Ibhulogi yakamuva I-Fuming Mad: Ngoba Ingane Yakho Enezidingo Ezikhethekile iza kuqala isilungele ukufundwa ku-inthanethi lapha https://www.fireflyfriends.com/uk/blog/fuming-mad-because-your-special-needs-child-comes-first / Eminyakeni yokuqala yohambo lwami lokukhulisa izidingo ezikhethekile ngezwa sengathi izwi lami lithulisiwe nokuthi ukwazi ingane yami kangcono kwathatha isihlalo esingemuva kochwepheshe abamemezela ukuthi bazi ngaphezu kwami. Kwangithatha iminyaka eminingi ukubona ukuthi izwi lami lengane yami lalinamandla kakhulu, lizwakala kakhulu futhi lowo owayenguchwepheshe empilweni yakhe kanye nezidingo zakhe. Kwadingeka abelaphi bangitshele ukuthi kwakudingeka ngivumele indodana yami ukuthi ikhale ngokwelashwa ngisho noma ibhikisha ngenxa yobuhlungu noma ukungakhululeki; odokotela bebhala ukwehluleka ukuchuma nakuba edle ukudla okungaguquguquki okunama-kilojoule amaningi kunomuntu omdala ngosuku olulodwa futhi wamane waba nomonakalo omkhulu wezinzwa kangangokuthi ugawula umzimba ngendlela ehlukile; udokotela wamathambo engiyala ukuba ngenze indodana yami “iqine” uma ingasafuni ukuba sesudi yezokwelashwa eqinile eyayiyimpintsha kakhulu; futhi ngisho nochwepheshe ozibiza ngesihlalo semoto engitshela ukuthi angikwazanga ukuyisa ingane yami ibheke phambili esihlalweni semoto enezinyanga eziyi-11 ubudala ukuze ngiyivimbele ukuthi ingajikijeli futhi ilangazelele ngenxa yokuphazamiseka okukhulu kwezinzwa ngokubheka emuva. Futhi-ke ngabona ukuthi lapho ekugcineni ngithola umgogodla wami wabazali (okwenzeka nakanjani kubo bonke abazali abanezidingo ezikhethekile ngesikhathi esithile), wenza "ochwepheshe" bathukuthele. Yileyo ncazelo yomzali enezidingo ezikhethekile engikwaziyo ukuvikela ingane yami enezidingo ezikhethekile futhi ngiyinakekele kangcono kunanoma iyiphi incwadi noma umhlinzeki owake wayifunda esikoleni. Ungalokotha kanjani uphikisana nezeluleko zochwepheshe futhi ungalandeli “isayensi”. Abuye akhonkothe. Ngacelwa ukuba ngibe yisikhulumi sezivakashi ngomzuzu wokugcina woHlelo Lokuphepha Kwezimoto olwenziwa i-Riley Hospital for Children, Indiana University School of Medicine. Indima yami bekuwukuxoxa ngamamodeli ezihlalo zemoto, izici zazo zokuphepha, nokuhambisana kwezingane ezinezidingo ezikhethekile ngolwazi lwami nolwazi lwami njengelungu lemishini yezokwelapha ehlala isikhathi eside kanye nomgqugquzeli womkhiqizo. Izilaleli kwakungodokotela, abahlengikazi kanye nezakhamuzi zezokwelapha kuphela. Nemihlathi ivele yashaya phansi uma ngiphambana nemithetho yezihlalo zemoto. Kulandelwa ukugqolozela kohlanya. Bekulindeleke kakhulu uma wethula okuqukethwe okungajwayelekile futhi uphonsela inselelo umkhakha wezokwelapha. Kodwa, ngazibamba. Ukubanikeza izibonelo zangempela zomhlaba zokuthi umhlaba wethu kufanele uguqulwe kanjani ngengane enezidingo ezikhethekile. Nokuthi akusoze kwaba usayizi owodwa olingana konke, noma ukuthi sonke singalandela imihlahlandlela yezempilo efanayo. Lezi yizingxoxo ezibalulekile okufanele zibe nazo ngoba akuzona zonke izidingo ezikhethekile izingane ezingezona izimo zokusikisela -- ngisho nezidingo zemishini eguquguqukayo. Okuphephile kwengane eyodwa, kungase kube imbangela yokulimala noma ukufa kwenye. Isihloko sokwazi kangcono ingane yakho akuxoxwa ngaso kakhulu, ikakhulukazi uma lokho kusho ukuphambana nochwepheshe, izeluleko kanye nezindinganiso. Izingane ezinezidingo ezikhethekile azilingani zonke. Ngayinye engibusiswe ukuyazi ihlukile ngayinye noma ngabe inesifo esifanayo noma ukukhubazeka. Umuntu angase adinge ukuhlala emotweni ukuze agcine ukugcwala kwawo komoyampilo kungaphezu kuka-90. Umuntu angase adinge ukuhlala aqonde ukuze angaminyanisi uketshezi, kungase kudingeke ukuthi alale phansi ngokuphelele ngemva kokuhlinzwa inqulu kabili nomgogodla. Umuntu angase adinge ukuthi abheke phambili ngaphambi kweminyaka enconywayo ukuze akwazi ukubhekana nokuphazamiseka kwezinzwa okumbangela ukuba ahlanze futhi alangazelele ngaphansi kokucindezelwa. Umjaho wasekhaya omkhulu engawushaya ngalolo suku wawukwenza ukuthi lezo zilaleli zicabange nje engikushoyo. Kwakungadingeki ukuba bavumelane, kodwa ngethemba ukuthi ngatshala imbewu abazali ekugcineni abayazi kangcono ingane yabo futhi ngezinye izikhathi lokho kuyosho ukuphambana nezindinganiso noma iseluleko esingokwesiko. Ithemba lami lihamba nesikhathi njengoba abaningi bethu bezwa amazwi ethu ohambweni kuzoncipha ubuso obuthukuthele kanye nokumamatheka okuziqhenyayo okusisekela ngomsebenzi owenziwe kahle. Okuthunyelwe I-Fuming Mad: Ngoba Izidingo Zakho Ezikhethekile Ingane Iza Kuqala ivele kuqala ku-Firefly Blog. ************ https://www.fireflyfriends.com/uk/blog/special-needs/,https://www.fireflyfriends.com/uk/blog/special-needs/advice -support/,https://www.fireflyfriends.com/uk/blog/special-needs/disabilities/
