Ibhulogi yakamuva Impilo Yengqondo Yezingane Nokukhubazeka isilungele ukufundwa ku-inthanethi lapha https://www.fireflyfriends.com/uk/blog/childrens-mental-health-and-disability/ Muva nje bekuwusuku “lokugqoka ukuze kuvezwe” esikoleni lapho impilo yengqondo yezingane ihola usuku ekhalendeni lethu, futhi sicabanga ngalezo zinselele izingane ezivame ukubhekana nazo. Ungaba nazo zonke izinsuku zokuqwashisa emhlabeni kodwa ngaphandle kwekhono langempela lokusiza, ukushayela ushintsho, nokwamukela izinsiza ezibalulekile - liyini iphuzu? Kwafika ngesikhathi esifanele ngempela ngoba ngemva kweminyaka eminingi yokwenqaba amaphilisi okulalisa u-Amy ukuze amsize ekudambiseni ukuqhuma kwakhe okunobudlova nokucindezeleka - ekugcineni ngavuma ukunqotshwa. Kuthinta inhliziyo ukubuka futhi akukho esikwenzayo okuzodambisa le micimbi U-Amy uvame ukuthukuthela (ikakhulukazi ngesikhathi sokulala nasebusuku) futhi uzoklebhula izinwele zakhe, azinwaye ubuso bakhe, akhahlele iminyango yombhede kakhulu futhi adazuluke. Wakwazi kanye ukunqamula uzipho lwakhe olukhulu. Kuthinta inhliziyo ukubuka futhi akukho esikwenzayo okuzodambisa le micimbi. Kwesinye isikhathi kwenzeka ngezinsuku lapho engakwazi ukumelana nomsebenzi noma indawo. Akukhona nje kuphela ukuthi kunzima kuye, kodwa kungase futhi kuhlukanise nathi ngempela. Asikwazi nokuphuma endlini naye ngemva kwesikhathi esithile. Ngakho-ke, ekugcineni savuma ukuzama imithi futhi siyisebenzise ngokucophelela ngangokunokwenzeka. Kunzima ukulinganisa ngoba cha angifuni “ukumcisha”, ngokufanayo ingabe kulungile ukuthi abhekane naleli zinga lokucindezeleka? Bengibhala ku-twitter sekusebusuku ngizithela phezu kwekhasi lomuntu ozichaze njengokhubazeke kakhulu. Bebekuthola kunzima ukuthola ukwesekwa abebekudinga ezintweni eziningi. Ezithweni ezibuhlungu ngenxa yokuqina kwemisipha, ngenxa ye-reflux, eyayibazwisa ubuhlungu, kanye nokwelulekwa lapho umeluleki abe nokuqonda ngalokho lo muntu abhekana nakho nsuku zonke. Izinselele zempilo yengqondo zihlupha abantu abaningi, futhi singakhuluma ngokukhululeka ngakho manje Izinselele zempilo yengqondo zihlupha abantu abaningi, futhi singakhuluma ngokukhululeka ngakho manje. Lokhu kuyinto okufanele igujwe ngempela. Kodwa nginomuzwa wokuthi ukukhubazeka okuzungezile kusenenhlamba. Kuye kwashiwo ngochwepheshe esikhathini esidlule ukuthi “ukuqhuma kwentukuthelo” kuka-Amy, ukuziphatha okulimazayo kanye nokuhlasela kwalabo abaseduze kwakhe kuhlobene nokukhungatheka kokuxhumana. Akakhulumi. Sisasebenza kanzima kwezokuxhumana kodwa kubonakala kunzima kakhulu ebesikuthembile. Kumelwe ukuba kuthukuthelise kakhulu ukufuna ukukhulumela okuthile kumuntu okuthiwa ukwazi kangcono… futhi akakutholi. Ngokukhubazeka kokufunda, ubuhlungu obungapheli, izinkinga zokuxhumana, ukukhubazeka okukhulu nokuhle kwezimoto akumangalisi ukuthi uvame ukubhodla. Ngizifune ngokungapheli izixazululo Kungaba kuhle kuye ukuthi akwazi ukuthola ukwelashwa kokukhuluma, noma ukwelulekwa kodwa ngiyazi ukuthi lokhu akusoze kwaba inketho. Nganginethemba elikhulu lokuthi ubuchwepheshe bokubuka ngeso buyoba yimpumelelo kuye nokuthi uzokwazi ukuxhumana nathi. Sisebenzisa izimpawu emakhadini kodwa ngezinye izikhathi ngeke azibandakanye noma akuhambisani nazo kakhulu. Nakuba engakhulumi kodwa uxhumana kahle kakhulu nokusazisa ukuthi yini ayifunayo, okungukuthi, i-iPad, umculo, ukushintsha indawo, ukushintsha kwephedi njll. Kodwa ngaphezu kwalokhu sidonsa kanzima. U-Amy manje useyintombazanyana enkulu… amahithi nokukhahlelwa kuba nzima, ukumyisa endaweni ephephile kunzima kakhulu. Ngezinye izinsuku ubonakala edangele, eyozela, ehlukene nathi. Ngiyazibuza ukuthi ngabe lokhu kungenxa yesenzo sokuquleka, ingabe ukhathele, noma uzizwa edangele? Uma ekwazi ukukhuluma ubezothini? Ingabe uyajabula? Emaqenjini ahlukahlukene e-cerebral palsy, engiyingxenye yawo, ngivame ukubona abazali bezingane ezikhulumayo besho ukuthi ingane yabo ikhathazekile, idabukile, ihlukile njll. Ngibabona bezama ukuthola izindlela zokusiza ingane yabo ukuthi iqonde ukubaluleka kwayo nokubaluleka kwayo nokuthi ukuhluka kulungile. Ngibona abazali bezama ngamandla ukuthola izindlela zokunciphisa izinhlungu zomzimba ezihambisana nokuxilongwa. Kunzima kakhulu kuwo wonke umuntu futhi ngihlala ngifunda izimpendulo ngentshisekelo njengoba sisazothola okuthile esicabanga ukuthi kuzosiza. Uma ekwazi ukukhuluma ubezothini? Ingabe uyajabula? Ezinkundleni zokuxhumana ubonakala eyingane ejabule kunabo bonke emhlabeni, kodwa iqiniso lihlukile. Udokotela wethu wezingane uye wadlulisela ama-HYM (ingqondo esencane enempilo) engiziswe ukuthi iyinsizakalo engenamali enkulu futhi egcwele ngokweqile. Ikhombisa nje ukuthi zingaki izingane ezidonsa kanzima futhi ezidinga ukwesekwa okwengeziwe. Udokotela akanaso isiqiniseko sokuthi yini angasinika yona ngaphandle kwemithi, futhi sinikezwe ezimbalwa ezingena ngaphansi kwesigaba se-antipsychotic. Ngenqabile kuze kube manje njengoba enemithi eminingi futhi ngifuna ukuzama ukuyinciphisa. Asazi ngempela ukuthi zonke izidakamizwa zixhumana kanjani; Angifuni ukwenza izinto zibe zimbi nakakhulu. Ngike ngaba nemihlangano lapho ochwepheshe beshilo khona ukuthi kungenzeka ukuthi uhlushwa ukukhathazeka noma ukucindezeleka. Ikhuliswe kakhulu. Izinto zokuzilibazisa nokujwayelekile zibalulekile ekusizeni impilo enhle yengqondo Ngithole uhlu ku-inthanethi oluthi, "ukwelashwa kwenkulumo nolimi, usizo lwezemfundo, amaqembu okusekela, i-physiotherapy, imithi, uhlelo lwezemidlalo oluguquguqukayo, ukwelashwa kokuziphatha, umsebenzi wezenhlalakahle, ukwelashwa kwengqondo". Ukubona lolu hlu kwangiqinisekisa ukuthi njengamanje senza konke esingakwenza ukuze siphishekele impilo yengqondo engcono kakhulu ku-Amy. Ngethemba ukuthi kulo nyaka ngizozama ezemidlalo eziguquguqukayo (i-boccia) kanye nemisebenzi yokugibela ibhayisikili elihamba ngesihlalo sabakhubazekile, kanye nokuba sibe namaholide omndeni athandekayo ngoba ngezinye izikhathi ngicabanga ukuthi izinto zokuzilibazisa nokujwayelekile kubalulekile ekusizeni impilo enhle yengqondo. Ngivame ukubheka u-Amy, ngibabaza ubuso bakhe obuncane obuhle, futhi ngiyazibuza ukuthi "ucabangani?". Izikhathi eziningi, ngiye ngabona izingane zakhe ezibukayo zigijima futhi zidlala epaki futhi ngiyazibuza ukuthi "ingabe lokhu kuyamcasula? noma unesithakazelo nje?". Sekukaningi ngizizwa "ngingowangaphandle" noma "ohlukile", ngiba ne-imposter syndrome futhi lapho ngihlangene futhi ngicabanga ukuthi "ha, bheka uzama ukungena futhi ubukeke ujwayelekile!" Ngakho, ngiyazibuza, ingabe uyawazi umehluko? Impela uyakhungatheka elwa nomzimba wakhe. Ngizithola ngivame kakhulu ukuqhathanisa ubuntwana bakhe nobami. Bekungeke kwehluke kakhulu. Bengifuna abe nalokhu ebenginakho. Kodwa kuhluke nje. Ngiyazibuza ukuthi zingakanani izinkathazo zami engizifaka kuye. Kuze kube manje, ngokuyinhloko ngifunde: Yenza akuthandayo. U-Amy usenze sicule kakhulu njalo. Uma sesenze ukucula okwanele, i-iPad namavidiyo ayavela. Zama ukuziba ababukele. Isimo senziwa sibe nzima abantu abama bagqolozele. Kwengeza ekukhathazekeni kwethu okunezela kuye. Unganaki konke ukwahlulela. Cishe laba bantu abazi ukuthi ukuphila kwethu kunjani. Senza nje okudingeka sikwenze. Uma i-iPad idingeka ezu ukuze imsize akwazi ukugxila endaweni yakhe, makube njalo. Uma besingenza i-iPad icishwe, singenza! Iba nesineke. Ngokusobala, asibona abangcwele. Kunezinsuku lapho isineke sami sintengantenga futhi ngivele ngifise sengathi izinto zingazola. Kodwa ngingathi senza umsebenzi oncomekayo wokuzola ukuze simsize azizwe ephephile. Ngizohlala ngiseduze kwakhe noma nginikeze isikhala lapho sidingeka. Buza noma kunjalo. Ngibuza u-Amy njalo ukuthi unjani. Mtshele ukuthi simthanda kangakanani. Ngiyamtshela ukuthi ubaluleke kangakanani, ubalulekile, futhi uyamangalisa. U-Amy ufakazele izikhathi eziningi ukuthi uyaqonda kakhulu kunalokho abanye abantu abamnika kona. Phuma uhambe. Thola umoya ohlanzekile, thola lezo zindawo ezifinyeleleka kalula, futhi nenze izinkumbulo ndawonye. Amathemba aphansi. Ungalindeli ukuya endaweni yokwelapha yomculo, noma i-disco njll futhi ukuze ibhukude. Hamba uzilungiselele, wamukele lapho kungasebenzi futhi umamatheke ngakho. Ungenza okusemandleni akho kuphela. Zibheke. Uma ungazinakekeli, ungabheka kanjani omunye umuntu? Ingabe kukhona ongakwengeza ohlwini? Okuthunyelwe Impilo Yengqondo Yezingane Nokukhubazeka kwavela kuqala ku-Firefly Blog . ************ https://www.fireflyfriends.com/uk/blog/special-needs/advice-support/
