Ibhulogi yakamuva Usuku Lokuqwashisa Nge-HIE lulungele ukufundwa ku-inthanethi lapha https://www.fireflyfriends.com/uk/blog/raising-awareness-for-hie/Angazi ukuthi zingaki izinsuku zokuqwashisa emhlabeni (cishe ngingayi-Google) kodwa kufanele kube nemithwalo.Kufanele ngibheke ama-imeyili ethu avela esikoleni samadodakazi ami - kuhlala kukhona okukodwa mayelana nokugqoka umbala othize walokhu, noma ngenze umcimbi walokho (okungithumela okwethukeni oluncane njengoba ngivame ukuqaphela ngomzuzu wokugcina! ).Zonke zibaluleke kakhulu, futhi ngezizathu ezinkulu.Enye iseduze kakhulu nezinhliziyo zethu, futhi lolo Usuku Lokuqwashisa Nge-HIE ngomhla ka-4 Ephreli.Ngaphambi kokuba sibe noHeidi, ngangingakaze ngizwe nge-HIE (Hypoxic-Ischaemic Encephalopathy).Ngangingazi ngenjabulo ukuthi i-HIE yayiyinto. Ngangine (ngiyabonga) ukukhulelwa okuqondile.ngase ngifinyelele isikhathi esigcwele. Kwakukhona izinkomba eziqanda ngokuphelele zokuthi izinto zingahamba kabi kakhulu.Esikhathini esifushane kakhulu, ngasuka ekubeni ngingakaze ngizwe nge-HIE, ngazama ukuba uchwepheshe, ukuze ngenzele uHeidi okungcono kakhulu, nganoma iyiphi indlela engenzeka.Kodwa lungasiza kanjani usuku lokuqwashisa?Uma uphonswa emhlabeni we-HIE, kuyethusa.Awazi ukuthi kwenzekani, awazi ukuthi ikusasa likuphatheleni (“ukulinda ubone” kungenye yezinto ezinzima nge-HIE), futhi awazi ukuthi ungowakuphi.Njengoba ngizungezwe izingane ezizalwa ngaphambi kwesikhathi eziyigugu egumbini lezingane ezisanda kuzalwa, ngikhumbula ngizizwa ngingafaneleki ngokuphelele.U-Heidi wayeyi-corker ku-9lb7oz, wagcwalisa incubator, wayebukeka eqinile futhi entekenteke ngesikhathi esisodwa.Amapheshana esinikezwe wona abengafaneleki, amakhadi engqophamlando ayengafanele, nokuchazwa njalo kokuthi “HI…ini” kuqeda amandla.Ngakho, lapho sizizwa singakwazi, sazama ukwenza izinguquko ezithile, futhi sithole okuhle esimweni esinzima.Sakha i-Peeps, okuwukuphela kwenhlangano esiza abantulayo e-UK ezinikele ekusekeleni labo abathintwa yi-HIE, futhi sakha Usuku Lokuqwashisa Nge-HIE. (Lokho kwenza kuzwakale sengathi sisemthethweni - ngemuva kwezigcawu, konke kuvela etafuleni lethu lasekhishini; kunokuningi okuhlela nokukuhlanganisa kancane, kodwa unyaka nonyaka kuya ngokuya kuba kukhulu, kanye nokwesekwa esinakho. kwaba kumnandi).Usuku Lokuqwashisa Nge-HIE luyindlela yokufinyelela abantu, ukuhlanganisa umphakathi, ongase uzizwe ulahlekile njengathi, ikakhulukazi ngalezo zinsuku zokuqala.Sisebenzisa i-#HeardofHIE njengoba abantu abaningi bengayisebenzisi, kuze kube kwenzeka kubo.Nginomuzwa wokuthi kungakhulunywa, futhi kufanele, kukhulunywe ngakho (kakhulu ngesineke nangokuzwela) ezifundweni zabakhulelwe, ukuze okungenani kube yigama abantu abalizwile, futhi bazi ukuthi ukwesekwa kuba khona uma kudingeka.Kuningi engingathanda ukuthi abantu bakwazi nge-HIE.Kusithinta ngendlela ehluke kakhulu, ngezindlela ezahlukene nangezikhathi ezihlukene, futhi ayikho indlela elungile noma engalungile yokuvumelana nakho.Umphakathi we-HIE yilowo okungekho muntu ongakhetha ukuwujoyina, kodwa uma uzithola ukuwo, ukhona ngempela umqondo “wokuthola isizwe sakho”.Kukhona ukuqonda okungenakuchazwa.Sonke “siyakuthola” futhi senza konke okusemandleni ethu ukuphakamisana ngezinsuku ezimbi futhi sijabulisane ezinhle.Emindenini efana neyethu, i-HIE inathi nsuku zonke. Ukuba nosuku olulodwa oluzinikele kulo nakuba kuyithuba lokugqama, nokufinyelela abantu abaningi, ukuze bathi bane-#HeardofHIE.Uma ungathanda ukuzibandakanya, sicela uye ku-www.peeps-hie.orgOkuthunyelwe Usuku Lokuqwashisa Nge-HIE luvele kuqala ku-Firefly Blog.************ https://www.fireflyfriends.com/uk/blog/special-needs/,https://www.fireflyfriends.com/uk/blog/special-needs/advice -support/,https://www.fireflyfriends.com/uk/blog/special-needs/disabilities/
