I-cerebral palsy isifo sokuphazamiseka kwezimoto esivame kakhulu ezinganeni e-United States. Ilinganiselwa ku-800,000 izingane nabantu abadala ezweni lethu abanayo, ngokwenhlangano engenzi nzuzo Ukufinyelela Izinkanyezi , futhi cishe izingane ezingu-8000 zitholakala zine-CP unyaka ngamunye. Alukho uhlobo olulodwa lwe-CP—iqembu leziyaluyalu zonke ezibandakanya izinselele zokulawula ukunyakaza.
Ukuhlonipha Usuku Lukazwelonke Lwe-Cerebral Palsy, lezi ezinye zezinto ezibalulekile engizifundile mayelana ne-CP ekukhuliseni Ubukhulu :
I-cerebral palsy ingahluka nsuku zonke
I-CP ayibi kakhulu ngokuhamba kwesikhathi, kodwa izimpawu zingashintsha. Ngesikhathi sezulu esibandayo, imisipha kaMax ivame ukuqina; zikhululeka kakhulu ehlobo. Bangakwazi futhi ukuqinisa lapho ejabule noma ekhathazekile. Ngezinye izikhathi, ngimasaja izandla, izingalo nemilenze ukuze ngibasize bakhululeke.
I-Cerebral palsy ayelapheki
Ungathola ingane yakho zelashwe nge-wazoo (njengoba senzile mina nomyeni wami) ukuze uyisize ibhekane nezinselele zemoto enkulu, i-fine-motor, kanye nenkulumo, kodwa ekugcineni alikho ikhambi lokukhubazeka kobuchopho. Lokhu kungase kubonakale kucindezela—ngaphandle kokuthi ukwelashwa kungasiza ngempela ukuthuthukisa izimpilo zalabo abane-CP, kubenze bakwazi ukufinyelela amandla abo aphelele. Uyafunda ukusiza ingane yakho ngawo wonke amakhono ayo, futhi ufunda ukuthola ukwaneliseka kulokho.
Izingane ezine-CP azikuboni njengento embi ngempela
Muva nje, mina noMax besikhuluma ngeqiniso lokuthi unokukhubazeka kobuchopho. Ngachaza ukuthi ngenxa yokuthi ubuchopho bakhe buye balimala ngesikhathi sokuzalwa, abuthumeli ngaso sonke isikhathi izimpawu ezifanele emisipha yakhe. Wakuthatha lokho. Wabe esefuna ukwazi ukuthi yini eyakhe usisi unayo. Engqondweni yakhe, wonke umuntu kumelwe abe nokuthile—futhi akanaphutha! Kubonakala kakhulu kwabanye bethu kunabanye.
Asikho isidingo sokuhawukela izingane ezine-cerebral palsy
Kuyacasula lapho abantu begqolozele uMax, kodwa futhi kuyacasula lapho abantu bemnika i-The Pity Stare noma bethi "Hhawu, wena bandla!" UMax akadabuki neze. Ungumuntu ojabule, ingane ethanda ubumnandi onempilo enhle. Ukumdabukela kumenza abonakale eyinhlekelele.
Akukaze kube buhlungu ukuvele uthi "sawubona"
Ngokuvamile, abantu abadala kanye nezingane abaqiniseki ukuthi bangakhuluma kanjani noMax. Ngempela, into elula kunazo zonke emhlabeni: Vele uthi "sawubona," njengoba ubungenza kunoma iyiphi enye ingane. UMax angakujabulela ngempela.
Lapho kunentando khona, ikhona indlela
Sekukaningi ngimangazwa ukuzimisela kukaMax ukwenza imisebenzi enzima kuye, noma ngabe uhamba kancane ekhuphuka izitebhisi noma abambelele esicepheni ukuze aphile impilo ethandekayo futhi aziphakele. Mhlawumbe akalibambi ipeni ngendlela “efanele”, kodwa ubhala ngokungananazi lokho akufunayo. Yiqiniso, lokhu akusho ukuthi indodana yami ingenza umzimba wayo wenze yonke into—uma kuphela. Ukuzigqokisa kuseyinselele. Ukuphakamisa izandla zombili ukuze ahlanze izinwele zakhe kusengaphezu kwakhe...okwamanje. Nginokholo lokuthi, ngokuhamba kwesikhathi, uzoyithola indlela. Ukhuluma ngani....
Awukho umkhawulo wesikhathi emandleni
UMax wakhasa ngawo omane eneminyaka emibili. Wathatha isinyathelo sakhe sokuqala eneminyaka emithathu. Wathi igama lakhe lokuqala ("cha!") cishe amahlanu. Lapho eneminyaka engu-12 ubudala, uyaqhubeka ekhuluma amagama amasha nsuku zonke—futhi uyaqhubeka ethuthuka. Usemgqeni wesikhathi womuntu kodwa owakhe, futhi lokho kulungile.
U-Ellen Seidman ungumama wezingane ezimbili, umhleli, futhi uchwepheshe we-snacker obloga nsuku zonke Love That Max . Ungamthola ezindla ngezidingo ezikhethekile zobuzali nezinye izihloko ezibalulekile (njengokuthi sizoba yini isidlo sakhe esilandelayo) Facebook , Twitter , Pinterest , futhi I-Google+ nakuba engakaqondi ngokuphelele ukuthi kuyini lokho.
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