso zayo ezibalulekile. Futhi lapho wayezama ukuzenza futhi. Ngikhumbula ngenkathi eqala ukuzama ukukhasa. Wayeneminyaka emithathu ubudala. Bengihlala efulethini. Angizange ngikukholelwe engangikubona. Nanamuhla ngiyathanda ukumbona ekhasa. Futhi ngiyakholelwa ngempela ukuthi ngelinye ilanga uyohamba. Manje wenza okungaphezu kokukhasa. Uyakwazi ukugibela phezulu naphansi. Phuza endebeni ye-sippy enkulu ngoba ubelokhu eyishubhu impilo yakhe yonke ngenxa yokulangazelela amaphaphu lapho ephuza ngomlomo. Ngemuva kocwaningo lokugwinya wagunyazwa ukuthi aphuze ngomlomo ngoba wayengasakhombisi uketshezi olungena emaphashini akhe. Futhi lokhu kuvame kakhulu ezinganeni ezine-cerebral palsy. Okuluhlaza kwaba umbala engangiwuthanda kakhulu lapho ngithola ukuthi kwakuwumbala owawumelela ukukhubazeka kobuchopho. Ngithanda ukugqoka okuluhlaza ku-Jaylen. Ngiphinde ngigqoke okunsomi ku-Jaylen ngenxa yesifo sokuwa ngisho noluhlaza okwesibhakabhaka ku-autism. Kodwa ukuxilongwa kwakhe kokuqala kwaba yi-cerebral palsy. Siluhlaza kakhulu endlini yami. Ukuba nengane ene-cerebral palsy kungifundise okuningi. Indodana yami inguthisha wami ofundisa kakhulu futhi ayingifundisi ngamagama. Akakwazi ukukhuluma. Wangifundisa ngesibindi, amandla futhi okubaluleke kakhulu uthando olungenamibandela. Uyazi ukuthi bathi izenzo zikhuluma kakhulu kunamazwi? Hhayi-ke, leso sisho siyiqiniso ngoba nakuba ngingakaze ngimuzwe ethi uyangithanda ngiyazi uyangithanda. Okuthunyelwe engikugqoka okuluhlaza ku-Jaylen kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/i-wear-green-for-jaylen/

Nginokwesaba okukhulu okumbalwa njengomzali onezidingo ezikhethekile: Kuzokwenzekani uma ngifa? Ingane yami izokwenzenjani uma iqeda imfundo yayo? Kuthiwani uma ingane yami igula futhi ngingaboni ngenxa yezinkinga zayo zokukhulumisana? Ngiqinisekisa kanjani ukuthi ingane yami igcina iphephile uma isengozini kangaka? Futhi ngizokwenzenjani emhlabeni uma isitolo sokudla esiqandisiwe esiseduze kwami ​​siyeka ukuthengisa ama-nuggets aso? Esokugcina singesinye sezinkathazo zami ezinkulu. Kungani? Hhayi-ke ngoba lolo hlobo lwama-nuggets KUPHELA into ezodliwa yindodakazi yami ngesidlo sasekuseni nesasemini njalo ngosuku olulodwa. Nalapho, ngebhadi, akalidli ngisho i-nugget egcwele i-batter coating. Eqinisweni, yilokho kuphela akudlayo! Isidlo sakusihlwa siwukuphela kwesidlo anakho okuhlukile bese kuba wuphaya owodwa nje udla amaqebelengwane athambile hhayi okunye. Ngosuku oluhle, singathola izipuni zikabhontshisi obhakiwe kodwa singalokothi sithole eminye imifino noma isithelo noma isinkwa noma inyama yanoma iyiphi incazelo. Akuyona eyokufuna ukuzama ngingakuqinisekisa. Iwele lakhe lidla cishe noma yini kusukela kunyama yengulube kuya kukhari yenkukhu kuya ku-broccoli, isithelo sekiwi nanoma yini enye ebekwe phambi kwakhe. Amakhabethe ami nesiqandisi nesiqandisi kugcwele izinhlobonhlobo zokudla okunempilo okumnandi azokubeka ngenjabulo kutroli yesuphamakethe noma akupheke…kodwa ungalokothi ukudle. Yiqiniso, ngikhathazeka kakhulu ngokudla kwakhe. Ngikhathazekile ngokuthi kuzokuthinta kanjani ukukhula kwakhe, ukukhula kobuchopho bakhe nokusebenza kwakhe komzimba. Ngikhathazekile ukuthi kuzonciphisa kanjani ukuphila kwakhe futhi kumhlukanise. Ngaphezu kwakho konke ngikhathazeka ngokuthi kuzothinta impilo yakhe kanye namasosha akhe omzimba. Kule minyaka eyishumi nantathu edlule ngizame yonke into kusukela ekugwaziseni, amashadi okuklomelisa nokumbandakanya ekulungiseleleni nasekuphekeni. Akukho kuwo owenze umehluko nganoma iyiphi indlela. Ukudla kumane kumbangele ukukhathazeka okukhulu. Ulangazelela ukungaguquguquki, ukubikezela nokuqonda. Lokho abaningi abavele bakuchithe njengokuthi 'ukudla ngokuxakile' kuyinto ephambene. Eqinisweni, ukudla kwakhe okulinganiselwe kungenxa yezinkinga ezinzima zezinzwa, ukukhathazeka okuphakeme kanye nokucabanga okuqinile okuvame ukuhambisana ne-autism. Ukumcindezela ukuba adle enye into, noma okubi nakakhulu ukwenza uhlobo oluhlukile futhi 'enze sengathi' luphephile, kwenza yonke into ibe yimbi nakakhulu. Ngokumangazayo ukuhlolwa kwakhe kwegazi kwakamuva kubuye ngokwejwayelekile futhi uyakhula, uyakhula futhi uhlala engumqemane njengontanga yakhe. Imisebenzi yakhe yomzimba isebenza kahle futhi ngephutha wenza kahle. Ngakho-ke naphezu kokukhathazeka kwami ​​​​ngipheka ngokushesha futhi ngokuzithandela lawo ma-nuggets kodwa futhi ngithandazela ukuthi inkampani ingalokothi inqume ukushintsha iresiphi, noma okubi nakakhulu, ukuyeka ukuwenza. Ngiyamvumela ukuthi adle lapho ekhululeke khona futhi asilokothi simphoqelele ukuthi adle etafuleni elizungezwe iphunga, imibala nomsindo ogcwalisa izinzwa zakhe. Ngiyamlalela, ngihloniphe ukukhetha kwakhe futhi ngimazise ukuthi uma eke wafuna ukuzama enye into ukhululekile ukwenza kanjalo. Mhlawumbe ngelinye ilanga uyokwenza lokho. Kuze kube yileso sikhathi ngithandazela ukuthi ama-nuggets ashaywayo ahlale etholakala uma siwadinga. Okuthunyelwe Ukukhathazeka ngokudla okulinganiselwe kuvele kuqala ku-Firefly Blog. Ibhulogi yakamuva evela ku-https://www.fireflyfriends.com/uk/blog/the-worry-of-a-limited-diet/