Njengoba cishe ingane eyodwa kweziyi-150 kutholakala ukuthi ine-autism (izingane ezingama-67 zixilongwa nsuku zonke), i-autism ivame kakhulu kunomdlavuza wezingane, isifo sikashukela sezingane kanye ne-Down syndrome kuhlangene. Nokho, abekho abazali abangabikezela ukuthi bazosabela kanjani ezindabeni zokuthi ingane yabo ine-autism. Ukuxilongwa kungase kube igalelo elilimazayo noma, uma abazali befuna izimpendulo isikhathi eside, kungase kube impumuzo ngandlela-thile.
Ngokungangabazeki abazali bayobhekana nezinhlobonhlobo zemizwelo, kusukela entukuthelweni nomuzwa wecala kuya osizini olukhulu nokuphelelwa ithemba. Wonke umndeni udinga ukusekelwa okukhulu. Into ebaluleke kakhulu okufanele uyikhumbule ukuthi ukuxilongwa akulona iphutha lomuntu, futhi likhona ithemba.
Uhambo umzali wengane ene-autism abhekana nalo lungolunye lwezikhathi eziyinselele nezishintsha impilo noma ubani angake azicabange. Akulona uhambo umzali angaluthatha eyedwa. Kudinga inethiwekhi yamalungu omndeni anwetshiwe, abangani, omakhelwane, odokotela, abelaphi, othisha kanye nabantu abangabazi nhlobo ukufinyelela futhi basize.
Lapho kuqala ukungenelela, umphumela uba ngcono. Iminyaka embalwa yokuqala empilweni yengane ibucayi. Izindlela zamanje zokwelapha zinikeza ithemba langempela kanye nokwenza ngcono, futhi nethuba lokululama njengoba i-autism iyelapheka. Lokhu kwelashwa kufanele kuthathe indlela edidiyelwe yokuhlanganisa, ehlanganisa ukwelapha okufanelekile kwemitholampilo, ezemfundo kanye ne-biomedical.
Izenzo Eziyishumi Ezibalulekile Ezibalulekile Zabazali
Okulandelayo isifinyezo esisheshayo sezinyathelo ezibaluleke kakhulu abazali bengane ene-autism okufanele bazithathe ngonyaka wokuqala emva kokuxilongwa ukuze kube lula uhambo oluyimpumelelo.
- Qonda futhi wamukele ukuxilongwa. Kuzodingeka ufinyelele ekuqondeni okujulile kobunzima besifo nokuthi singayithinta kanjani ingane yakho ngokuqondile. Kungaphezu kwendaba yokufunda ngezinkinga ze-autism spectrum. Empeleni ukwamukela ukuxilongwa kusho ukusuka esigabeni sokuphika ukuya ekuvumeni ukuthi “yebo, ingane yami ine-autism. Kodwa kukhona engingakwenza ngakho.” Kwabanye abazali, ukwamukelwa kufika ngokushesha. Kwabanye kuthatha amasonto, izinyanga noma iminyaka.
- Bhala yonke into, futhi ube nolwazi futhi uxhumeke kahle. Ukuba nenqubo nokuhleleka kuyisihluthulelo sokugcina ingqondo yakho iphilile phakathi nalolu hambo. Futhi gcina imininingwane yokuxhumana yenethiwekhi yakho yosekelo ihlelekile futhi ifinyeleleka.
- Sungula iqembu lakho le-A. Kumelwe uhlanganise ithimba eliphezulu lochwepheshe bezokwelapha, bezokwelapha kanye nezemfundo ukuze uqinisekise ukuthi unobubanzi nokujula kobuchwepheshe obudingayo ekulawuleni ukuxilongwa kwengane yakho nge-autism. Ayikho indlela ongayenza ngayo yonke into uwedwa. Kufanele usebenzise ubuchwepheshe benethiwekhi yakho yochwepheshe ukuze wenze ukuhlola okunembe kakhulu kwengane yakho futhi uhlonze izindlela zokwelapha ezizohlangabezana kangcono nezidingo zayo. Amalungu eqembu azoshintsha ngokuhamba kwesikhathi, kodwa iqembu lizohlala libalulekile empumelelweni yakho.
- Thatha isihlalo somshayeli; ukwengamela ibhizinisi lokubuyisela. Ungumholi weqembu nomenzi wezinqumo wokugcina. Yize uzothembela kochwepheshe, udinga ukungabaza yonke into ukuze uqiniseke ukuthi izinyathelo ezithathiwe zinengqondo enganeni yakho. Ungavele ucabange ukuthi noma ubani uchwepheshe owazi konke. Ngalesi nqubo, ungase ube uchwepheshe kakhulu kunabanye ochwepheshe ngenxa yokuthi wazi ingane yakho kangcono kunanoma ubani. Sebenzisa lolu lwazi ukuze ulawule iqembu lakho nohlelo lokutakula lwengane yakho.
- Qaphela izinto ezithandwa yingane yakho, ezingathandi, amandla nezinselele zayo. Thola iphrofayela ephelele yokukhula yengane yakho kuchwepheshe wezokuthuthukiswa onekhono. Lokhu kubalulekile uma wena nabo bonke abanye eqenjini nizoqonda ukujula kwamandla nezinselelo zengane yakho. Ngokuvamile le phrofayili ivela kudokotela wezingane othuthukayo noma udokotela wezifo zengqondo wezingane noma udokotela wezengqondo.
- Beka izisekelo ezifanele endaweni. Lolu kuzoba uhambo olude kakhulu futhi oluvame ukuqeda amandla. Uzoba yigugu kakhulu ezinganeni zakho nasemndenini wakho uma ungahlukani. Ukuze ulondoloze impilo yakho enengqondo, cela usizo ohlelweni lokusekela lwamalungu omndeni, abangani, amalungu omphakathi kanye nezingcweti. Kunabazali abaningi abasesimeni esifanayo abangaba insiza enkulu futhi babe yingxenye yalolo hlelo lokusekela. Ngempela kudinga idolobhana ukukhulisa nokukhulisa ingane ene-autism.
- Yazi futhi usebenzise amalungelo akho omthetho. Imithetho yombuso—ikakhulukazi uMthetho Wokukhubazeka WaseMelika (i-ADA)— kanye nemithetho yezwe elingaphansi kwayo ibusa ukusekela nokwelashwa ongakuthola. Uma ungawazi futhi usebenzisa amalungelo akho angokomthetho, cishe ngeke ukuthole okudingayo, njengembuyiselo, izinsiza ezifanele kanye nemfundo eyanele. Uma unolwazi oluthe xaxa lwezomthetho, yilapho uzothuthuka khona.
- Thola ukuhlola okubalulekile nemibiko ukuze uthole izinsiza ozidingayo, futhi uzigcine zisesikhathini samanje. Ukuze uthole ukungenelela okudingwa ingane yakho, ithuluzi lakho elikhulu kunawo wonke, imibiko enemininingwane evela kochwepheshe abaphezulu kulo mkhakha. Le mibiko kufanele ikubeke ngokucacile ukuxilonga kanye nokucaciswayo mayelana nohlelo lwezemfundo, izindlela zokwelapha kanye nezinsizakalo zokweseka ezihlangabezana kangcono nezidingo zengane yakho.
- Funda ukuthi iziphi izindlela zokwelapha nezinhlelo ezifanele kakhulu ingane yakho. Ziningi izindlela zokwelapha ezahlukene kanye nemfundo ongakhetha kuzo. Ukukuvumela ukuthi ukhethe ngobuhlakani ukuthi yini okufanele kakhulu ingane yakho, wena nethimba lakho kufanele nibe nokuqonda okuphelele ngengane yakho kanye nokwelashwa okuhlukahlukene.
- Advocate! Uma kuziwa ekutholeni ukwelashwa kanye nezinsiza zemfundo, uyohlale ungummeli ongcono kakhulu wengane yakho. Ziqinise futhi ubuze imibuzo—akekho ongakhuluma ngendlela ongakhuluma ngayo. Kubalulekile ukufunda indlela yokumela nokwenza kahle.
Umthombo: http://www.parentguidenews.com/
