Ibhulogi yakamuva I-Confessions kamama wezokwelapha isilungele ukufundwa ku-inthanethi lapha https://www.fireflyfriends.com/uk/blog/confessions-of-a-medical-mom/Ngizothembeka kakhulu kulokhu okuthunyelwe, ngomusa thatha lokhu njengesixwayiso kanye nesitatimende sokuzihlangula. Ngihlose ukuvuma ukungazinaki izinto eziningi iziqondiso zabazali ezisitshela ukuthi kufanele sizenze, cha. Futhi ngaleyo ndaba, ukwenza okuningi kwalokho okunqatshelwe.Njengomama omusha onomntwana oyinkimbinkimbi ngokwezokwelapha nganginovalo lokuthi ngangingakwazi ukwenza umsebenzi engangizowenza. Khumbula Incwadi Ebomvu enikezwe abazali abasha? Leyo ekhombisa ukuthi izingane zakho zithuthuka ngezigaba ezibalulekile zokukhula? Yebo. Safaka elethu eshalofini futhi sakuziba (iseluleko esihle kakhulu sesivakashi sezempilo esake sanikezwa ukuthi - ngokushesha nje lapho ukuxilongwa kwe-Dude kungena, wathi angikubeke lapho ngingakuboni khona).Besivele sazi ukuthi ulwela impilo yakhe, izigaba zokuthuthuka bekungezona ezihamba phambili. Ngiphinde ngayithola phakathi nesonto elingaphambi kukaKhisimusi...iminyaka eyishumi ngemva kokuba iqale ukuthunyelwa kulelo khalori isenamandla okulimaza, ngakho yabuyela kuyo (ngaphansi kwenqwaba yezinto ezingeke zidingeke IMINYAKA) .Isikhathi sokulala singesinye salezo zihloko okuvunyelwana ngazo ochwepheshe bokukhulisa izingane - isikhathi sokulala ngaphambi kwesikhathi, isimiso sibalulekile.Erm, hhayi kulo muzi abekho. Ukuquleka, imithi eminingi, izinguquko ezivamile zokulala/izingubo (ikakhulukazi eminyakeni yokuqala ngaphambi kokuba izinkinga ze-gastro/reflux zilawulwe kangcono) kwakusho ukuthi isikhathi sokulala sasiphazanyiswa/siphazamisekile. Ukuyibeka ngesizotha. Manje, sihamba nalokho umfana wethu akudingayo - unendlela yakhe yokulala, kungase kusho ukuthi ngezinye izikhathi ebusuku akalali kuze kube ihora leshumi ebusuku kodwa abanye usuke elele ubuthongo ngo-7pm. Safunda kudala ukuthi angajuluki, uma umsebenzi wakhe wokudlikiza uphezulu udinga ukulala. Kwezinye izinsuku, akakwenzi.Kanti ngendaba yokulala...silale ngokuhlanganyela, singalali ebusuku elele phezu kwesikhwama sikabhontshisi, elala ngamashifu ama-3hr omunye ebuka i-seizure-watch, elala kosofa imibhede, ezihlalweni zasesibhedlela.. 3hrs silale sonke edining room njengoba bekuphephile kunathi siphezulu nomfana wethu ephansi.Ngenze into ebingacabangeki futhi (ziqiniseni) ngibambe ingane yami ilele igone ezingalweni zami, isencane ngamncelisa ukuthi ilale lapho iqhanyelwe, lapho ukuquleka sekumcindezele waze wangathi akaduduzeki. ngigeze ngamanzi afudumele phakathi nobusuku nje amdedele akhululeke njengoba amanzi afudumele esebenza umlingo wawo.Ngifisa sengathi ngesikhathi umfana wami exilongwa okokuqala ngazi engikwaziyo manje.Ukuthi KULUNGILE ukwenza izinto ngendlela yakho. Ukuthi izingane zezokwelapha zinokwanele ukuqhubeka nokukhathalela ukulandela okushiwo 'ochwepheshe'. Abazali babo nabo benza kanjalo. Futhi kuhle. Ngo-11, i-Dude iyi-epic ngokuphelele. Futhi ngemva kweminyaka eyishumi kanye nalokhu, ngicabanga ukuthi ngingasho ngokuphepha ukuthi sikutholile lokhu.Okuthunyelwe Ukuvuma Komama wezokwelapha kuvele kuqala ku-Firefly Blog.************ https://www.fireflyfriends.com/uk/blog/special-needs/,https://www.fireflyfriends.com/uk/blog/special-needs/advice -support/,https://www.fireflyfriends.com/uk/blog/special-needs/disabilities/
